Myeloma Forum | MichelleMcCartney | Activity https://forum.myeloma.org.uk/members/ChelleMc/activity/ Activity feed for MichelleMcCartney. Thu, 23 Apr 2026 02:24:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b065af00146bf41fcec94e7e51e12a2e MichelleMcCartney replied to the topic Three little words...... in the forum General http://www.myeloma.org.uk/forums/topic/three-little-words/page/2/#post-94464 Thu, 21 Feb 2013 19:04:47 +0000 Congrats! That's wonderful. 😀

]]> d5d1789d6981545240dfe12036efbf72 MichelleMcCartney started the topic Article and stuff!!. in the forum General http://www.myeloma.org.uk/forums/topic/article-and-stuff Mon, 18 Feb 2013 21:29:38 +0000 Last week I wrote to Take A Break magazine about Phil. I spoke with them Friday and they contacted me this morning to confirm that they want to publish his story! I am chuffed to bits. Will update when I know when it will be in the shops. Also I have developed a Facebook page (Burton Myeloma Support Group) and Twitter page (@burtonmyelomasg). Hope…[Read more]

]]> d5734b95a402ec53c0dc3cba55bcf851 MichelleMcCartney replied to the topic Question.....maintenance treatment in the forum General http://www.myeloma.org.uk/forums/topic/questionmaintenance-treatment#post-94404 Sat, 16 Feb 2013 18:14:30 +0000 Hiya,
I would also ask about Thalidamide to see if it's an option..
All the best of luck..
Chelle xx

]]> dee0cbfd5c3ddc8c01266deadbb60f2c MichelleMcCartney started the topic Burton Supprt Group. in the forum General http://www.myeloma.org.uk/forums/topic/burton-supprt-group Sat, 16 Feb 2013 11:08:48 +0000 Hello everyone…
Just wanted to wish everyone a happy & healthy 2013.. I hope everyone is feeling well and has high spirits…
The next Burton Myeloma Support Group Meeting is 12 April @ 14:00.
If you or anyone wants information please feel free to contact me through here, 07872 562536 or burtonmyelomasg@yahoo.co.uk
All the best,
Chelle

]]> 3bb7d8ad0976b048187a90778e984a5e MichelleMcCartney replied to the topic Queen's Hospital Burton Suport Group in the forum General http://www.myeloma.org.uk/forums/topic/queens-hospital-burton-suport-group#post-91164 Thu, 29 Nov 2012 14:46:20 +0000 Hi Mike,
So wonderful to hear from you! You are more than welcome to come. The next meeting is 7 Dec @ 14:00. It's on thev1st floor Jubilee Wing Seminar Room. It's right behind reception. Where are you possibly aving you SCT. Hope to see you on the 7th, if you need anything before please don't hesitate to contact me: burtonmyelomasg@ahoo.co.uk or…[Read more]

]]> 717afb06da8e463a63f740d2eb8933ae MichelleMcCartney started the topic Fundraiser. in the forum General http://www.myeloma.org.uk/forums/topic/fundraiser Tue, 07 Aug 2012 21:12:43 +0100 Just wanted to make anyone aware.. I am hosting a ladies night, Fashion Show & Sale Fundraiser. It is on Wednesday 5 Sept @ The National Brewery Centre in Burton on Trent Staffordshire. Doors open at 7p and show starts at 7:30p. Tickets are £6. Clothes are from the High Street Stores and up to 75% off!! You can see, purchase and take hoe your…[Read more]

]]> 0c3891f954472861c421be332c2fc9f7 MichelleMcCartney started the topic Fundraiser. in the forum Off topic http://www.myeloma.org.uk/forums/topic/fundraiser1344373884 Tue, 07 Aug 2012 21:11:24 +0100 Just wanted to make anyone aware.. I am hosting a ladies night, Fashion Show & Sale Fundraiser. It is on Wednesday 5 Sept @ The National Brewery Centre in Burton on Trent Staffordshire. Doors open at 7p and show starts at 7:30p. Tickets are £6. Clothes are from the High Street Stores and up to 75% off!! You can see, purchase and take hoe your…[Read more]

]]> e504377c3f3f04c6887dab938eebb670 MichelleMcCartney replied to the topic Lost in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/lost/page/2/#post-107680 Tue, 07 Aug 2012 21:03:50 +0100 Hi,
I am so sorry for your loss. My husband passed 10 March. There are good days, bad days and days I still feel lost. Have you thought of bereavement counsiling? I had my 1st one on Monday & found it very helpful. I wish I knew the magic words to help but unfortunatly they're different for everyone. Just know there is always support on here.…[Read more]

]]> db11647afb18fc76692affcba30655ca MichelleMcCartney replied to the topic 10 March 2012 in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/10-march-2012#post-107521 Tue, 20 Mar 2012 20:15:57 +0000 I would just like to say a huge thank you for all the kind words. We are managing day by day and tear by tear. My 1st concern is the 2 oldest kids. I have spoke with both their schools and am sorting bereavement counsiling for them. The baby is doing better. Getting to be more of herself. Hopefully they will cope OK on Friday. It's tough to be…[Read more]

