tom replied to the topic Information Please in the forum General 14 years, 2 months ago
Tom walks away blushing, but am sure you could, but i aint letting you xxx
OutdoorsPaul replied to the topic Related Conditions. in the forum Related conditions 14 years, 2 months ago
Hi Ellen
I have just been diagnosed with Lightchains Myeloma and I am 50% through my first cycle on Myeloma 11 trial RCD pathway.Is there any info out there on Lightchains,my consultant says its in the "early stage" I am 39 and male quite physically fit..except for the Myeloma!
thanks Paul
tom replied to the topic Information Please in the forum General 14 years, 2 months ago
Hi Eve
And that I am 😀 not only at the hospital but at home in the club I drink in at work 😎 but to be honest I had all the later well looked after before I became an MM statistic :-P.
You and Slim seem to have had busy days 🙁 and he is correct they will phone him if bloods are dodgy 😉
As for the Smile its just looks like am…[Read more]
tom replied to the topic Peter in the forum General 14 years, 2 months ago
Min
Just to let you Know We will be thinking of you and your Family, May God Look after you and your Family to keep you strong.
Love
Tom and Elaine xx
tom replied to the topic Information Please in the forum General 14 years, 2 months ago
Bridget Priceless is Ok for me he he, but the Dr and I have a great relationship so far I can get to see him faster than I can my own GP :-S
He came back to the hospital to take my femoral line out so I could go home, phoned me up at 7.30 at nite as i had a problem, told me to go to the hospital and he would get the Nurse to take some bloods,if…[Read more]
tom replied to the topic Information Please in the forum General 14 years, 2 months ago
Hi Jean
Yes he was smiling, but I recall I once went into his room after being called by the nurse and he was sat with his head in his hands and "No smile" I just walked out of the room and the Nurse said whats the matter Tom are you Ok? I said I aint going in there he aint smiling:-0 and with that I added Ok al give him another go, when I…[Read more]
tom replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 2 months ago
Gill Me Nwaty :-0 well all I can say is Thanks 🙂 and that I am 😀
This Game is too sharp for my little brain Lol xxx
As for the Nawty Long may it continue 😎
Love One Cussing Teacher 😀 xx
OutdoorsPaul replied to the topic Welcome Paul in the forum Under 50s 14 years, 2 months ago
Thanks Gill for the posting,its early days but fingers and toes crossed!!:-D
tom replied to the topic Levels back up… 🙁 in the forum Treatment 14 years, 2 months ago
Hi Chelle
I hope Phil stays healthy to get on the trial, and its a shame that the other's didn't work 🙁
Once again Good Luck with the support group8-)
Love
Tom "Onwards and Upwards" xx
tom replied to the topic A wonderful event in the forum General 14 years, 2 months ago
Well Good Luck for the next one Amelie, am sure it will be a success like the last one (more so with Bridget and I on the team ha ha) 😎
Now do I hold? Or Bang??:-S
Tom xx
tom replied to the topic Information Please in the forum General 14 years, 2 months ago
Hi Jean
Well I dont feel so bad now:-D I was told Jan 2009 that I have MM but (am sure he told me) dont know what type:-S as for my results? well [u][b]I have been of the opinion [/b][/u]that if Dr is smiling when I go into the room Am Happy 😎
But thinking what Eve says, I think I should take more notice of what I have:-/ am sure I at…[Read more]
tom replied to the topic Peter in the forum General 14 years, 2 months ago
Min
Still thinking of you and yours but will say more prayers for you all on Wednesday.
Am sure it will be a great day to remember the good times you and Peter had.
Lots of Love and Hugs
Tom xxx
tom replied to the topic Queen's Hospital Burton Suport Group in the forum General 14 years, 2 months ago
Good Luck Chelle, hope it runs well 🙂 keep us posted on how it goes.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic New to the forum in the forum Newcomers 14 years, 2 months ago
Hi David, do you think it might be time to start up again he he, mind you this lot will be a spray job :-S
Tom
OutdoorsPaul started the topic Outdoors Paul Lightchains is the word!. in the forum Under 50s 14 years, 2 months ago
Hello all
Found out a little more about my Myeloma today its called Lightchains…does anyone have any pointers to a good resource for me to check out(does it have another name?) .Currently on Myeloma 11 trial RCD pathway and half way through my first cycle.Side effects OK can not complain.Listening to my body and being active striking…[Read more]
OutdoorsPaul replied to the topic Welcome Paul in the forum Under 50s 14 years, 2 months ago
Hi Mavis
Thank you for the lovely welcome to the site I attended my first consultants apt today and found out that I am a Lightchains Myeloma person…
So my consultant has told me that i dont produce para proteins its a different form.So sorry cant help on that one,completely agree about reading up on things and this web site is great…[Read more]
OutdoorsPaul replied to the topic Welcome Paul in the forum Under 50s 14 years, 2 months ago
Hi Debs
Many thanks for the advice,just been to have my first consultant check since being discharged 13 days ago.I have Lychains Myeloma so now have a name to it!(As I am a walker I have Named It "Beinn Myeloma" my next mountain to climb!)
I am half way through my first cycle and finished taking a 4 day dose of Dexy.Side effects have…[Read more]
tom replied to the topic New to the forum in the forum Newcomers 14 years, 2 months ago
Hi Ted
Do you know I always thought it would be some form of what they call "Recreational" drugs that would be a possible cure 🙂 I can just picture us at our hospital visits all Spaced out he he.
Here is one Paper article about it…[Read more]
tom replied to the topic Dad just diagnosed with MM in the forum Newcomers 14 years, 2 months ago
Morning Sally (gosh i hope you dont read this post at night:-D )
Am pleased your Dad is feeling better and you and yours are now also feeling the same 😎
As for the Transplant I know a Lady who has had MM for nearly 10 years and not had a Transplant due to other complications and is doing Ok 😀
And Eve is correct with the "Dex" when I…[Read more]
tom replied to the topic New to the forum in the forum Newcomers 14 years, 2 months ago
Hi Ted
Yep Kids are great we have three sons and five grandkids would I swop them ???? NO we have had a bit of bother with our middle son years ago:-S but am pleased to say he is doing great now and gave his mom and i two handsome grandsons 😀
So like you I find our kids and grandkids are great also.
Hope today finds you well Ted 8-)…[Read more]