[ChrisBParticipant]

I am so sorry to hear that the treatment only last 5 months for your husband, Min. It is such a radical procedure to have done and then find it only lasted 5 months…..you both must have been devastated. How is he now? And, how are you? All this responsibility on you to get the diet right must be exhausting – as you say, salt is in absolutely everything.
Do you work, or are you able to devote all your time to your husband?
Chris X

[ChrisBParticipant]

Hi Min
thanks for your reply. Did you buy the salts at a chemist? When I asked about re-hydrating my husband, I was just told that he didnt need anything – his body would make it up through diet etc….which of course I thought was absolute tosh – I went to a health shop and bought some coconut palm juice I think it was, and it was just horrid, so he wouldnt drink it. He too had been on high doses of furesomide due to fluuid retention – one night both he legs were swollen up to the thigh. We have cut it down now to 20 mg and hope to be down to 10 shortly. Has your husband had a stem cell transplant?

Chris x

[ChrisBParticipant]

Hey everyone – thanks for your replies. It is really horrendous, isnt it? And of course, our homes end up looking like Widow Twankys laundry!!!! Its strange as he has finished the CDT and has responded well to the treatment and is no longer on it, but is still having the sweats and his kidney function is fine, so maybe now they will diminish with time. I had to laugh Derek at your comments about long johns, as that is exactly what my husband is wearing – very chic! But if it helps, what the heck. And Derek, yes, the duvet throwing is down to a fine art now. I bought him a small table top fan, which has been a brilliant buy, as he puts it on as soon as he feels one coming and sometimes it will stop almost immediately.
Min – What sachets was your husband taking, as no-one has offered us anything, even though I did ask about replacing natural salts? So glad he has hot feet now!

My husband has recently had a metal pin put in his upper arm, as the Myeloma caused a large hole in it…he also has Myeloma in his ribs, and back, but we are hoping that they find him fit enough to have the SCT. Has anyone had a transplant and were you at the time and how much better are you now?

Kindest regards
ChrisB 🙂

[ChrisBParticipant]

Hi guys, I am new on this site today and have been reading some of your comments and I must say that you sound a lively lot!! I care for my husband who was diagnosed with MM in September, after 9 months of really bad pain which he was told was due to wear and tear and inflammation…… anyway, he gets extremely cold feet and tingling in his hands, which is supposed to be down to the Thalidomide he was on – his treatment consisted of Thalidomide, Dexamethasone and Cylophosphamide, which he started in October. He has responded really well and just after 3 and a half months of treatment is being considered for SCT. However, he has been and still is suffering from the most horrendous sweats – sometimes 4 times a day and sometimes as much as every hour or two..they are completely debilitating, as they soak right through his clothes and he has to change. After the sweat, he gets very cold. There is no temperature. First they put it down to the MM, but now that it is being controlled, they think it was a reaction to the MST he was taking, so they changed him over to Dxycodone Hydrochloride but still they continued. Has anyone else suffered from this type of sweating, or maybe know someone that has?

Best wishes
Chris B 🙂

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