tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Hi Vicki and Colin
And a Lovely Looking Couple if you dont mind me sauing 😀
Am sure you will cope with the flurry lord you have been doing it for long enough now He he. I hope its a printing error but ad give them a ring to make sure its not this thursday I would hate you to miss the day after all this time, I used to love Krypton Factor so…[Read more]
tom replied to the topic I feel so miserable! in the forum Newcomers 12 years, 1 month ago
Hey Kerry That my Girl Is Normal, I am the one with MM so am being looked after by my lovely wife Elaine (the young bride) I was told in Jan 2009 that I had Myeloma, done the CTD then the SCT (all good now) BUT Prior to my MM Elaine (the young bride) was told in Jan 2008 (yep one year prior to mine to the day near as) that she had breast cancer…[Read more]
keznmel replied to the topic Still angry in the forum Carers 12 years, 1 month ago
Hi Lorna..
My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]
keznmel started the topic I feel so miserable!. in the forum Newcomers 12 years, 1 month ago
Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Wow are we seeing new photo's here 😀 all looking great.
Keep strong you all looks like winter is dragging itself closer for us 🙁
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Two hospitals in one day in the forum Treatment 12 years, 1 month ago
Hey Andy and Steph
Well you are avin to give this a good fight M8 🙁 but I know you can both do it 😀
Its an Uphill battle this MM when it runs smooth so I do feel for you two, I hope you get a good Match near home.
Keep strong you two
Tom "Onwards and Upwards" x
keznmel replied to the topic I feel so angry, frustrated, fed up…blar blar blar….. in the forum Carers 12 years, 1 month ago
Thank you for your message Jean. Guilt is a very powerful emotion isn't it? I think it can be a visitor in most situations. Unfortunately, I over think absolutely everything too and scrutinize myself..'have I done enough?' etc..
We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]
keznmel replied to the topic Two hospitals in one day in the forum Treatment 12 years, 1 month ago
Hiya – it seems to be all go for you at the moment. Fingers crossed that they soon find you a match. Best wishes Kerry and Melvin x
keznmel started the topic So angry..fed up…angry…… in the forum Under 50s 12 years, 1 month ago
Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]
keznmel started the topic I feel so angry, frustrated, fed up…blar blar blar…… in the forum Carers 12 years, 1 month ago
Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]
keznmel replied to the topic Possible Myeloma ? in the forum Under 50s 12 years, 1 month ago
Hello Angelina,
I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.
You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mary and Charlie
Am sure the Drug free will come to you two also mine was over two and a half years before I stopped taking them :-/ but well worth the journey 😀
Good luck for tomorrow 😎
Love Tom "Onwards and Upwards" xxxx and the odd glass of Vodka xxx;-)
tom replied to the topic We lost our dad. in the forum End of Life and Grief 12 years, 1 month ago
Hi Vicky
Your More than welcome and I hope you are all going through this as well as you can yes I still think about you all after your Loss.
Take Care and be strong.
Love Tom xxx
tom replied to the topic starting treatment in the forum Newcomers 12 years, 1 month ago
Hi Polly
Sorry you had to start treatment 🙁 but my advice would be "Take one Day at a time,rest when your body tells you, and more important use this site to ask complain and have that moan that I know you will have from time to time" but its well worth it.
Keep well and stay strong
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Low Blood Counts in the forum Treatment 12 years, 1 month ago
Way to go Keith, Keep well and stay strong 😎
Tom "Onwards and Upwards"
tom replied to the topic Myeloma XI Trial (MXI) in the forum Treatment 12 years, 1 month ago
Hi Amanda and Bob
Well I dint have any trails but I was on CTD in Feb 09 for 5 cycles (28 day) then SCT in December 09, now drug free and doing well 😎
Its all doable Amanda, but it has its bad bits am afraid but in the end it works out OK :-D, so four years this next Jan since I started my road to remission and that has been achieved 😎 and…[Read more]
tom replied to the topic live life in the forum End of Life and Grief 12 years, 1 month ago
Dear Ann
I am sorry to read about The loss of John in his hard fought battle with MM.
Love and Hugs to you and your Family at this sad Time
Tom xxx
tom replied to the topic So What Magic Happened Here? – Wedding Poem for Becky & Liz in the forum Off topic 12 years, 1 month ago
Dai Why oh Why do you seem to do it most of the time????? Yep I had a tear in one of my eyes you burgar 😎 its great dai and much too good to be spoilt by adding my name to it.
I Know you will be well for the big day and am sure every one will loove it.
Tom xx
tom replied to the topic Public Swimming Pools in the forum General 12 years, 1 month ago
Hey Nettie
I wasn't told to avoid it but I did (aint too good in water lol)
My Young Bride was told to avoid indoor pools (for 121 months) after she had Radio therapy when she had her op for breast cancer but wal Ok to go in the sea.
Keep well
Love Tom (cant swim well) "Onwards and Upwards" xxx
tom replied to the topic It's not the cough etc etc in the forum General 12 years, 1 month ago
Thank Ali I am doing Ok not coughing as much but think I am losing my Voice (am sure I heard my young bride say "cant wait" lol)
I was told I dont need to redo mine?? but am sure it will help if you E mailed the Nurse on here 😀
Love One Getting Better Tom "Onwards and Upwards" xxx