tom replied to the topic Melphalan in the forum Treatment 11 years, 9 months ago
Hi Gina
Well I dont think you are getting what you and os your Mum Deserve?, its shocking to hear you only have such a short time with the Consultant, Now i am one of those that say "If the Dr Smiles am Happy" but I do know as and when I need to know anything nothing is too much bother from him or his team, am sure i am not the only one that has…[Read more]
tom replied to the topic Article and stuff!! in the forum General 11 years, 9 months ago
Hi Chell
Well done just been and had a look at your "New" Facebook Page, now am going over to add you on my Twitter 🙂
Love Tom Onwards and upwards xxx
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Babs
Thanks and Yes I hope it gives strenth to others that have and are going through the same.
Stay well
Love tom Onwards and Upwards xx
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 9 months ago
Hi Sandie
Ha ha I know what you mean no exercise and too many Chocs 😀 I am a Devil for Nuts/crisps and sausage rolls lol, and i dont do Pilates, But I have Charlie our Yorkie to walk three four times a day 😎
Hope your both doing well.
Love Tom Onwards and Upwards xx
tom replied to the topic More Positive News. in the forum Treatment 11 years, 9 months ago
Hi Babs
Great News Girl, nest visit to Kings 2014 that is great news 😀
Keep up the Great work am as pleased as punch for you Both.
I have a Bus/Train pass but its only for me 🙁 the young bride (Elaine) has to pay lol.
Enjoy your Holls and stay well
Love Tom Onwards and upwrds xx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki and Sam
So sorry to hear about your breakdown, I do hope your getting some help with it? and that also means trying to get help for both of you its a hard slog going through it all and being a Carer (hate that word??) its harder than being the patient I have been both (now the MM'er)
Its rough that Sam has relapsed but I hear…[Read more]
tom replied to the topic Melphalan in the forum Treatment 11 years, 9 months ago
Hi Gina
I am like most I had mine prior to SCT so cant help.
Its a Shame and a disgrace that the consultant is on his own but that should not detract from the fact that without proper consultations and discussions a decision cant be made.
I would Email/Phone the Nurse on here as am sure you cant be forced into this with not knowing the…[Read more]
tom replied to the topic Question…..maintenance treatment in the forum General 11 years, 9 months ago
Hi Vicki and colin
Well as you know I cant add to this post as I have only had CDT then SCT (i say only ?? lol)
But want to wish you good luck with whatever you Both Choose, and to let you both know we are all behind you to help you get through it and achieve the Remission that we all crave.
As for the "Hangover" I honestly dont know what one…[Read more]
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Phil and Megan
Thank You its good all the way 😀 am pleased to say, and i washed the Car good and proper yesterday and am still fit today ha ha.
Hi Tina
Thanks it is good as you know when we get good news 😉 I have heard about long term Zometa, I came off mine after two years, but to be fair I was pleased as they found it harder to find…[Read more]
tom replied to the topic CTD Dosage in the forum Treatment 11 years, 9 months ago
Hi Peter
Well you know you and i are 16 dayer's as i was in Castle Hill for 16 days and as they say the rest is history, Keep up the Good work and am sure your Man is gonna be happy for Many a year to come 😎
Hi Maureen
Its a great Day Today we have had three Grandchildren who after staying the nite are now out in the (cold) Sun waking…[Read more]
tom replied to the topic Dad's been diagnosed.. I want to understand more! in the forum Newcomers 11 years, 9 months ago
Hi Robin and Jim
Looks like his Team are on the ball, am sure it will help going back into Jim's History as he has had a fair few problems for some time, he will soon be sorted its just takes a bit of time.
Give my Regards to Jim.
Tom Onwards and upwards x
tom replied to the topic Myeloma and home haemodialysis update. in the forum General 11 years, 9 months ago
Hi Mal and Bruce (clucky great tag lol)
Well done you two doing all that at home 😀 we have some friends down the road from us and he has his gear at home and he does his at nite so it is less problem during the day 😀
Good Luck with it all
Tom Onwards and upwards xxx
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Folks
Gosh am overwhelmed by the response both here and on Face Book 😀
Thanks for your best wishes BUT?? a lot of posts seem to mention Vodka?? do you think I should drink a bit now and then Ha ha.
Yes its great news and i wonder if thats because I Harvested enough for two SCT's but they put them into three bags and not two 🙁 I was a…[Read more]
tom replied to the topic CTD Dosage in the forum Treatment 11 years, 9 months ago
Hi Maureen and Ian
Well I went through My CTD pretty well but i cant recall Dosage as mine was 2009 and i forgot he he.
Good Luck to you both and hope its a smooth Run
Peter your doing well I see keep it up and stay well
Tom Onwards and upwards
tom replied to the topic In Out, In Out, Shake It All About in the forum General 11 years, 9 months ago
Good Luck for Monday Dai, and enjoy the week end (I just might wash the car??)
Onwards and upwards
tom replied to the topic Little things mean a lot in the forum General 11 years, 9 months ago
Aww Pat
Thats Great News its not a Little thing its a great big Well Done You Thing8-)
I know how proud I was when I woke up feeling "Wow am better" after my SCT and I loved it.
Well Done again Pat so chuffed for you 😀
And Dai Great just bloomin Great 😀
Love to you all
Tom Onwards and Upwards 😎
tom replied to the topic Confused in the forum Side-effects 11 years, 9 months ago
Hi Maureen and Ian
Am sure he will love it here ????as and when he comes on great folk on here.
Lets hope it's home soon for him.
Tom Onwards and Upwards
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Liz and Kev yes it is nerve racking even though you feel fine it's the Dr's Smile I need, yes al continue doing what's good for me but the vodka just one tonight (work in morning) but Friday heheh he xxx
Jean thanks ????but no club tonight work Friday am pleased to say.so the party is on tomorrow ha ha xx
Phil Jan and Sam , well done you…[Read more]
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Thanks Michele your right it is a great Feeling 😎 and mine in December 2009, I have nearly forgot all about it to be fair 😀
Yes I am waiting not only for Spring but that long awaited Long Long Hot Summer, need a bit of warmth on the back of my fat neck ha ha.
Take care and Stay Well
Tom Onwards and upwards xx
tom replied to the topic Relapsing in the forum General 11 years, 9 months ago
your welcome Helen and am pleased your Cough has gone, mine well if mine left my Young Bride wont be able to find me Ha ha.
Tom Onwards and upwards xx