Myeloma Forum | Mal & BruceBruton | Activity https://forum.myeloma.org.uk/members/Clucky/activity/ Activity feed for Mal & BruceBruton. Thu, 23 Apr 2026 23:17:46 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 3d7d5cb94ffb969cd1cad5fb7d24ccaa Mal & BruceBruton replied to the topic Three little words...... in the forum General http://www.myeloma.org.uk/forums/topic/three-little-words#post-94458 Thu, 21 Feb 2013 12:22:23 +0000 Hi Vicki and Colin,

Brilliant news 🙂 🙂

luv
Clucky
(Mal & Bruce)xx

]]> 0916b065f5ed12bb068abe0334d3833c Mal & BruceBruton replied to the topic MM/LPL and Kidney Failure. in the forum Related conditions http://www.myeloma.org.uk/forums/topic/mmlpl-and-kidney-failure/page/2/#post-105684 Sun, 17 Feb 2013 09:54:12 +0000 Noticed your profile says your Dad started dialysis Jan 2013, how are things going?

luv
Clucky
(Mal & Bruce) xx

]]> 85a66181b8fba52be978a430668ee707 Mal & BruceBruton replied to the topic Myeloma and home haemodialysis update. in the forum General http://www.myeloma.org.uk/forums/topic/myeloma-and-home-haemodialysis-update#post-94354 Sat, 16 Feb 2013 10:19:59 +0000 Hi Tom,

Thanks, we are pleased we can manage at home. We can please ourselves when Bruce dialyses, but ideally they like us to do it while someone is at the renal unit at the hospital (between 7am and 9pm, Monday to Saturday). The NHS would like to get more people dialysing at home, it's cheaper!

He still has to see the haemo doc every 3…[Read more]

]]> 4b51ca26154080232b18d6edd9eb4731 Mal & BruceBruton started the topic Myeloma and home haemodialysis update.. in the forum General http://www.myeloma.org.uk/forums/topic/myeloma-and-home-haemodialysis-update Fri, 15 Feb 2013 13:44:04 +0000 Just thought we'd let everyone know how we are doing.

Bruce had his stem cell transplant Oct 2011 (thanks again for all the support we received from friends on the forum). He was told he was in remission (or plateau) Jan 2012. The myeloma has spoilt his kidneys and he continues to have dialysis.

Just after the remission news, I picked up a…[Read more]

]]> cc9d274a1f8ec8b4c9af78ab16b99083 Mal & BruceBruton replied to the topic MM/LPL and Kidney Failure. in the forum Related conditions http://www.myeloma.org.uk/forums/topic/mmlpl-and-kidney-failure/page/2/#post-105683 Mon, 11 Feb 2013 19:45:41 +0000 Hi Dee, we haven't checked the site out in ages – sorry. How is your Dad?

Bruce was 63 when he was diagnosed with Myeloma – he went into hospital as an emergency (Oct 2010),(kidneys were failing, but we didn't know that at the time). They put a line, first into his groin, then into his neck for dialysis. He had 8 cycles of chemo (thalidomide &…[Read more]

]]> 773ede33fc61ec6bb3e7bc62592bd904 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/4/#post-98372 Mon, 13 Feb 2012 15:44:54 +0000 Ta, big day tomorrow.

luv
Mal & Bruce

]]> 7a84008d42f58069178a7d07f28aec90 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/4/#post-98369 Wed, 08 Feb 2012 13:24:47 +0000 Had a phone call last night and it's all systems go – we start our training next Tuesday (14th) – no jokes please 🙂

xx

PS It's Bruce's birthday today – he's 64 years old 🙂

]]> 3bdc625bfec01bd19a940090329dfb72 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/4/#post-98370 Wed, 08 Feb 2012 13:22:15 +0000 Ta, Bruce is really pleased but I'm a bit nervous because I'll be doing the needling (Bruce still has tingling hands (and feet) from the thalidomide).

xx

]]> b526aa21d49575993ac1ace34297d7ae Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/4/#post-98366 Mon, 06 Feb 2012 22:35:32 +0000 Thanks 🙂 🙂

xx

]]> 602aa0512ce77d3921dbfa00e31b20a6 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/4/#post-98364 Mon, 06 Feb 2012 18:53:34 +0000 Hi all, I've been meaning to bring this up to date for some time now, but don't seem to have had the time.

Bruce had his 'line' removed just after Christmas – his fistula (new plumbing for kidneys is working well).

