Hi Helen
I to am a glass half full rather half empty person so positive stuff and we shall keep going.Thanks again for the info Helen much appreciated.Wow 3-6 months recovery time but like you say its an individualistic thing.Glad to hear that its gone well.
speak soon paul

Well I dont know why you were asked to keep it on:-S

Me I have to admit I HATE heights:-0 so love the way you are doing it 🙂
Posted the link on Face Book from your local paper 😎

Love
Tom "Onwards and Downwards" xx

Hi Nettie

And what a great article 😀 and you are better than a "Page Three" girl 😀

Good Luck and dont look down Tee hee 😎

Love
Tom "Onwards and (for you Nettie) Downwards" xxxx

Hi Helen
Thanks for the post I agree that my body will tell me and it does..I have taken the advice about resting and agree that works.I got a little snappy on one occasion about where the Pears soap had gone from the bath room! We laugh about it now and I can tell when a Dex moment is upon me.My personality is quite laid back if not…[Read more]

Well done Ivan, am sure the count is great:-D keep it low and keep getting remission8-)

Tom

Hi Bridget

Well am pleased it is working for you 😎 am sure the dex wont/cant be masking the pain:-/ so we will put it down to the RT you have had and long may the pain free continue 😎

Love and Hugs (((()))

Tom xxx

Oh Gill

I hope your "Ankle" is soon better 😀

Just noticed Stephen is 56 (ish) we are same age 😎

Love (One Shy) "Onwards and Upwards" Tom 😛

Hey Graham

I am in on the "Under 50's" and am 56 😀 yep 56 its a place I go to to use some words that you cant use on here 😀 if you know what I mean 🙂 never known anyone not accepted good bunch of cussers in their though so be warned lol 😛

Tom (never too old for the under 50's) "Onwards and Upwards"

Honest Helen I never (never) read this post (fingers crossed he he) xx

Hi Amelie

Sorry I cant help, but am sure if you phoned the Nurse am sure He/She would be able to help?.

Good Luck and am sure John will be Ok

Tom "Onwards and Upwards" x

Hi Bridget
Just looked at my discharge sheet and lightchain Bence jones protein is what they are monitoring.I continue to provide both blood and urine samples for my consultant.(The 5 ltr urine container always seems intimidating!)Seen the consultant yesterday and now on cycle 2 from today(4 days of Dex to start with),I find out in…[Read more]

Hi Gill
Exercise does seem to help me, though it can be mentally challenging to get going.I.E I try to walk about 2 miles a day (currently off work) on the canal,it might take 5 mins for my legs to get going as such,But once moving things feel better.I have quite good muscle depth in my legs so i know my legs can do it..but i know when to…[Read more]

Hi Eve
Went to see the consultant yesterday (only 2nd apt)She seems happy with me at this stage.My October apt will tell me how I am reacting to the medication.Thanks for the "heads up" on the Dex which can mask infections/low blood pressure,i did ask my consultant that question and she did indeed say yes it does…So "thank you" for the…[Read more]

Hello Dai
Just read Bilbo's song….wow made me cry straight away,such a descriptive song and so lovely.Thanks for sharing that.
cheers Paul

Hi Wendy

Well done on your SCT, and it sounds as if you sailed through it:-D , only in 15 days you beat me by one day 😎 and to be fair mine was an all out attack of bowels and mouth:-/ 5 of those 16 days was nearly comatose :-/ but hey ho am better now 😀 .

Still get tired but am learning that what I used to do prior to MM I cant do post…[Read more]

Hi Graham
Sorry you had to join us, but you have joined a great band of folk that throws Humor and commonsense into the threads 😀

Hope your count soon picks up and you get a great harvest.

Tom "Onwards and Upwards" 🙂

Hello Dai
Many thanks for the reply,since the posting I found out it was Bence jones and looked on the sites info leaflets which helped alot.
3-4 of my ribs have been weakened as have 1 vertebrae and the consultant put me down as in the "early stage" .So having Bisphosphate infusions once a month when visiting consultant.
I was…[Read more]

Well Nettie

You have more oo than I lol, Mad? No I dont think you are Brave? Yes I think thats the one 🙂

Good Luck.

Love

"Tom Onwards (and just for this thread) and downwards" xxx

Hi Helen

Its only some time that it still leaves a "Pencil Tash" other time its Normal.

And Yes I had a sore mouth but was nearly all cleared up about two weeks a month after SCT:-( which in itself wasn't that good but was still off my food and that helped.

as for the hair loss all I had left was my Eyelashes and that was it :-0…[Read more]

Your More than welcome Alexis, and you can Tell John I also am too shy :-0 to post (aint i fellow members )
And when you get to the "who the heck are you" just nip in and let me know who i am lol.

Tom "Onwards and Upwardfs" xxx