[ChelleMcParticipant]

Hi Paul.
Welcome. I'm sure it was tough to hear your news. But the others are right this is a great place to get advice, support, friendship and vent. My husband is 37 and was diagnosed at 30. I have just started a Support Group in Burton because of how wonderful Myeloma UK has been. I wanted to give back some help. It does get easier after some time. Coming from a wife's point of view… Don't be afraid to lean on her! It is very hard to see the person who is your world feel like he has to carry the burden. And try to be understanding if she Detol's the house and won't let you do too much..lol If you or your wife need a chat feel free to contact me.
burtonmyelomaSG@yahoo.co.uk
All the best of luck. Chin up & stay positive… xxxx

[ChelleMcParticipant]

Hi. My husband has just started Velcaide. He had his SCT 5yrs ago and has been on Thalidamide. He almost had to do a trial at Birmingham Hosp but (Thank God) Sarah at Myeloma UK helped get funding for it at Burton. The trial would have been fine but it was 50/50 that he would get the back up drug that goes with it. So I would suggest to get ALL the information you can about the trial. What drugs are involved, what they hope to achieve from it, the treatment that would be ideal for you at this time and the advantages/ disadvantages to having another treatment now. If you have a drug now "just to see if it will help" you will void getting it if/ when you need it in the future. That's a treatment that could be wasted… Think LONG & HARD about doing anything and everything. The NHS & PCTs can be miserable to deal with when it comes to treatments for MM. We have been trying to get the Velcaide for a year… Unfortunately patients are only a number and price tag to those people…

Best of Luck!!
Chelle
xx

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