Then he had a bone marrow biopsy to see how well the stem cell transplant had worked (his third since being diagnosed). We had…[Read more]

]]> eee26cf8cea04b6d8334a099c4a78c93 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/3/#post-98360 Tue, 01 Nov 2011 18:00:39 +0000 Hi Shirls (like Jo said, hope you pick up soon).

(((Hugs))) from us too.

(Sorry if this appears twice, posted one and it's wandered off).

]]> befeea4f721ef7d9b867665b48864ff5 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/3/#post-98362 Tue, 01 Nov 2011 17:53:48 +0000 Hi Jo, Bruce saw his own haemo doc on Monday. She said his bloods and neutrophils were good (coming up nicely), but she told him to take it easy and stay away from crowds for a while.

He feels quite well in himself apart from still having the poo's, an achey shoulder and not sleeping very well. Today his GP gave him something a bit stronger…[Read more]

]]> 4943d5f509f56b413b25fa113eb26602 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/3/#post-98357 Fri, 28 Oct 2011 18:21:21 +0100 Thank you 🙂 🙂

]]> e6053c90afc944ee2cf09231583f7df4 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/3/#post-98355 Thu, 27 Oct 2011 12:04:02 +0100 Hi Gill, we had a good chuckle over your post. We've taken your advice and I've shaved his head. Yes the bits are prickly and this morning the pillow cases were covered with more hair than you can imagine, because he didn't have a lot to start with anyway 😀 😀 He's ditched the designer stubble but left a tiny trace of moustache, because he's…[Read more]

]]> 7168328780136eac85a4d662d41b170d Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/3/#post-98353 Wed, 26 Oct 2011 23:42:01 +0100 Hi Bridget & Shirls & everyone else, we went down to dialysis before 9 o'clock and got back to Birch Ward as the doctors were doing their rounds. The doctor said Bruce's levels had all come up to the point where he didn't need to be in protective isolation – and then said he could go home either today or tomorrow depending on how quickly they…[Read more]

]]> 3ebda1af456e985486b5d48318061106 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/3/#post-98350 Tue, 25 Oct 2011 11:10:10 +0100 Hi Shirls and everyone else, yes the Birch Ward team are fantastic. We've just had some good news. We've missed the doctors rounds a couple of times because of going down to Mayflower for dialysis – but today we found out Bruce's neutrophils were 0.3 on Sunday (they were zero last Saturday)…..and today they are 0.9! 😀 😀

He's still got…[Read more]

]]> 2d98176903c210cb25f58ca0af0510fb Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98336 Sun, 23 Oct 2011 18:09:47 +0100 Hi Eve & Slim,
We are desperate to get out of here and play our guitars and have half a cold cider each. We miss our cats. We've been in here 2 weeks now and it feels like 2 years. Can't wait to sleep in our own bed. Think I'm rambling 😀

luv
Mal & Bruce

]]> a07f94e8d686856943a56518156dc42b Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98338 Sun, 23 Oct 2011 17:55:33 +0100 Cottage pie and croissant today – so far, so good.

luv
Mal & Bruce (he says he might try a bit of toast later).

]]> 1cbe1027e99b73ae9933372793ba2d5e Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/3/#post-98348 Sun, 23 Oct 2011 17:53:33 +0100 Hi Dai, neutrophils were zero yesterday, don't know what they are today, think the blood results for everyone were late coming in.

He's kept his dinner down today (a bit of cottage pie and a croissant – it was what he fancied 😀 ).

luv
Mal & Bruce

]]> 6ba5ccc37910d99958f8f0969a7c4188 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98333 Sat, 22 Oct 2011 13:38:16 +0100 Hi Jo, he's feeling a bit better this morning. He's just had a 'build up' soup and a yogurt, hopefully this is the day he'll keep them down.

luv Mal & Bruce

]]> 0e15799115000adbd0ad1a77216f6126 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway#post-98331 Fri, 21 Oct 2011 20:23:33 +0100 Hi Tom, his temp is up and down like a yoyo. They are keeping a close eye on things, taking samples for cultures from his arm and his line – and keeping him well topped up with antibiotics.

He's hungry but can't keep hardly anything down. He had vegtable curry for dinner and really enjoyed it, then brought it all back up.

