tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Hey you all hope you dont mind me tagging in here to wish you all the best for the SCT xxxx
tom replied to the topic teeth and gums in the forum Newcomers 12 years, 1 month ago
Hi Kerry try this
http://www.myeloma.org.uk/patient-services/ask-the-nurse/
this should open up a page on here so you can ask the Nurse.
Hope it works
Love Tom xxx
tom replied to the topic teeth and gums in the forum Newcomers 12 years, 1 month ago
Your More than Welcome Kerry, and dont forget you can Phone the Nurse/ send an Email to them.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Sleeping so much! in the forum Side-effects 12 years, 1 month ago
Hey Jane
Am not sure if you are aware of this BUT this is the Rant room so Rant as often as you like its good for us 😎 and whats good for us is OK here 😀
I think I also was stage brought up but I just have too many teeth Lol, and have been told many a time I have eyes that sparkle, thats it Bull over for the moment.
Like Jean says if…[Read more]
tom replied to the topic teeth and gums in the forum Newcomers 12 years, 1 month ago
Hi Kerry
Sorry to hear about your Mum but may I say a well done to her and her team 14 years is great and am sure more to come.
As for the Zometa am not sure how long it stays in the system? but am sure I read in here that some one had it removed (cant recall who or when?)
Good Luck to your Mum and give her my regards, and hope all is…[Read more]
tom replied to the topic Recently diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mike
And the show must go on 😀
Good Luck on your treatment, I was told 2009 that I had MM, treatment was 5 courses of CDT then SCT in dec 09 now in remission and doing great, some times it was Uphill struggle but trust me well worth it all 😎
Oh and I am 57 years young 😎
Ask if you need to know owt.
Tom "Onwards and Upwards"
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Hey Chris
Thats Good news 😀 it wont feel it for a bit but its well worth the odd bits that happen during your recovery, lets hope its as good as I can remember Mine being pretty good.
As for the Panic to get everything done before you go in trust me it will wait till you get out and better.
Fingers crossed for a fast recovery and home…[Read more]
tom replied to the topic Hair in the forum General 12 years, 1 month ago
Hi Peter
I just might google that later see if they need a Chrome Dome for testing Ha ha, Lord Knows about the Colour it might be as i have Ginger in me also ha ha.
Tom "Onwards and Upwards" and Giner he he
Great Pic BTW 😎
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mary and Charlie
Please stay positive as I know from myself its the only way to be.
I hope its all soon sorted and soon on the road to remission
Lots of Love Tom "Onwards and Upwards" xxx
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Hey Vicki and Colin
And you know I have everything crossed for you both, Lets hope its money well spent 😀 as am sure it will be.
Vicki just havea few glasses of wine tonight it is good for you and let Colin have a few Vodka's those worked for me also.
Lets hope those little Stems walk out on their own rather than being Dragged out.
I…[Read more]
tom replied to the topic Sleeping so much! in the forum Side-effects 12 years, 1 month ago
Hi Jane
Aww that sleep is a devil but it has to be done sleep and you heal thats what I think, a little walk is good for me I have just got back from walking the dog and we have been out more than an hour (gosh that dog can talk ha ha) Exercise is good for us nice and gentle, Plus a little chat to Dr to make sure Bloods are all Ok
Enjoy the…[Read more]
tom replied to the topic A year on in the forum General 12 years, 1 month ago
Hey Andy a Well done thus Far, Keep it going My Friend it does get better 😀 and soon be more of those (lets rub Toms nose in it) Hot Hot Sunny Places 😎
Good Luck in keeping well 😀
Tom "Onwards and Upwards" x
tom replied to the topic Second SCT underway at last in the forum Treatment 12 years, 1 month ago
Hey Mari Dont stop Posting, this is where you can get help to Build your resolve up and get help/advice when you need it.
Stick with it you two it will be well worth it.
Love and Loads of hugs sent to you both, I know its still gonna be hard for a couple of months but we are here to help you both.
Lots of Love and Support from Iccle ole…[Read more]
tom replied to the topic Hair in the forum General 12 years, 1 month ago
Well Ladie's am pleased you are all sorted with your hair 😀 now take a look at my photo and let me know what help you can give to mine Ha ha.
Enjoy Today as the Sun Will be out 😎
Love Baldy Tom "Onwards and Upwards" xxx
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Hey Its Sat and I think the Ijection are starting??? Good Luck and Hope all goes well.
Thinking of you both
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Never Give Up. in the forum General 12 years, 1 month ago
Hi Eve
Yes it is hard work with the grandkids as you know we have six yep six but when they have gone home Elaine and I can fall asleep on the sofa and or nip off to bed 😉 and catch up on the sleep.
Love tom "onwards and upwards" xxxx
tom replied to the topic Never Give Up. in the forum General 12 years, 1 month ago
Hi Eve and of Course Slim
Its not brave havin the Kids (we have one now) its good to see the Grandkids and they love granddad Pub Lol
Enjoy the oplace that your both in as it will get better (with a few hickups am afraid) but its great just got my tests comming up soon ? and am sure they will be spot on (unless this body is telling me…[Read more]
tom replied to the topic Stephen It was a real celebration in the forum End of Life and Grief 12 years, 1 month ago
Hi Gill
Well what a read and a well done you it sounds like it went well.
Your Post wasn't a waffle it was warm funny and it oozed the strenth that you have always had it made me smile it made me cry (yep Gill you made me cry)
I understand about being away for that "Regroup" and I hope it comes to you fast.
You have am sure heard all…[Read more]
tom replied to the topic Spoke too soon! in the forum Side-effects 12 years, 1 month ago
And a Good Morning to you also Pat 😀
Do you know thats the way I think of it when I was having treatment, treatment all finished now but I tell everyone that I have built a little shed on my left shoulder and shoved the pesky MM in that and shoved a lid on it 😀 and yes I talk to it:-S and yes I tap the top of the Lid :-/ but hey ho it…[Read more]
tom replied to the topic What to take in the forum General 12 years, 1 month ago
Hey Tina Good Luck with it all and if I remember well Nightie is faster for lifting than jim jams are for lowering and I prefer the fastest way (not that I wear Nightie's though)
As Eve says During SCT its a throw away Culture you need to have, dont bother with Posh (bless)
Love Tom "Onwards and Upwards " xxx