tom replied to the topic Thrush?? in the forum Side-effects 12 years, 5 months ago
Hi Jean and Frank
Well thrush?? I dont know?, all I remember is when I was on CDT and sometime when having a wee I used to stand on my tip toe's and say oh oh oh bugger oh bugger (it dint stop the pain?? lol) but My Lead Nurse told me drink more (I took that to mean Red Wine/Vodka?) but it worked 😎 more water and less pain 😉
Good…[Read more]
tom replied to the topic Plasma cell leukeamia in the forum General 12 years, 5 months ago
Hi OnlyMe
I am sending Hugs and prayers at this difficult time your Mum and Family are going through, please stay strong and I pray your Mum stays calm and is pain free.
Love and Hugs to you all
Tom ((HUGS)) xxxx
tom replied to the topic Rev/Dex Has Started in the forum Treatment 12 years, 5 months ago
Hi Keith
Welcome back 😀 am sure like us all that has been away when we are back it soon becomes a distant memory Lol
Good Luck with the rev and dex and as for the injections :-/ I for one wouldn't look forward to that :-S but if it has to be done its done 😎
Good Luck with it M8
Tom "Onwards and Upwards"
tom replied to the topic Channel 4 documentary in the forum Side-effects 12 years, 5 months ago
Morning Eve well as you know our Charlie has his 5 mins of fame on face book every time I post a photo he is on it (vain little devil) lol xxx
tom replied to the topic Channel 4 Documentary in the forum Treatment 12 years, 5 months ago
And I also am one of those that could tell wotsitsface where to shove it Lol
Have a good day Folks am up and ready for work 🙂
Tom "Onwards and Upwards" xxx
tom replied to the topic Channel 4 Documentary in the forum Treatment 12 years, 5 months ago
Thanks for that David think a few have been a tad upset with it here :::
http://www.myeloma.org.uk/index.php?cID=16917&ccm_paging_p=1&time=1340657058#msg16940
tom replied to the topic Channel 4 documentary in the forum Side-effects 12 years, 5 months ago
Lol Eve I forgot aint none of us in here able to do the TV Programe as we will all be here after the 12 month is up Lol.
And you are correct they should do one On Myeloma and why Nice take so long to release the drugs and why the drug Company's charge what they do 🙁
And am sure you are ready for more than your five mins of fame Lol…[Read more]
tom replied to the topic Channel 4 documentary in the forum Side-effects 12 years, 5 months ago
And for those smiles I and Eve are eternally Grateful.
But would it do some good to be aired? it would get Myeloma out in the open rather than just a few thousands that know about it.
Its just the Gaul of the words that got me IE "[u][b]life-limiting illness[/b][/u]" and Or "[u][b]and have a short time left to live[/b][/u]"
We with MM are…[Read more]
tom replied to the topic Channel 4 documentary in the forum Side-effects 12 years, 5 months ago
Lol Eve and do you know that is Correct I aing going nowhere this next 12 months apart from abroad on our holls Lol xxx
Love
Tom "Onwrds and Upwards" xxxx
tom replied to the topic I am newly diagnosed with Myeloma in the forum Newcomers 12 years, 5 months ago
Hi Judd
A warm welcome to you sorry you had to nip in, now lets hope they can nip your problem's in the bud and get you into remission soon.
Is the road Long? is tit a hard road?? I dont know you seem to have had it bloomin hard already 🙁 Its not a walk in the park but I had my SCT in December 2009 and am now in remission.
Good Luck on…[Read more]
tom replied to the topic Keeping up appearances in the forum General 12 years, 5 months ago
Wendy as a "mere Male" that is (well so am told) Bald on Top I am not in a position to advise on Curls or waves Lol.
Tom xxx
tom replied to the topic Hickman Line in the forum Treatment 12 years, 5 months ago
Hi Eve and Slim
Well I had a "Femoral" Line fitted and had it taken out on day 15 the day before I came home and all my bloods were OK, That said I was going to Castle Hill every week till my 100th day and some folk had the Hickman line in most of the 100 days that I attended? never thoght about asking why that thing stuck out the top was doing…[Read more]
tom replied to the topic Help please sore abdomen after SCT in the forum Side-effects 12 years, 5 months ago
Hi Gill
Welcome Home I bet you were fed up
You are correct its better for you when they find something ? anything to put a name to it:-/
I see your eyes have got bad? some times I feel mine aint as good as they were? Youing Bride (elaine) tells me to go and get new glasses but I aint due for an eye test till next year:-0
Keep strong…[Read more]
tom replied to the topic 3 litres a day in the forum General 12 years, 5 months ago
Morning Dai and all
Well done on the trip a double wammy 😀
But its a shame when you book time away and get or feel ill.
You now know you can do it so am sure its going to be the MM way? "Little and Often" 😎
Tom "Onwards and Upwards" x
tom replied to the topic Keeping up appearances in the forum General 12 years, 5 months ago
Hi Girls
Eve keep your eye on Slim's facial hair when it grows back, mine sometimes I grew a Pencil tash like in the old movie's (or so am told lol) just a thin neat line grew all on its own, but my hair grew back darker with a lovely wispy curl Lol and gosh was I pleased to get rid of that lol.
Helen I wish you luck with the Blond bit but…[Read more]
tom replied to the topic Keeping up appearances in the forum General 12 years, 5 months ago
Happy New Hair Cut Helen, I hope Blondes have more fun you will have to let us all know Lol.
I used Oillatum on my skin and still do 🙂 but what it wants is a good few days of sunshine 😎
Catha Lata Blondie 😀
Love Tom "Onwards and Upwards" xx
tom replied to the topic Plasma cell leukeamia in the forum General 12 years, 5 months ago
Hey Only Me
Keep going Girl I know its hard and I feel harder for the Carer/watcher than us with MM, as while we are confined to bed we can sleep.
I hope the walk done you some good but please look after yourself also, you dont want to find yourself too Ill to visit, am sure its difficult to sleep but the power nap is also good for you half…[Read more]
tom replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi Vicky and Colin
Well I see as normal you have had some great and honest answers 😀
Just to add a little bit more The treatment I went through from start to this day was for me "Pain Free" except when I was having the growth injections I had pain in my rib cage and that was intermittent for I think four days.
And Like Helen said…[Read more]
tom replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi you two
Your more than welcome I and Elaine(the young bride) knows all too well how bad BUT how good its been for me, and as for the "Red Stufff" yep am partial to that its good for the MM 😀 and yes the Vodka is even Better for the MM 😎 drink too much and you forget you have it Lol.
Keep strong and live life with a smile
Love…[Read more]
tom replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi Vicky and Colin
Wow what a rush now?
Well to answer one of your Q's I had my SCT in dec 2009 yes it was hard but and this I mean if it fails would I do it again Too true I would 😀 yes its hard yes its a long time in the "Getting Better" Dept but well well worth it 😎 because I sit here now two years and six months down the line in…[Read more]