Neither of us are…[Read more]

]]> 456fe670275ce0e285f5f55d7c1d7530 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98343 Fri, 21 Oct 2011 20:13:40 +0100 Ta 🙂 🙂

]]> 04b8ee7e53ef0e59936beddf4f7591d9 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98342 Thu, 20 Oct 2011 11:15:17 +0100 Thanks 🙂 🙂

]]> b6c20ebca849852a762bfd4378b8d167 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98345 Thu, 20 Oct 2011 08:54:04 +0100 Page is playing up (multiple entries, can't edit or delete), 😀 Anyway, thanks to everyone.

His temperature has come down and he's grabbing a bit of kip now.

luv from us both xx

]]> 59f65e78ce4f9938494eb4d4c075ccbf Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98344 Thu, 20 Oct 2011 08:53:31 +0100 Hi Jo, yes he's missing his guitar BIG time. Skype is a wonderful thing – last night our frinds at the pub gave us a live show. Bruce joined in with the singing and it gave hime a much needed boost.

After dialysis yesterday they moved him from the isolation side room to the 'tank'. One wall is a giant 'fan' – another is glass.

He had a bit…[Read more]

]]> 0bca508c0918dd569c84b069e7ef4100 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway/page/2/#post-98347 Mon, 17 Oct 2011 08:16:55 +0100 Thanks from both of us.

]]> dce6d9ec230981beb0b5544fa9af8929 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway#post-98328 Sun, 16 Oct 2011 16:32:52 +0100 Hi Dai, they are keeping a close eye on his fluids because of the dialysis side of things.

He says he doesn't feel too bad just yet, he's been quite sick a couple of times (they've upped the anti sickness pills)….and he has the dreaded poo's, but again not too bad just yet. Think dialysis will be interesting because he can't just run to the…[Read more]

]]> e3b4fb5fbfb50558b2eeb827f7e2c93b Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway#post-98324 Sun, 16 Oct 2011 15:25:13 +0100 Thank you from both of us.:-) 🙂

]]> e75697082849b04ac50a8fe61e073963 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway#post-98326 Sun, 16 Oct 2011 10:04:11 +0100 Hi Bridget, he started being sick last night about 1 o'clock. He ate his breakfast – then threw that up. Guess this is the bumpy bit. Dialysis tomorrow should be interesting, but at least he'll be in a side room.

I'm staying in a B&B about 10 mins away from the hospital – it's a 2 hour drive each way from home. I'm at the hospital pretty well…[Read more]

]]> 659be8b91a533e27d6c0626170346a12 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway#post-98322 Sun, 16 Oct 2011 09:55:47 +0100 Thanks Gina 🙂

]]> 3865acd093cd050b67a6bd596570cde4 Mal & BruceBruton replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway#post-98320 Sat, 15 Oct 2011 16:22:48 +0100 Thanks, he was as fit as he could be when he was admitted, – lots of tests at the hospital and he played his part by eating as well as he could, getting a bit of exercise and getting out in the fresh air as much as possible.

luv
Mal & Bruce

]]> d41f6f3d93388ab1d2e63bf1cf512033 Mal & BruceBruton started the topic Stem cell transplant with kidney failure underway.. in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-with-kidney-failure-underway Sat, 15 Oct 2011 16:08:32 +0100 Just thought I'd keep everyone in the picture – Bruce was admitted to Derriford hospital last Sunday. He had dialysis on Monday, then melphalan on Tuesday (because of the renal failure, they gave him a half dose and no extra fluid – working on the theory that this would work the same as a full dose with 6 litres of fluid). He made the most of his…[Read more]

]]> eb010964a3fae9d49ca5b4dc2f0e08ce Mal & BruceBruton replied to the topic Who the heck are you. in the forum Off topic http://www.myeloma.org.uk/forums/topic/who-the-heck-are-you/page/2/#post-108851 Wed, 31 Aug 2011 20:02:27 +0100 Hi, my name's Mal – my husband Bruce has MM. He's 63 years old. Last October, our GP was treating Bruce for indigestion, 4 weeks later he had a blood test which revealed his kidneys had failed – he was admitted to Royal Cornwall Hospital straight away. They started dialysising him and started doing loads of tests. About a couple of weeks later we…[Read more]

]]> 1a2e59836f9152be6f39fe49ed1dcf76 Mal & BruceBruton replied to the topic 'I want to see the bright lights tonight' (song) in the forum Off topic http://www.myeloma.org.uk/forums/topic/i-want-to-see-the-bright-lights-tonight-song#post-109504 Wed, 17 Aug 2011 17:06:37 +0100 Hi Eliz, we did 6 busks as Longdogs & friends for Myeloma UK, most of our other videos on YouTube are 'slide show' with a rough recording of us added.