]]> aa24f8e28b4aeacdb4fe47cf159214bf MichelleMcCartney started the topic 10 March 2012. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/10-march-2012 Sun, 18 Mar 2012 21:34:54 +0000 I've been a widow for 8 days now. I still can't get use to it. Phil went to bed fine that Thursday and then I was calling 999 at 3:30a. He perked up Friday then gone @ 10:30 Saturday morning. I guess he perked up so his parents, sister, my mum and our 3 kids could say good bye? He passed in my arms with his parents and sister next to him. I gave…[Read more]

]]> 30afdb251a2bc09fa66f65ba8c812647 MichelleMcCartney started the topic How do you start to say good bye??. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/how-do-you-start-to-say-good-bye Thu, 29 Dec 2011 22:05:40 +0000 First of all I would like to say I am so sorry for all the losses you have encountered. I wish you all peace and prayers.
I am the carer to my husband who is 37. He was diagnosed in 2004. The past year MM has been running the show and we have just been told our last hope chemo (Revlamid) isn't working. He has no more NHS chemo and only has the…[Read more]

]]> 87462514bc056f4cee8ed9d176ad7df5 MichelleMcCartney replied to the topic New and confused in the forum Under 50s http://www.myeloma.org.uk/forums/topic/new-and-confused#post-106914 Thu, 29 Dec 2011 21:49:21 +0000 Hi Gary, First off.. Don't be embarrassed!! It is wonderful that you want to help your sister. I am the carer for my husband who is 37 (DX 2004). I wish I could say the magic words to solve the situation but unfortunately… Cancer sucks.. And there is no easy way. Phil had SCT and different chemos over the past 7yrs (including Thalidomide) and…[Read more]

]]> b444eba24dcb8581171c371018faefc8 MichelleMcCartney replied to the topic New Carer saying Hello in the forum Carers http://www.myeloma.org.uk/forums/topic/new-carer-saying-hello#post-106219 Thu, 29 Dec 2011 21:31:15 +0000 Hi and welcome. I have to agree with the others, the support you will get here is wonderful. I am a carer to my husband Phil. He was DX 2004 at 30. He has done well but the past year MM has been taking a toll. The feelings you have are so normal. You will have good and bad days just like he will. Phil was just admitted into hospital for the 2nd…[Read more]

]]> 84282d7634ee195bd7a1558c676eb964 MichelleMcCartney started the topic It was only a transfusion..... in the forum Carers http://www.myeloma.org.uk/forums/topic/it-was-only-a-transfusion Mon, 28 Nov 2011 22:17:31 +0000 Phil had his Consultant appointment this morning. he had been ill over the weekend but no fever just feeling crap- that time of year. The told us last week his bloods were low and ended up not being able to go the Myeloma Info Day in Birmingham this past Sat… We knew he would probably need a blood transfusion but for some reason when they told…[Read more]

]]> e18521591b364d02c2b346ccb9b29a7b MichelleMcCartney replied to the topic HI ALL ANOTHER YOUNG UN in the forum Under 50s http://www.myeloma.org.uk/forums/topic/hi-all-another-young-un#post-106927 Mon, 28 Nov 2011 22:04:58 +0000 Welcome to the forum, sorry it's under this situation. I am 37 and the carer of my husband (also 37). You're levels are very low which actually is a good time to av a SCT. I wasn't with my husband when he had his in 2005 but I do know you will need a lot of support. It is a difficult recovery, in some aspects more emotional. It's the only time he…[Read more]

]]> 80f717fb67a42af8222cce0a16f80ac0 MichelleMcCartney replied to the topic Minor Op next week in the forum Treatment http://www.myeloma.org.uk/forums/topic/minor-op-next-week#post-98221 Sat, 17 Sep 2011 04:04:29 +0100 Hi,
Just wanted to wish you both good luck on the op. I'm sure everything will go fine. I'd love to say don't worry but as a carer myself I know that's not possible. 🙂
Last year my husband got his flu jab so hopefully he is on the list this year. My GP's front desk can be awful. If you don't get a letter they won't do anything and don't want…[Read more]

]]> 5979d395dc2e6eac5b65311ac27efe63 MichelleMcCartney replied to the topic Queen's Hospital Burton Suport Group in the forum General http://www.myeloma.org.uk/forums/topic/queens-hospital-burton-suport-group#post-91161 Mon, 12 Sep 2011 21:06:59 +0100 Hi,
Was nice to meet you as well. Yes our 1st meeting is a few weeks away! Getting excited & nervous.. Thank you for the support!
Chelle

]]> 668bcf9b3fdccc123f0880554b28df1c MichelleMcCartney replied to the topic Alternative to Aredia? in the forum Treatment http://www.myeloma.org.uk/forums/topic/alternative-to-aredia#post-98190 Sun, 11 Sep 2011 12:32:47 +0100 Hi,
My husband is on Zometa and touch wood had had no problems. He has had about 3-4 infusions. I'm not sure if he can be switched but it is worth asking the consultant or even calling Ellen on the info line here as she might know or be able to point you in the right direction.
Best of luck,
Chelle

