tom replied to the topic Whoops! in the forum Treatment 10 years, 10 months ago
Hey Vicki how did you know I drunk Vodka lol, yes it would be rude to stop at the moment as i feel it has helped in my remission lol.
Tom Onwards and upwards xx
tom replied to the topic Advice needed in the forum Treatment 10 years, 10 months ago
Hi Trigger
Well I had a sct in 2009 yes it was a bit of an uphill struggle at times but for me it was a doable and you know your Mum better than most, most people differ in how and what they can and do achieve, My SCT gave me 4 year drug free and that I am grateful for .
I have decided to go down the SCT route again as I think as it worked once…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Maureen and Ian
Yes a good bottle of red should be on NHS Scrips lol,and I aint got any side effects to speak of cept the Dex and sleep (lack off) so am going to have my week three of Velcade in Morning plus me ten iccle Dex Mates lol, so nearly just over half way on my first four week cycle and doing good
Enjoy whats left of the week end…[Read more]
tom replied to the topic Whoops! in the forum Treatment 10 years, 10 months ago
Morning Andy and (The ever watchful) Steph
I bet its been a long week for you both ?
I hope the Anti B’s have worked for you and those lovely Neuts have got to a point where you can restart your treatment.
You can always get the beer in and invite those that aint Buggie lol.
Stay well my Friend and Steph stay on watch young Lady
Every Day is…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Now half my post is missing ???????
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Maureen and Ian
Pleased bloods are good it’s a step in the right direction, I hope it’s a nice bottle of red you are having
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Judy
Yes I do take them in morning about 5am but it still makes me lose a few days sleep to be fair and am sure I catch up on a Thursday lol
Liz and Kev
Yes I am still clocking on so far will continue until I just cant do it any-more ?
Have a great week end you all
Love Tom Onwards and upwards xxx
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi all
Well I gave had two lots of Velcade and two lots of steroids and doing well at the moment.
Just had the sleepless nites with the Dex then the fatigue at the end of the week so it’s all good.
Carol looks like your doing well with it good on you,
Mavis yes on for another SCT at the end of this treatment it’s what I said I would do to be…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Morning Harmony
Hey you have seen my post am not easily offended nor easily upset, a prayer or three is good I am getting them from all faiths to be fair I have brothers that are Catholics and Protestants and one that is a Mormon so I have all bases covered like us all we need more he he onwards and upwards is a great ending to the post like all…[Read more]
tom replied to the topic Whoops! in the forum Treatment 10 years, 10 months ago
Morning Andy
Yes as you know I stalk you on face book and at times on twitter (don’t use that one much) and I am pleased you are sorted this darn Mm keeps throwing unknown and unwanted infection at folk that have other things to be getting on with, those infections really should be having a word lol.
Stay well and yes everyday is that gift, we…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Double post again
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi all
Had my 2nd Velcade injection today and my Dex this morning, no bloods today but I got my bloods wrote down today so take a look and let me know what it means lol
20/01/14
HB 13.4
WBC 4.9
Plts 2.58
Neuts 2.58
27/01/14
Hb 12.5
WBC 4.2
Plts 237
Neuts 2.47
Now I ain’t sure if decimal point is in the correct place lol.
Tom onwards and upwards x
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Sarah
Yes you are my “posh” stalker lol. Ye I know I can do it it’s just giving me an iccle bit of a curve to be fair and we all need curves lol.
Love iccle ole me onwards and upwards xxx
Ps tell the Old Boy well done and no wrinkles or creases in the clothes lol xx
tom replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Jo and welcome back to the forum, it’s still playing up with me at times not posting half postin and blooming double posting, hope your ok Jo and it’s not too cold for you
Love Tom onwards and upwards xxxx
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Judy
Welcome and sorry to hear about your pain with Velcade but am pleased they soon sorted you out. Where are you now in your treatment Judy ??.
Maureen just to let you know am still on the vodka and red wine lol.
Liz Elaine is doing great ta and ye she has hawk eyes ha ha, but am pleased about that as am sure I would miss something out he…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Well double post and some missing
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Carol
Bragg away young lady that’s something that should be shouted from the rooftops and you have some spare I will need to do another harvest
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Carol
Bragg away young lady that’s something that should be shouted from the rooftops and you have some spare I will need to do another harvest
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Thanks you all.
Had first one done today and that consisted of Bloods taken, Zometa infusion,10 iccle Dex tabs, oh and one amaprasil (check spelling lol) and my Subcut Velcade, The Velcade will be given every week, the bloods every three weeks, the Dex and Amaprasil to be taken once a week. jobs a good un.
Chris when my cells were collected in…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Cheers Kevin
Its gonna roll well this new treatment,Happy Birthday to your Stem Cells, its great to be in remission and more so when they give you 6 months before you see Dr again.
Keep well Kevin
Tom onwards and upwardsx
Hi Tom
I’m good at the moment. Been on Revlamid as a maintenance drug for almost two years and feeling the best I’ve felt since this all started ten years ago. X