tom replied to the topic BMB Tomorrow in the forum General 12 years ago
Hi Keith
Well wot a to do as the saying goes 🙁
Am sure you kn ow I say am a "If My Dr is smiling am happy" well that is because I trust my Dr and I know if I need to know anything its him that I see, and if its My Cancer Nurse Helen I see and need to know more My Dr is in the next roomits a case of waiting till he has done with who is in…[Read more]
tom replied to the topic New and need advice on Myeloma XI in the forum Newcomers 12 years ago
Hi Eric (am pleased that OUR Eve Misses nowt Lol)
And am with Eve, stick with the trials I am on nowt at the moment and still in remission 😀 and mine was just CDT then SCT all in 2009.
Tom "Onwards and Upwards" x
tom replied to the topic Neutrophil recovery after SCT in the forum General 12 years ago
Hi Phil
Think its all been said Nowt normal in this dept so not one shoe fits all, I never ever bothered with my PP nuets or anything els i just wanted to see My Dr with a smile on his Face and to be fair that worked and still is for me 😎
Keep well and stay Fit
Tom "Onwards and Upwards"
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years ago
Hi Vicki & Colin
Its Good Colin is out of bed for a time even if he is asleep in chair, I bet he is a great Host before and will be again after SCT
Dai is correct but as for me I went out amongst it all club and walks (short ones)
Hope your counts are good Tomorrow Colin and get you off home where the hard work starts 🙂
Love Tom…[Read more]
tom replied to the topic Hospital again…… in the forum Newcomers 12 years ago
Hi Kerry and Melvin
Sorry it was another Hospital Dash but am pleased That you are now back Home Melvin, this MM is a bloody hatefull thing, but you are both fighting it with all the strenth you can muster keep that strenth going you two.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years ago
Hi Vicki and colin
Well Colin you are soon on the move and sleep is good for you I slept for about 5 days when i had my SCT some times didn't know the young Bride was with me (wot sort of a host was i lol) as for the eating I didn't just water for me I used to order sandwhich for tea and choos it for Elaine so i didn't eat it.
Sleep well…[Read more]
tom replied to the topic CTD Finished and came home on Wednesday 31st in the forum Treatment 12 years ago
Hi Tina
That long and hard ride you are having will soon be a distant memory for you (mine is nearly lol)
Think if i am correct I was about two months post SCT before I woke up and turned that Corner to being Fixed and that I knew I just felt "Fixed" 😎
Keep Well Tina and it wont be long now before you are "Up and At Em"
Love Tom…[Read more]
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago
Hi you all
Not be long before you are at home Chris 😀 then you can start to get better faster, just keep away from those bugs and you will still need to sleep a lot and if you are like me still keep the bathroom door open Lol.
I was also stil taking the Anti Sick Tabs for a few weeks after getting home so ask for them before you…[Read more]
tom replied to the topic It's not the cough etc etc in the forum General 12 years ago
Hi Helen
Well I stopped smoking in November 2009 just prior to SCT and my cough/chest has never been as bad 🙁 I have always had a iccle tiny cough when I smoked as my Young Bride (Elaine) called it an attention cough Lol, but that iccle cough has grown up and been a bother for a few years now its just weaker :-S
Had me flu Jab…[Read more]
tom replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Hi Sue and Michael
I am Pleased you are Home Michael as am sure its best place for rest and comfort, sorry you had a panic attack michael it must have been scarey ?
Sue I have three Handsome Sons but all soreted now but am sure that Pretty Daughter of yours will be sorted when she is ready, aint no rush these days is there?
You both kep…[Read more]
keznmel replied to the topic hospital again….. in the forum Under 50s 12 years ago
Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.
I hope this finds you all well – lots of love and best wishes.
Take care Love Kerry xxx
keznmel replied to the topic Hospital again…… in the forum Newcomers 12 years ago
Hiya Wink… Thank you for your message.
You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]
keznmel replied to the topic Hospital again…… in the forum Newcomers 12 years ago
Hi Megan – Thank you for your message.
It sounds like you have both have it tough too. I'm sorry.
I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]
tom replied to the topic Driving? in the forum Newcomers 12 years ago
Hi Debbie and Les
And I dont know your Mum and dad but I wish I was going with them also Lol.
A m sure your Dad (Les) will be lucky with his treatment and I for one hope the road to remission is a smooth one.
Tom "Onwards and Upwards" xx
tom replied to the topic New with a tale to tell already! in the forum Newcomers 12 years ago
Hi Lizzy and mom
Its not a problem and am pleased to read Mum is getting better today and Hope it gets better and last longer 🙂
Love Tom "Onwards and Upwards" xx
tom replied to the topic Bleeding Gums in the forum Side-effects 12 years ago
Hi Keith
I have strong gums and teeth 😀 but i was told during treatment to use a soft brush, and i always use mouth wash every time i go to the loo its hand wash and mouth wash, I dont floss that often and my dentist tells me to but :-S
if in doubt phone hospital 😀
Tom "Onwards and Upwards"
tom replied to the topic New with a tale to tell already! in the forum Newcomers 12 years ago
Hi Lizzy
A Warm Welcome to the site to you an your Mum.
My Run was straight foreward so Cant add nor help you at this time but am sure some one will be along that is on this treatment and give the advice you need.
What Hospital is your Mum getting treated as some on here might be able to help and advize.
Tom "Onwards and upwards" xx
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago
Hi Chris and Colin
Doing great Chris 😀 and Colin you will be the same soon My Friend, dont rush it as we all differ in the getting home Time mine was on day 16 and I have been beat and i have beat others so as you all see we differ in the Home run.
Stay Strong you all
Tom "Onwards and Upwards" xx
tom replied to the topic Driving? in the forum Newcomers 12 years ago
Hi Debbie
A warm welcome to you and your dad and sorry am late with the reply, and am sure it has been answered.
But Get that holiday in and dont wait till after or during treatment as I didn't know how I was going to feel the day after let alone four months away :-/ but the Uk is fine as you wont need Insurance as such?
As for Driving I…[Read more]
tom replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Hi Sue and Michael
Sorry to hear its a Hospital stay for Michael but am pleased that when he is home a plan will be put in place for Michael and yourself.
Please mdont worry about what you can and cant do that will all wait and do what you are doing now "One Day At A Time" stay well Sue
Love and Huhs to you all
Tom xxx