]]> 4f92323d4a0d12948495f772625bd003 MichelleMcCartney replied to the topic Work - when is it enough? in the forum General http://www.myeloma.org.uk/forums/topic/work-when-is-it-enough#post-91190 Sun, 11 Sep 2011 12:25:07 +0100 Hi,
My husband has been off since late March. He was told when his levels were steady for +4weeks he could go back (mainly his neutrophils). They went a whole 4 weeks but that's it. He's still home. As much as he is waiting to go back it is for the best and it had taken his SO long to come to terms with that. He would go to work if his eyes were…[Read more]

]]> 77d27bfe9e6611250be8dc6d544640f7 MichelleMcCartney started the topic Queen's Hospital Burton Suport Group. in the forum General http://www.myeloma.org.uk/forums/topic/queens-hospital-burton-suport-group Mon, 05 Sep 2011 19:15:28 +0100 Hi.
I just wanted to get the word out that I have started a new Support Group at Queen's Hospital in Burton upon Trent. The 1st meeting is 12 Oct 2.30- 4.30. You can find info on the Support Group Site on the Myeloma UK web site or feel free to e-mail me on here. It is for patients, carers and family members. Hope to see any of you there. All the…[Read more]

]]> 281af410bc7ebd019b30d35587305d17 MichelleMcCartney replied to the topic Levels back up... :-( in the forum Treatment http://www.myeloma.org.uk/forums/topic/levels-back-up-#post-98059 Mon, 05 Sep 2011 19:11:17 +0100 Hi all..
Thank you again for the lovely words. We saw Phil's Consultant today. He doesn't think the Revlimid is working like it should. Doesn't think it is a "Blip" since the levels have gone up that much. Going to stay on the Revlimid for now and been referred back to Dr Cook @ Birmingham to hopefully start on the Bendemustine Trial. He was too…[Read more]

]]> fad4f469af67bcf5d61acf4926340436 MichelleMcCartney replied to the topic Levels back up... :-( in the forum Treatment http://www.myeloma.org.uk/forums/topic/levels-back-up-#post-98057 Sun, 04 Sep 2011 22:35:06 +0100 Hi. Just wanted to Thank everyone for the lovely words of wisdom. We are back at the Consultant in the morning so fingers crossed. I do try and stay positive I just hate getting knocked back 2 steps after going ahead 1.. Guess that's the name of the game though… Thank you again.. Will let you all know what happens at the Consultant. xx

]]> 658b84ff9c9d9deefacf7809ed8b5a5e MichelleMcCartney started the topic Levels back up... :-(. in the forum Treatment http://www.myeloma.org.uk/forums/topic/levels-back-up- Tue, 30 Aug 2011 18:21:24 +0100 Hi all,

Just needed some words of wisdom. My husband is 37 (diagnosed at 30). This year has been so tough and he has been quite ill. MM has kicked his ass this year to be honest. The Velcaid didn't work and he was too ill to get onto a trial so the Consultant had to go to his last resort of Revlimid. He is on his 4th or 5th cycle. The 1st lot…[Read more]

]]> ff190013259d5cce1378e69e6f021b5f MichelleMcCartney replied to the topic Struggling to Cope in the forum Carers http://www.myeloma.org.uk/forums/topic/struggling-to-cope1314353917/page/2/#post-106098 Tue, 30 Aug 2011 18:11:05 +0100 Hi,

I don't know if you ever "know" how to act. My husband is 37 and was diagnosed at 30. It was caught by accident and was fairly good the past few years. This year has been SO different! He has been quite ill and we've actually started talking about death. I try and do the good and the bad. I'll tell him how things will get better and they…[Read more]

]]> d648f8f0b0937ab418e6ecfb39d46169 MichelleMcCartney replied to the topic Welcome Paul in the forum Under 50s http://www.myeloma.org.uk/forums/topic/welcome-paul#post-106869 Tue, 30 Aug 2011 17:47:59 +0100 Hi Paul.
Welcome. I'm sure it was tough to hear your news. But the others are right this is a great place to get advice, support, friendship and vent. My husband is 37 and was diagnosed at 30. I have just started a Support Group in Burton because of how wonderful Myeloma UK has been. I wanted to give back some help. It does get easier after some…[Read more]

]]> ee734ef0239018afdbfe2d8c4d1ed00b MichelleMcCartney replied to the topic Bortezomib Consolidation Trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/bortezomib-consolidation-trial#post-96730 Tue, 30 Nov 2010 16:32:36 +0000 Hi. My husband has just started Velcaide. He had his SCT 5yrs ago and has been on Thalidamide. He almost had to do a trial at Birmingham Hosp but (Thank God) Sarah at Myeloma UK helped get funding for it at Burton. The trial would have been fine but it was 50/50 that he would get the back up drug that goes with it. So I would suggest to get ALL…[Read more]

]]>