tom replied to the topic Zometa – is this available on NHS in the forum Treatment 13 years, 2 months ago
Hi Gill
I had Zometa for two years after my SCT then it stopped so I think two years was/is the norm and I have never paid for any treatment even before it became free for cancer sufferers. My Dr had a Nurse fetch my stuff up to the clinic and if i needed any thing else my Nurse Heln woulg go and fetch it 🙂
Hope its soon resolved
Love…[Read more]
tom replied to the topic 12 months since my stem cell transplant in the forum General 13 years, 2 months ago
Gosh Wendy now where has that 12 month gone??
Happy Birthday Stem Cells, you have a great host so behave 😎 Long may it last Wendy.
Love and Hugs to you and those iccle stem's
Love Tom "Onwards and Upwards" xx
tom replied to the topic Paraprotein news in the forum General 13 years, 2 months ago
Hi Andy
You are getting their slowly am afraid but getting their non the less 😀
Keep them going the correct way and Trust me you wont need a brollies as I am told you dont get wet inside a Pub??? well I do but it is the inside 😀
Have a great Time and relax with a pint or two.
Tom "Onwards and Upwards" x
tom replied to the topic Good News in the forum General 13 years, 2 months ago
Hi Eve
Well am pleased you will be in contact so you can sort me out if I get Nawtry Lol.
You two have a great time and I promise I will behave (fingers crosssed he he)
Catcha Lata
Iccle ole me xxxx
OutdoorsPaul replied to the topic 12 months since my stem cell transplant in the forum General 13 years, 2 months ago
Hi Wendy
Happy 1st Anniversary Immune system! enjoy the sunshine Wendy.
cheers paul
OutdoorsPaul replied to the topic Paraprotein news in the forum General 13 years, 2 months ago
Hi Andy
Stick with it mate because it has taken me 3 different sorts of treatment in 12 months to get me to and through the SCT.They will get you to a point where you are ready for SCT.
Enjoy the lakes and maybe a Guinness or two?
cheers paul
OutdoorsPaul replied to the topic Good News in the forum General 13 years, 2 months ago
Hi Eve & Slim
Fantastic news! I bet a large weight has been lifted from both your shoulders.I hope you both have a fantastic holiday:-) 🙂
cheers Paul
tom replied to the topic A BIG Hello in the forum Newcomers 13 years, 2 months ago
Hi Amanda and Bob
Welcome, I hope you get out of this site what I have over the years 😎
Let us know where Bob is being treated as am sure we will have some in here that are have been treated their and can give you more advice.
Ask away and hope your road through the MM is a smoth one.
Tom "Onwards and Upwards" xx
tom replied to the topic second Sct – funding in the forum Treatment 13 years, 2 months ago
Hi Mari and Steve
Well done on the collection 😀 but its a shame to hear that to help stay alive after the first fight you then have to fight for money? gosh I wish I could Spit on here Yes Spit as thats what I want to do, the money we throw across throw across the world for half of that money to end up in corrupt hands? oh Rant over :'-(…[Read more]
tom replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 2 months ago
Dear Gill and Stephen
Well you Know I am truly sorry it has come to this stage, and as sure as eggs are eggs My young bride (Elaine) and I will have to go through this 🙁 I just hope as and when it comes we both can face it with the strenth and dignity that you and Stephen have and are facing Head on.
I admire Stephen for his decision and…[Read more]
tom replied to the topic And the GOOD news is in the forum Off topic 13 years, 2 months ago
Your More than welcome David but I think I must be the rough cut one he he.
Good Luck with the scan and the heavy drinking sesh and am sure I have seen many a over 65's drinking and dancing way past when the young uns have gone to bed 😎
Stay Well and Vasbyte 😎
Tom "Onwards and Upwards"
tom replied to the topic Good News in the forum General 13 years, 2 months ago
Well done that Eve and Slim 😎 way to go folks, and Thanks for sharing that great news it is great to read good news as often as you can, yes we are sorry for those that have sadly passed away and our thoughts are with them.
Well done you two now get orf and Enjoy 😎
Lots of Love and Hugs
Tom and Elaine xxxxxx
OutdoorsPaul replied to the topic Stem cell transplant in the forum Carers 13 years, 2 months ago
Hi Cathy
I had my SCT 30 days ago so still very fresh in mind.Your husband is in isolation(a single room) which is hard,nursing staff will be in checking but also keeping contact to a minimum.Try to see this as a good thing as it will help to keep infections brought in to a minimum in my opinion.My appetite took a noise dive after the…[Read more]
OutdoorsPaul replied to the topic Radiotherapy in the forum Treatment 13 years, 2 months ago
Hi Gill
I had radiotherapy to neck/spine area when first diagnosed,this came up looking like bad sunburn.Nursing staff did fore worn me and gave me some cream for it.It went fairly quickly but has left me with a brownish patch on my throat area (looks like a permanent tan!).
take care paul
tom replied to the topic Teeth. in the forum Side-effects 13 years, 2 months ago
Morning Sandra the only problem I know about is when you are haveing Zometa and you cant have teeth taken out at dentist have to go to the hospital (think fillings are OK but always worth a check with dentist.
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Radiotherapy in the forum Treatment 13 years, 2 months ago
Morning you two 🙂
Well My young bride (Elaine ) had 25 sessions of RT and towards the end of it she started to burn so the Nurse gave her some cream for the burns its all good just ask for cream.
Have a great week end
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 2 months ago
Hi Vickie and Colin
Well in the nicest possible way I hope Colin gets some pain tomorrow not forgetting we all differ and some dont get the "Pain" for some reason or another.
As for the worry Vicki I worry about worrying about not worrying?? if that sounds sense lol, keep off the paint and try and relax
Love and Hugs
Tom "Onwards and…[Read more]
tom replied to the topic Feeling Useless in the forum Newcomers 13 years, 2 months ago
Hi Maxine
Thats not a problem at least your sister has got some one fighting her corner as am sure the whole family will rally round keep as much pressure off your sister and keep her calm.
Dont forget Ask away nothing is too daft for us to answer.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Positive News I Think!!! in the forum Treatment 13 years, 2 months ago
Hi Keith
I think it is Positive news, I hope the Dex is cut for you am sure that will make your life far better.
The lowest I got with the weight loss was 68 kilos and i was normaly 95 kilos, now back to the 92/95 yep i float from one to the other.
Good Luck Keith
Tom "Onwards and Upwards"
tom replied to the topic Diagnosed this week in the forum Newcomers 13 years, 2 months ago
Hi Ted
Well done that Man another three months doing good, keep it up and hope Xray is just put down to "Middle" Age 😉
Tom "Onwards and Upwards"