Sounds great Adrian….every bit we can all do is really great.
Hope the SCT goes well for you – Take it easy afterwards, listen to your body and don’t overdo it! Fundraising can all wait 🙂

Deb x

Hi David. THat is not good news. Although Maureen is right that revlimid has been said to have a tiny chance of increasing the risk of secondary cancer, skin cancer being one of the ones that it is more likely to do this with. That said, I have always said that whilst there is a chance of that, I’ll take that chance given the benefits it offers.…[Read more]

We used World First….no health issues to claim for thank god, but we did have a broken camera which they paid for no problems.
Debs

Thanks Babs and Helen

Babs, I am just not sure whether it is just the revlimid because of the fact I've been on it so long without any side effects. Helen, I think you might be right about slap cheek….sort of didn't want to face into it. I'll see if I'm the same tomorrow and perhaps get a GP appointment if so. I've now scared myself reading…[Read more]

Great news Jean….really pleased to hear that it is all going so well….hope Frank is chuffed too 🙂

Deb x

Hi Michelle
I suppose it could be linked. My transplant has meant I've definitely gone through an early menopause with hot flushes and all that but I suppose this could be a new and different aspect to it. It's just come very much out of the blue!
Thanks for the thought though…may kick me into action re going to speak to my GP about it all.…[Read more]

Hi Rebecca.

I'm 38 and was diagnosed at 35 but haven't heard that one before. I think that it is individual and is probably more to do with your genes than your age as to what impact it has on your body. But I don't know for definite. Have you tried asking the Myeloma Infoline?

I'm not sure if you're asking for you or someone else, or…[Read more]

Just to say that I had my zometa last time over 30 minutes and it made the side effects much better than when I had it over 15 minutes. (Previously I'd had no problems with it).

I've been on zometa for about 3 years now (although I came off it for my transplant in 2011 – blimey it doesn't feel that long ago!), 18 months since transplant. I…[Read more]

Oh Jean
I'm a rubbish friend! I didn't even realise that Frank had gone in as I've hardly looked at the site recently.
It sounds like he's on his way up though and you'll be surprised how it will change now….probably not too long before he'll reach that magic number.
How are you doing with it all? I always felt for Nick….he'd travel 3…[Read more]

Haha David,
I'm catching up on the site a bit late but this made me smile….and I needed that so thank you 🙂

Debs

Hi Dai

I'm going through the same feelings at the moment although I'm being far less careful than you, presuming that I'll be ok :-/ and hoping for the best!

I'm on maintenance at the moment and after nearly 18 months, my neutrophils dropped to 0.56!! They managed to get me up to 0.8 by taking me off revlimid for 2 weeks and giving me 5…[Read more]