Davehogan

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Viewing 13 posts - 1 through 13 (of 13 total)
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  • 14th November 2013 at 9:41 pm #103515

    Davehogan
    Participant

    Hi Sara i finished my sct on june , ive been back at work sinse sept 1
    I was given the same drugs as you
    10mg Rev
    3 x Vorinastat
    I tried them for 10 days but i couldnt handle the tiredness
    I am now just taking 10mg of Rev

    My BMB after sct showed 0

    Everyone reacts differently and others i spoke to had no side effects.
    Good luck
    Dave

    24th October 2013 at 2:32 pm #88272

    Davehogan
    Participant

    Good luck Graham , I had mine on 12th June 2013 , back to work full time 4th Sept ,
    Take it easy
    Dave

    22nd October 2013 at 1:26 pm #103447

    Davehogan
    Participant

    Hi Carol hang in there I finished mine in January by Feb I felt great a couple of weeks should see you ok

    21st October 2013 at 5:29 pm #96375

    Davehogan
    Participant

    Hi Looly I had my SCT on June 12th 2013 , im now back at work full time but need my blue badge as I can get out of breath easily , so go back and tell them walking is an issue .
    Good luck

    20th October 2013 at 7:44 pm #105786

    Davehogan
    Participant

    Hi Perkymite , ive been given a bmb of zero and full remission last week the question really is do you take Rev as a maintainance drug if so is there any side effects ?

    18th October 2013 at 4:40 pm #105783

    Davehogan
    Participant

    Hi All , ive been watching from the side lines
    Are there any side effects any of you have had using rev or Lenidimide please , ive got to decide by next week if I want maintainance or not …
    thank you

    17th October 2013 at 8:08 pm #103422

    Davehogan
    Participant

    Hi Im in a similar posisition do i , dont i ?
    Have been offered Lenalidomide or Lenalidomide with Bortezomib
    Are there any side effects , i as you cannot afford side effects im enjoying life ….
    Any advice much appreciated
    Im told by my specialist "every one does it" ….

    Thank you

    7th October 2013 at 4:03 pm #103362

    Davehogan
    Participant

    Hi Chris I had my SCT on the 12th June , after 13 days I was sent home and still sick , not eating etc , but by the second week of July all was nearly back to normal , im now back in my job full time and eating too much , hang in there it gets better quickly , Good luck Dave

    25th September 2013 at 1:20 pm #105421

    Davehogan
    Participant

    Hi Eve these were prescribed by specialist

    24th September 2013 at 7:49 pm #105419

    Davehogan
    Participant

    Hi Steph, I had this same problem , the cure anti sickness pills !!!!! Hope this helps

    7th August 2013 at 12:41 pm #103133

    Davehogan
    Participant

    Hi all , my GP and specialist have said I'm ok for work now , it's been 12 months so will take it easy
    I don't really follow the guide books I'm afraid re it takes 6 months post sct, I think a positive attitude to fight mm is needed.
    I spent 5 months in a wheelchair , this was put down to thalidomide , now I can walk again its time to live again.
    I still have a little back pain but nothing too serious , I've had a great team behind me doctors , nurses etc
    It's good to get back to a normal life !!!!
    Thank you for your replies .

    5th August 2013 at 4:02 pm #103129

    Davehogan
    Participant

    Hi Tony been back to specialist today no problem going back full time
    As I'm on a trial he wants me to have another bone marrow !!!!
    No more tablets , time to restart our lives after 12 months
    Thank you for your reply
    In my opion I think post sct your better off at home…..

    28th July 2013 at 4:20 pm #95740

    Davehogan
    Participant

    Hi Tom had my sct 10 June , still get a little sickness but was told by my GP not to rely on anti sickness tabs.
    Have been given ondansetron tablets just in case.

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Viewing 13 posts - 1 through 13 (of 13 total)