ChelleMc replied to the topic Levels back up… 🙁 in the forum Treatment 13 years, 2 months ago
Hi all..
Thank you again for the lovely words. We saw Phil's Consultant today. He doesn't think the Revlimid is working like it should. Doesn't think it is a "Blip" since the levels have gone up that much. Going to stay on the Revlimid for now and been referred back to Dr Cook @ Birmingham to hopefully start on the Bendemustine Trial. He was too…[Read more]
ChelleMc replied to the topic Levels back up… 🙁 in the forum Treatment 13 years, 2 months ago
Hi. Just wanted to Thank everyone for the lovely words of wisdom. We are back at the Consultant in the morning so fingers crossed. I do try and stay positive I just hate getting knocked back 2 steps after going ahead 1.. Guess that's the name of the game though… Thank you again.. Will let you all know what happens at the Consultant. xx
ChelleMc started the topic Levels back up… :-(. in the forum Treatment 13 years, 3 months ago
Hi all,
Just needed some words of wisdom. My husband is 37 (diagnosed at 30). This year has been so tough and he has been quite ill. MM has kicked his ass this year to be honest. The Velcaid didn't work and he was too ill to get onto a trial so the Consultant had to go to his last resort of Revlimid. He is on his 4th or 5th cycle. The 1st lot…[Read more]
ChelleMc replied to the topic Struggling to Cope in the forum Carers 13 years, 3 months ago
Hi,
I don't know if you ever "know" how to act. My husband is 37 and was diagnosed at 30. It was caught by accident and was fairly good the past few years. This year has been SO different! He has been quite ill and we've actually started talking about death. I try and do the good and the bad. I'll tell him how things will get better and they…[Read more]
ChelleMc replied to the topic Welcome Paul in the forum Under 50s 13 years, 3 months ago
Hi Paul.
Welcome. I'm sure it was tough to hear your news. But the others are right this is a great place to get advice, support, friendship and vent. My husband is 37 and was diagnosed at 30. I have just started a Support Group in Burton because of how wonderful Myeloma UK has been. I wanted to give back some help. It does get easier after some…[Read more]
ChelleMc replied to the topic Bortezomib Consolidation Trial in the forum Treatment 14 years ago
Hi. My husband has just started Velcaide. He had his SCT 5yrs ago and has been on Thalidamide. He almost had to do a trial at Birmingham Hosp but (Thank God) Sarah at Myeloma UK helped get funding for it at Burton. The trial would have been fine but it was 50/50 that he would get the back up drug that goes with it. So I would suggest to get ALL…[Read more]
