DanBalsdon replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 10 months ago
Ive found sometime to give you all an update! Ill do it in bullet form as theres quite a lot!
-Dad has now finished his Velcade treatment, no side effects at all!
-He is going to the local hospice(rowcroft) for physiotheory 2 times a week, he has a littl ebit of movement back in his legs
-The railway benevolant fund is about to grant him with…[Read more]
DanBalsdon replied to the topic Information/Experience on relapse and velcade in the forum General 12 years, 1 month ago
I am still at sixth form and I am getting a couple of exam results tomorrow and I dont think I will be able to get any allowances as I am in education still and that im only 17. Dad still has around 3/4 months of full pay left at work and then he will retire on ill health I believe. I will give MacMillan a call tomorrow from school, thank you muchly Eve!
DanBalsdon replied to the topic Information/Experience on relapse and velcade in the forum General 12 years, 1 month ago
Hey guys, just going to post another update now!
What a 6 weeks it has been. Dad got taken into hospital around 6 weeks ago with pain in his legs and struggled to move them at all thanks to the pain. Having been out for a meal on the thursday night and him being able to walk to/from the car as a passenger, we thought things were on the mend.…[Read more]
DanBalsdon replied to the topic Information/Experience on relapse and velcade in the forum General 12 years, 2 months ago
Wow, I never knew I would be able to talk so freely on here, thank you all so much for giving your experiences and it has helped my understanding so so much! I had some good news today, dad called and said that his first couple of weeks worth of velcade has lowered the PP levels and the myloma hotspots are shrinking. As well as this, he now has a…[Read more]
DanBalsdon replied to the topic Information/Experience on relapse and velcade in the forum General 12 years, 2 months ago
They decided not to go ahead with the radio theory and he has been on a steroid drip a few times a day since tuesday which finished tonight. They are going to leave it as it is and try to control the pain before sending him to another local hospital who have a special radiotherapy center and he will rehabilitate there for. He is also going to be…[Read more]
DanBalsdon replied to the topic Information/Experience on relapse and velcade in the forum General 12 years, 2 months ago
Hey guys, just thought I would take 5 minutes away from everything to give you an update. Dad started his Velcade on the 15th January and has so far had no side effects directly linked to it. The only thing that has cropped up is that we had to call another ambulance on friday morning as he couldn't move or get out of bed to take his education at…[Read more]
DanBalsdon started the topic Information/Experience on relapse and velcade. in the forum General 12 years, 2 months ago
Hi Everyone,
I have been reading this forum quite a lot but I have only just got round to making a post after recent goings on. My dad, who is now 52 was diagnosed with MM around 6 years ago. He originally had a SCT and was on thalidomide right up to the monday in the week before christmas when he went into hospital with severe back pains…[Read more]