tom replied to the topic Tiny voice recorder on sale till Sunday 1 April in the forum General 13 years, 7 months ago
Hi Dai
Great Photo's, am sure i started one of those up years ago I now cant remember any names nor password that I might have used Lol (thick or what)
here is your link http://www.flickr.com/photos/43084913@N02/7034899025/in/set-72157629715206275
OutdoorsPaul replied to the topic Will anything work? in the forum Treatment 13 years, 7 months ago
Hi Andy
I asked my consultant about alcohol and she says 2 small glasses of red wine is allowed on a weekend.(or equivalent)
Personally i think your body will tell you whats right, and going out every so often is a good thing.
I am currently on valcade,Dex,Doxorubicin and on 1 week take all three and my sense taste goes completely out of…[Read more]
tom replied to the topic Will anything work? in the forum Treatment 13 years, 7 months ago
Hi Andy
Good Luck for this round and am sure Like Ali you will whup its Ass 🙂
As for the drink?? well you had to ask dint you lol. I drank all through My treatment didn't cut down was at it 6 nights a week and drunk a Litre bottle of Vodka per week (well I dint have to get up for work lol)
My Motto is get out and get some in you need…[Read more]
tom replied to the topic Just Made It in the forum Treatment 13 years, 7 months ago
Way to Go Slim, thats great news, I also done all mine in one day 🙂
And its about time they sorted the appoitments out to run all in one day, yes Eve its an early start and it will be a long day but worth it:-)
Keep Strong you two and hope it aint long now.
Love and (((hugs)))
Tom "Onwards and Upwards" xxxx
tom replied to the topic Another 3 months in the forum General 13 years, 7 months ago
Drum Roll :::::: A Well Done That Man 😎
Well Done David am pleased you have sailed through it, keep it up M8 and you can lay off that box for a bit aint no rush to finish it 😀
Tom "Onwards and Upwards" x
tom replied to the topic Will anything work? in the forum Treatment 13 years, 7 months ago
Hi Andy
Well you have some stubborn pp's aint you?
I hope you soon get the pesky things sorted asapget in and get that SCT underway, you know amsending you great vibes for it all to happen, hang in there Andy its an uphill struggle but you will do it:-)
Tom "Onwards and Upwards" x
OutdoorsPaul replied to the topic A traumatic start to my CDT! in the forum Treatment 13 years, 7 months ago
Hi Mavis
My consultant told me last week after my PET scan that my left ribs and sternum were were weaker(lesions).My consultant is great and she knows that I ride a mountain bike (when meds allow me!) which inst often enough.She now tells me "stay off the bike till after SCT"
All these things can come out of the blue abit and change…[Read more]
tom replied to the topic Another newbie in the forum Newcomers 13 years, 7 months ago
Hi Steph
A Warm Welcome to the group, am sure you know by now that this "Mob" will help you get out of any Low Ebb that the MM has and will cause you and Andy to have we tell them to keep chin up (chins in my case)
As you know we tell people carers and MM'ers to take it one day at a time.
Not forgetting to rant and rave on here if the…[Read more]
OutdoorsPaul replied to the topic Another newbie in the forum Newcomers 13 years, 7 months ago
Hello Steph and Andy
Glad you finding the site both informative and supportive,your right its a whole new ball game but there's lots of people on here who can give good advice.:-D
tom replied to the topic A traumatic start to my CDT! in the forum Treatment 13 years, 7 months ago
Now Mavis look what you have gone and done? I leave you for a few days and you go and throw yourself in the Hospital :-0.
But seriously I am so sory to hear that you have done a decline, but trust me Girl you are one that will throw that rope up high and drag yourself back up to top form (well mm top form) again.
You are in the correct place…[Read more]
tom replied to the topic finished my sct early, what now? in the forum General 13 years, 7 months ago
Hi Terry
I also have been sat at a window when the sun has been throwing itself and its heat straight at me an had a "Snugglr Blanket" "other brands are aslo available lol) wrapped around me. yes i have (and still do) used a thermal vest in cold days (works a treat) as i cant see any point of feeling cold when you can buy borrow or nick( please…[Read more]
tom replied to the topic My beautiful brother in the forum End of Life and Grief 13 years, 7 months ago
Jean
I am so pleased that the day went well and the service was what Derick would have wanted.
Take Care and am sending (((Hugs))))
Love and Hugs
Tom xxx
OutdoorsPaul replied to the topic New bird(ish) in the forum General 13 years, 7 months ago
Hi Kirsty
I was diagnosed last Aug at 39 and it was abit of a bomb shell as well,but the people on this site a great and always happy to support where can.I turned 40 in December and currently on valcade injections and awaiting stem cell transplant.You will come across medical jargon….if unsure just ask we are all on a learning…[Read more]
tom replied to the topic Mini Allo Update in the forum Treatment 13 years, 7 months ago
Hi Ian
Well done M8 am pleased that all is going well for you 🙂 and am sure the side effects will get better as time moves on.
I never (touching wood) never suffered with GVHD? and if i did then I didn't know about it 🙂 you do right keeping fit and away from the hospital, Long may it continue 🙂
Thanks for the Good News Ian it's…[Read more]
tom replied to the topic Relapse after 5 years in the forum Newcomers 13 years, 7 months ago
Hi Janet
Its a Bugger but I have had a cough and (forgive me) a lot of flem (uck) since i found out I had MM :-/ so it might be one of the symptom's when I think about it? anyways with my cough Elaine (the young bride) knows where I am in the shop lol.
Hope your soon better
Love and cough treatment
Tom "Onwards and Upwards" xxx
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 13 years, 7 months ago
Hi Dai
Janet sounds a very lovely Lady and that am not surprised nor shocked as am sure you are a true gentelman and would only marry a Lovely Lady 😀
We know how you and Janet feel about Kids (gran or own) and you know how Elaine (the young bride) and I feel about ours what with all the photo's i have posted on F/B 😀
Our three…[Read more]
tom replied to the topic New bird(ish) in the forum General 13 years, 7 months ago
Hi Kirsty
Like the others a warm welcome to this great site?
Sorry you had to join us but as away now you have opened the doors 🙂
As for your first one the advice i can give so far is take it slowly and one day at a time, lots of members here going and gone through what you are about to do.
I cant advice YOU what to do but I can…[Read more]
tom replied to the topic Will there be anything else? in the forum Treatment 13 years, 7 months ago
Lol Dai as am sure you know I am (or was) a hairy ass docker so am now up to speed on that Lol.
And same goes for you Dai if you feel with the help of your brother that you could do the trip then I for one (and you for two) would say go on lad get on with it, you will enjoy it, it might be better to hire a Cmper van as you could stop and sleep…[Read more]
OutdoorsPaul replied to the topic FUEL BILLS in the forum Off topic 13 years, 7 months ago
Thanks for the info Bridget,I will give that a shot.Hope you enjoying the lovely sunshine.Just for your info on the Benefits issues i managed to claim Employment support allowance so i have entered the system!!!thanks for the support.
Love outdoors Paul
PS Rachel and I off to Scotland next week to small Island called Cumbrae for 4…[Read more]
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 13 years, 7 months ago
Ditto to that Dai, and it looks like she is very active and keeping herslf busy.