tom replied to the topic mgus check up in the forum Newcomers 12 years, 3 months ago
Hi Sue am pleased your check was OK 😀 you cant beat that fealing long may it last.
Love Tom "Onwards and upwards" xx
tom replied to the topic Right thing?? in the forum Side-effects 12 years, 3 months ago
Same as My sheat Jean time is important I think and jope the Dex is soon sorted 😎
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Jean I think am getting too x-cited am not sure if I can sleep tonight, so thoght i would have a vodka tonight. cant wait to tell you how why or what and as for the "Have to kill you" think it will have to be have to tickle you" Lol.
Love Tom mxxx
tom replied to the topic Withdrawal? in the forum Side-effects 12 years, 3 months ago
Hi Tina
Well that surly isnt your bestest moan?? and as for the weakness I went on sick after my second round of CTD and stayed of for a year I still dont feel a 100 % but am happy with that do as much as you can and rest your body has been poisoned with the drugs, still do as your body tells you and rest when needed but we do need exercice to…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
Hi Ali
Am sure your Mum loved that sneaked in Hug 😉
😀 Your Mum is realy doing great 😀 I bet your fealing better after the chat with the Nurse, those devils do make us poorly but they sure know how to make us better and be "Onwards and Upwards"
Another sneaky Hug for your Mum
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic MM and Travelling in the forum General 12 years, 3 months ago
Hi Elfriede
A warm welcome to you.
I have been on a plane many times since my SCT and would do again yes my body is weaker and I get tired but hey I was put on this Land to party and Holiday (work is a bit of a bore)
I say if your fit and the Dr says its fine get yourself off and Enjoy it 😎
Tom "Onwards and Upwards" x
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Hi Folks Thanks for that I cant wait (spose am gonna av to though 😛 )
Jo you know how to make a man Blush I can tell you he he
Etta its getting control of my nerves for the camera tomorrow 😉
Eliz Elaine and I are going to newcastle to have fun and it just happens I will have an audition for Deal or No Deal 😛 and whilst I am doing that…[Read more]
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Hi Michele
Am sure we could fill the room from MMUK he he xx
tom replied to the topic Right thing?? in the forum Side-effects 12 years, 3 months ago
Hi Jean and Frank
Well I have done well I found my spread sheet when i was having my CTD and it has times I should take the tabs on a day as follows :::::
1) Granisetron, 1tab at 8 am and one tab at 8pm every 7 days
2) Cyclophhosphamide, 10 tabs at 8am every 7 days
3) Dexamethasone, 10 tabs at 8am and 10 tabs at 11 am dyas 1to 4 and…[Read more]
tom replied to the topic Right thing?? in the forum Side-effects 12 years, 3 months ago
Hi Jean and Frank
Cant answer the Q you asked but Frank just might be like me and Loves to sing when first awake He he.
Love one singing "Onwards and Upwards" xx
tom replied to the topic Good luck Tom! in the forum Off topic 12 years, 3 months ago
Well Thanks jean
I have to admite i have two character refrences that to be honest nearly made me weep I did not know who it was He he.
Not be long Hope I get on and spread the word about Myeloma 😀 "Big Telly"
Love
Tom "Onwards and Upwards" xxxx
tom replied to the topic My Lovely Mum, Some positive News in the forum General 12 years, 3 months ago
Hi Rachael
Nor I know about PP thingie's av said if my man is happy am happy 😎 and it has worked for me Lol.
Dont know if you use Face Book but a fair few on here use it http://www.myeloma.org.uk/patient-services/discussion-board/general/facebook/ my pickie has changed but am sure you will spot the fat (ish) face lol
Love
Tom…[Read more]
tom replied to the topic Self Diagnosis, Not A Good Idea! in the forum General 12 years, 3 months ago
Michele My Young Bride (Elaine) tells me that and she and you are correct Bloody MM plays havoc with your own common sense am afraid to say 😛
Hope the steam soon helps and you are clear to hear again 😎
Tom "Onwards and Upwards" x
tom replied to the topic My Lovely Mum, Some positive News in the forum General 12 years, 3 months ago
Hi Rachael
Thats great news it all sounds like it is falling into place 😀 and great to hear Kidneys are improving.
I think its a case of making do with the side effects if its clearing a big bit of the MM.
I hope your Mum and Dad enjoy the well deserved holiday 😎
Love to you all
Tom "Onwards and Upwards" xxxx
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
Hi Ali and Mum
See it gets better 😀 I was told that they would make me sick before they made me better and they did on both counts, and your Mum will be the same.
Give Mum a Hug from me
Love and Hugs to you all
Tom "Onwards and Upwards" xxx
Etta Good Luck with your Line Tomorrow and Hugs sent your way also xxx
tom replied to the topic Myeloma X: Relapse (Intensive) Trial in the forum Treatment 12 years, 3 months ago
Hi Deborah
What a dilema, I thought the consultant could/would advise which way to go?.
I wish your Mum good Luck in the difficult decision.
Love
Tom "Onwards and upwards" xxx
tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 3 months ago
Hi Rach
I see you have got some good posts to read 🙂 and am sure it all helps, you wont be able to stop your Mum doing her bit but she will need to rest up and let her body heal.
How long was it before I got fit?? and 10% to be Honest Rach I aint 100% but am good enough 😀 but when I felt Better and knew I was better 😎 would be about…[Read more]
tom replied to the topic Someone to talk to in the forum Newcomers 12 years, 3 months ago
Hi Rach
Sorry to hear about your Mum but a warm welcome to the forum, it will am sure give you and your Mum plenty of advice and help.
My treatment was 5 cycles of CTD then SCT in december 2009 and am pleased to tell you I am in remission and drug free 😀
How is your Mum now? is she at home now??
Ask anything you need to ask and honest…[Read more]
tom replied to the topic Plasma cell leukeamia in the forum General 12 years, 3 months ago
Hello Only Me
I am pleased to read you are getting stronger and your Lovely Mum had the send off that she wanted.
I also has some Counseling just after my Stem Cell Transplant and like you found it a great help. would i do it again? too true i would would i tell people that it worked for me too tue on that also so if you need some more go…[Read more]
tom replied to the topic Couldn't bear to share this until now! in the forum End of Life and Grief 12 years, 3 months ago
Hi Lynne
You are so right re "[u]try not to feel guilty thinking you could have done this or you shouldn't have thought that …. it's a hard road, we can only do our best."[/u] as My Young Bride and I have said that many a time we do the best "At that Moment" and we promised each other we would not say WE/I should not have blas bla as its a…[Read more]