tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Dear Nola
I am sorry to hear about your Loss in Jan.
Stay strong and think of the good times you had before MM came into the scene.
Love and Hugs Tom xxx
tom replied to the topic New on here in the forum Newcomers 11 years, 8 months ago
Hi Rob
Yes sometimes when i am sat down for anylenth of time i find myself "Stiff" and difficult to get of the chair some days, but hey that could just be my old age hitting me sooner than most Ha ha.
I still work (light duties) company gave me a portakabin with everything in it and stuck it near the gate and said just book lorrie's in and…[Read more]
tom replied to the topic Struggling to cope in the forum General 11 years, 8 months ago
Hi Tanya
I can honestly feel for you as I also was brought up in a household that revolved around drink as a child, Both my parents have now passed away Dad first then Mum, I never used to take my Sons (all grown up now) to "Scot Nanna's" due to her drinking habit.
That said to show you you aint on your own 🙂 xx
That said I wish you…[Read more]
tom replied to the topic Shaving head in the forum General 11 years, 8 months ago
Hi Jean and Frank
I had mine cut in Hospital by a kind nurse and when I got home i shaved it to the bone with my Electric razor and kept it like that for some time, just used to swith electric razor on and sit wathcing telly and running it over my bald head, did same with eyebrows when they started to have bald bits in them.
Tell Frank to…[Read more]
tom replied to the topic First post! in the forum Newcomers 11 years, 8 months ago
Hi Norma
A warm welcome to you 😀 this group is a great one as and when you need it to ask or even rant and rave.
I had a SCT in December 2009 and am now Drug free and in remission, its a bit of a haul am afraid but a Doable.
Good Luck for Monday and you know now we are here for and with you all the way.
Tom Onwards and upwards xx
tom replied to the topic More Personal Information Please in the forum Off topic 11 years, 8 months ago
Hi Gill
I will do that this week end see how i cope with it?? but if it gets lost in Cyberspace dont blame iccle ole me Lol.
And some one told me its your Birthday 😀
Happy Birthday Gill have a good One
tom replied to the topic Some sad news in the forum End of Life and Grief 11 years, 8 months ago
Hi Debs
Well said, that young lady was my inspiration through all my treatments first up with good advice and not short to give that comfort as and when you needed it.
Reading Pamela's Post when she was giving advice I could feel her arms giving me comfort also.
You made me Happy and you made me Believe I can do it and for that Young…[Read more]
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Ps R/T is Radio Therapy the tell me its good for the bones 🙂 xx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Well Done Garry you have beat my 16 days of "Lockdown" stay well and in a few months you will be in Top(ish)Form 😀
Even when you are home Garry you are still recovering so take it easy and sleep when your body tells you.
Well Done and Good Luck
Tom Onwards and Upwards
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
Yes early days but its gonna be Ok 😀
Do you know when i was off I dint like the telly on nor radio I used to sit and read or go on Commie in between sleeping lol.
You should try and borrow a "Shooting Stick" for Pete I was given one and i carried it when out and when my back was bad or I felt tired ext I popped it open and…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Lol Eve am sure only you could get away with this one Lol al probaly get told orf lol xxx
Love Tom xxxx Lol
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Hi Sandie
Am pleased your Mum is getting better and hope the next round of Chemo is good for and to her 😀
As for the steroids well we all differ in what and how we cope with treatment but am sure am safe by saying a weight gain is civen on steriods (i did but i had lost a lot of weight due to MM (and I thought it was my diet ha ha) as for…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Yer correct you lot its nice to be nice BUT Lol, and Eve am sure you shouldn't tell us Slim was having his curly's played with Ha ha xx
Love Tom
tom replied to the topic leg muscle weakness in the forum Treatment 11 years, 8 months ago
Hi Ian
well am pleased to seem to have found what it is hope the reductions work and your soon back on your feet (no pun intended Lol)
Keep strong
Tom Onwards and Upwards
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hey Eve when you go off in the Moterhome bring yourself and Slim down to Sunny Scunny we have a nice place for the capming fraternaty pretty near us in Sunny Scunny 😀
Andy
I was at work today when some one asked me how i was doing and as i started to tell him another workmate ? walked in and heard our chat and said "Oh are we on about…[Read more]
tom replied to the topic Loss of appetite in the forum Side-effects 11 years, 8 months ago
Hey Girls and Guys
As for lack of saliva!! its been a long time since i was in that position but I used Chewing Gum 😀 and I know a lot of you Ladies wont use it? but it worked for iccle ole me 😎
As for the food I was some time before i could eat big what i call Sunday Dinners, but it came back after about 6 months post SCT with a…[Read more]
tom replied to the topic New on here in the forum Newcomers 11 years, 8 months ago
Hi Rob
And a warm Welcome to you and well done to you.
After my SCT in 2009 (Dec) I went onto Zometa for 2 years am now in remission and drug free 😀
The Zometa might give you symptoms of Flu but that will soon wear off.
Good Luck and well done so far 😀
Tom Onwards and upwards
tom replied to the topic RCD cycle 13 in the forum Treatment 11 years, 8 months ago
Hey Andy thats good so you say if you reach a a point then the drug company pay ALL cost of the drug??
Tom Onwards and Upwards
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Your welcome and hows things doing ?? you dont want to sit in hospital watching bad movie's get Elaine on Ipad for Face Time it will do you both good Lol.
You all stay well now and Dai you are correct.
We should have a thread Just for you dai as your words are words of Comfort and Wisdom my Friend 😀
Love Tom Onwards…[Read more]
tom replied to the topic Whether to do a 2nd stem cell or not? in the forum Treatment 11 years, 8 months ago
Hi Georgina
you know I cant answer for your dad but i can tell you what I just might do if I was offered a 2nd SCT First I would look at how long i got in remission with the first, and 2nd how good the alternative is Ie the drug only route, when i got better from my one and only SCT I said openly that I wouldn't have a problem having a 2nd, but…[Read more]