Hi sorry you have had to join this exclusive Myeloma club, I know when you get your diagnosis so young it is devastating and very worrying but the treatment for this disease is moving on so fast I am sure they will have a cure in the not too distant future.
The thought of the stem cell transplant is really frightening but actually its only like a blood transfusion instead of being fed into a vein in your arm they probably will insert a central line into your heart, but it is all fine dont worry, its worse than it sounds and once in place its so much easier and much less painful than nurses prodding you for veins.
I was diagnosed in Oct 2010 aged 49 and had my stem cell transplant in May 2011 but like child birth you forget about all the bad stuff over time.
I tried to take one step at a time and not worry about the next part of the treatment until the current treatment was over.
The worst bit I think is that I didnt want to worry my family as I was widowed at 46 and had a 18 year old son and 21 year old daughter – and so having the forum to vent all your anxieties to is good.
I have met a lady who has been in remission for 12 after her initial treatment and so I just tell myself I am going to be like her and hopefully so will you.
Have you got a specialist myeloma nurse – talk to him/her about your concerns or ring Myeloma Uk they are brilliant!!!!!
Take care
Caroline