One of our friends videoed us on her camera for about 10 minutes. It was mostly snippets of songs. I've uploaded another of them, (C'est la vie/ You never can tell)…[Read more]

]]> 9ff091a6daf7d5365ff0f7c60ae2c882 Mal & BruceBruton replied to the topic 'I want to see the bright lights tonight' (song) in the forum Off topic http://www.myeloma.org.uk/forums/topic/i-want-to-see-the-bright-lights-tonight-song#post-109501 Sat, 13 Aug 2011 15:54:38 +0100 There's a spare tambourine up for grabs if you're ever in Cornwall. 😀

Cheers Mal & Bruce.

]]> 7837efe677f2c893462083f8e7f6a297 Mal & BruceBruton replied to the topic 'I want to see the bright lights tonight' (song) in the forum Off topic http://www.myeloma.org.uk/forums/topic/i-want-to-see-the-bright-lights-tonight-song#post-109499 Fri, 12 Aug 2011 23:44:28 +0100 Thanks 🙂

]]> e6b7a5f52ea78385e50277a09d9d2890 Mal & BruceBruton started the topic 'I want to see the bright lights tonight' (song). in the forum Off topic http://www.myeloma.org.uk/forums/topic/i-want-to-see-the-bright-lights-tonight-song Fri, 12 Aug 2011 20:11:21 +0100 Us and our friends busking at Tesco's (Wadebridge, Cornwall).

http://www.youtube.com/watch?v=Q65AoXZ8m2I

Cheers
Mal & Bruce

]]> b65090940ba24417c6cf29daf1893449 Mal & BruceBruton replied to the topic Kidney Failure in the forum Related conditions http://www.myeloma.org.uk/forums/topic/kidney-failure#post-105536 Sun, 07 Aug 2011 10:39:30 +0100 Hiya, my husband Bruce, has myeloma and kidney failure (he has dialysis 3 times a week).

He has to be careful about his fluid intake because of 'hidden fluids'. Dialysis removes excess fluid as well as cleaning the kidneys. He has to watch what he's eating as well as how much he drinks. Jelly, icecream, salad, custard, soups, stews all contain…[Read more]

]]> 3c50f39e18cd2998bf4904624667caaf Mal & BruceBruton replied to the topic cornwall in the forum Off topic http://www.myeloma.org.uk/forums/topic/cornwall#post-109244 Fri, 24 Jun 2011 16:42:26 +0100 No, you didn't miss it, my fault – think I hit a wrong button 🙂 Doh! I was trying to let Kathleen know we're in Cornwall. We go out to play about twice a week. Music has always been a big part of Bruce's life.

Cheers
Mal & Bruce

]]> f6a4dc9df3bbae4d948d08b0d2c7ac24 Mal & BruceBruton replied to the topic cornwall in the forum Off topic http://www.myeloma.org.uk/forums/topic/cornwall#post-109242 Fri, 24 Jun 2011 15:10:34 +0100 Hi, we're near Padstow. My husband was diagnosed with myeloma last November. He has dialysis 3 times a week.

We play at pubs with friends for fun, usually just an acoustic set-up. Over the next few weeks we're fund raising for Myeloma UK. This YouTube link shows the dates
http://www.youtube.com/watch?v=iizVCQeDAno

Cheers
Mal & Bruce.…[Read more]

]]> a4604b402014362b6836acc9a02538f8 Mal & BruceBruton replied to the topic Myeloma, kidney failure & SCT. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-kidney-failure-sct#post-84495 Sat, 30 Apr 2011 20:12:25 +0100 Hi Badger, Hubby has 3 & 3/4 hrs dialysis three times a week, they say there is little chance of his kidneys improving. He still passes some 'water' which is a tiny plus. You've given us something to think about 'kidney wise'.

Cheers
Clucky & Hubby

]]> bcb26f8524fcc0d87f82ee1b22c5155a Mal & BruceBruton started the topic Myeloma, kidney failure & SCT.. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-kidney-failure-sct Sat, 30 Apr 2011 17:02:18 +0100 Hi, my Hubby who is now 63 years old, was diagnosed with myeloma Nov. 2010. It has wrecked his kidneys. He has dialysis 3 times a week.

He's currently on his 6th cycle of chemo. He's taking thalidomide and dexamethasone. He's just had another bone marrow biopsy to show how the treatment is working.

Stem cell treatment has been mentioned…[Read more]

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