Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Hi Tom, his temp is up and down like a yoyo. They are keeping a close eye on things, taking samples for cultures from his arm and his line – and keeping him well topped up with antibiotics.
He's hungry but can't keep hardly anything down. He had vegtable curry for dinner and really enjoyed it, then brought it all back up.
Neither of us are…[Read more]
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Ta 🙂 🙂
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Thanks 🙂 🙂
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Page is playing up (multiple entries, can't edit or delete), 😀 Anyway, thanks to everyone.
His temperature has come down and he's grabbing a bit of kip now.
luv from us both xx
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Hi Jo, yes he's missing his guitar BIG time. Skype is a wonderful thing – last night our frinds at the pub gave us a live show. Bruce joined in with the singing and it gave hime a much needed boost.
After dialysis yesterday they moved him from the isolation side room to the 'tank'. One wall is a giant 'fan' – another is glass.
He had a bit…[Read more]
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Thanks from both of us.
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Hi Dai, they are keeping a close eye on his fluids because of the dialysis side of things.
He says he doesn't feel too bad just yet, he's been quite sick a couple of times (they've upped the anti sickness pills)….and he has the dreaded poo's, but again not too bad just yet. Think dialysis will be interesting because he can't just run to the…[Read more]
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Thank you from both of us.:-) 🙂
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Hi Bridget, he started being sick last night about 1 o'clock. He ate his breakfast – then threw that up. Guess this is the bumpy bit. Dialysis tomorrow should be interesting, but at least he'll be in a side room.
I'm staying in a B&B about 10 mins away from the hospital – it's a 2 hour drive each way from home. I'm at the hospital pretty well…[Read more]
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Thanks Gina 🙂
Clucky replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 5 months ago
Thanks, he was as fit as he could be when he was admitted, – lots of tests at the hospital and he played his part by eating as well as he could, getting a bit of exercise and getting out in the fresh air as much as possible.
luv
Mal & Bruce
Clucky started the topic Stem cell transplant with kidney failure underway.. in the forum Treatment 13 years, 5 months ago
Just thought I'd keep everyone in the picture – Bruce was admitted to Derriford hospital last Sunday. He had dialysis on Monday, then melphalan on Tuesday (because of the renal failure, they gave him a half dose and no extra fluid – working on the theory that this would work the same as a full dose with 6 litres of fluid). He made the most of his…[Read more]
Clucky replied to the topic Who the heck are you. in the forum Off topic 13 years, 7 months ago
Hi, my name's Mal – my husband Bruce has MM. He's 63 years old. Last October, our GP was treating Bruce for indigestion, 4 weeks later he had a blood test which revealed his kidneys had failed – he was admitted to Royal Cornwall Hospital straight away. They started dialysising him and started doing loads of tests. About a couple of weeks later we…[Read more]
Clucky replied to the topic 'I want to see the bright lights tonight' (song) in the forum Off topic 13 years, 7 months ago
Hi Eliz, we did 6 busks as Longdogs & friends for Myeloma UK, most of our other videos on YouTube are 'slide show' with a rough recording of us added.
One of our friends videoed us on her camera for about 10 minutes. It was mostly snippets of songs. I've uploaded another of them, (C'est la vie/ You never can tell)…[Read more]
Clucky replied to the topic 'I want to see the bright lights tonight' (song) in the forum Off topic 13 years, 7 months ago
There's a spare tambourine up for grabs if you're ever in Cornwall. 😀
Cheers Mal & Bruce.
Clucky replied to the topic 'I want to see the bright lights tonight' (song) in the forum Off topic 13 years, 7 months ago
Thanks 🙂
Clucky started the topic 'I want to see the bright lights tonight' (song). in the forum Off topic 13 years, 7 months ago
Us and our friends busking at Tesco's (Wadebridge, Cornwall).
http://www.youtube.com/watch?v=Q65AoXZ8m2I
Cheers
Mal & Bruce
Clucky replied to the topic Kidney Failure in the forum Related conditions 13 years, 8 months ago
Hiya, my husband Bruce, has myeloma and kidney failure (he has dialysis 3 times a week).
He has to be careful about his fluid intake because of 'hidden fluids'. Dialysis removes excess fluid as well as cleaning the kidneys. He has to watch what he's eating as well as how much he drinks. Jelly, icecream, salad, custard, soups, stews all contain…[Read more]
Clucky replied to the topic cornwall in the forum Off topic 13 years, 9 months ago
No, you didn't miss it, my fault – think I hit a wrong button 🙂 Doh! I was trying to let Kathleen know we're in Cornwall. We go out to play about twice a week. Music has always been a big part of Bruce's life.
Cheers
Mal & Bruce
Clucky replied to the topic cornwall in the forum Off topic 13 years, 9 months ago
Hi, we're near Padstow. My husband was diagnosed with myeloma last November. He has dialysis 3 times a week.
We play at pubs with friends for fun, usually just an acoustic set-up. Over the next few weeks we're fund raising for Myeloma UK. This YouTube link shows the dates
http://www.youtube.com/watch?v=iizVCQeDAno
Cheers
Mal & Bruce.…[Read more]