tom replied to the topic My Loss in the forum End of Life and Grief 12 years, 6 months ago
Dear Carol
I am so sorry for your loss its hard for me to imagine what you are going through at the moment and am sure you will enjoy life again just a new way with new challenges.
Hugs for you
Tom xx
tom replied to the topic Velcade Experiences in the forum Side-effects 12 years, 6 months ago
Hi Deborah
I cant add to this one am afraid just wanted to welcome you and your Mum into the group but some one will pop in and sort out your Q.
All the best in the road to remission for your Mum
Tom "Onwards and Upwards" xx
tom replied to the topic Pancytopenic? in the forum General 12 years, 6 months ago
Hi Keith
Well this is another new one for me? aint a clue what it is nor what causes it?
Hope its soon sorted out Keith I bet your well fed up with all this stuff. Keep strong and fight the begger like I know you will
Tom "Onwards and Upwards"
tom replied to the topic Sue Marshall's Transplant in the forum Treatment 12 years, 6 months ago
Hi Eva and Sue
Just for info I had my transplant the day after my Melphalan.
I was told to eat as much as i could before and after the SCT as I would not want to eat after it. I also suffered a lot from the wretching wanting to be sick but wasn't sick but the anti sickness pills help a great deal. I also could not drink enough water so asked…[Read more]
tom replied to the topic Keep Calm & Carry on in the forum Treatment 12 years, 6 months ago
Hi Dai
Its a bugger all this tem up and down but am same as you throw some more water down my neck and a few citemols and soon brings my temp back to normal 😀
Good Luck for the "Normal" before Monday 😎
Keep Kool and keep Calm
Tom "Onwards and Upwards"
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim
Oh dont do shopping lol hate it with a passion.
I was told to buy "Tight" Clothes as you dont have to Iron them Lol.
Slim will soon get better but it wont be next week I was a while before I knew I was better but stick with it and dont expect it too soon.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic DT PACE in the forum Treatment 12 years, 6 months ago
Hi Paul
Sorry its not worked out SO FAR am sure we will have more bridges added as time goes on, stick with it and stay strong
and fingers crossed 🙂
Tom "Onwards and Upwards"
tom replied to the topic UPDATE ON MICHAEL in the forum General 12 years, 6 months ago
aww Sue I am sure its hard for you folk that are erm on the side lines and having to leave us MM folk alone to all the treatment, its a sad thing but it has to be done anm afraid.
You Time is somthing you want to do but cant because you wory too much about Michael.
Hope all is soon sorted out
Love and Hugs to you Both
Tom "Onwards…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim
Am sure Eliz will cope re the washing machine as my Young Bride has coped for over 36 years with a mere Male not able to use a washing machine? I fix it when its broke (if poss) and drag it out and take to the skip if i cant fix it so all I ask is the Young Bride is able to use it lol, and to be fair am same with…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim
Well Eve this post made me Lol (its just like having a baby lol)
And as for the water good lord I did struglle to drink the amount they wanted me to and the drip for me was far better, yep it was a struggle to unplug wrap cable up and find a FAST way to the loo (failed many a time but hey ho it gave my nurses a laugh to see…[Read more]
tom replied to the topic Keep Calm & Carry on in the forum Treatment 12 years, 6 months ago
Now aint I said that before The "You can do it Dai, if anyone can then its you" and am as pleased as punch that you have proved me correct, way to go Dai Onwards and Bloomin Upwards, am sure you have more of the "Whatever it takes" in you than I have and I aint gonna let it take me without the Fight.
Keep strong Dai and keep fit 😎
(shed a…[Read more]
tom replied to the topic Bence Jones protein in the forum General 12 years, 6 months ago
Hi Graham
Sorry you are not getting on well with your Dr 🙁 but i think that MM might scare them (i know tel me about it lol)
But I am blessed with a Consultant that told me I dont need to go to the Dr for MM if I feel I have a problem I just have to phone the Ward up for advice or help, and that is what I have done.
Good Luck on your…[Read more]
tom replied to the topic Race for Life completed and photos attached in the forum General 12 years, 6 months ago
Hi Sarah and Henry
Well done on doing the race for life, I remember my young Bride (Elaine)doing it the year after she had her op for breast cancer and the year i was told I had MM it was a very emotional time seeing the Number on her back with the words "I race for My Husband and Myself" gosh i can feel tears as I write this bugger…[Read more]
tom replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 12 years, 6 months ago
Hi Antoinette
Hey am Sorry you are teary 🙁 go my way girl (it works for me) cry in shower you dont notice so much and more important I felt that if I have this MM it wont take me so I told my Consultant I dont want to wait (he did say we could pospone treatment) and i want to throw whatever he could while I was still young and fit (ish lol)…[Read more]
tom replied to the topic Newly diagnosed Monday at only 39. in the forum Newcomers 12 years, 6 months ago
Hi Antoinette
A Warm welcome to your site :-D.
Sorry you have got MM I was told in 2009 had 5 courses of CTD then stem cell transplant December 2009 am now in remission and doing well, am a iccle bit older than you am 56 soon to be 57 😎
The Harvest and return of my Stem cells was all done through my Femoral line, and to be honest all…[Read more]
tom replied to the topic starting treatment in the forum Treatment 12 years, 6 months ago
Hi Jean and Frank
I can Copy what Deb's has said its the start to remission, and with that I wish you Luck it will happen but along they way you will feel a bit? rough, fingers crossed that you go through it as well as I did 😀 uphill but with a smile 🙂
Love and Hugs
Tom "Onwards and Upwards" xx
tom replied to the topic VELCADE SIDE EFFECTS in the forum Side-effects 12 years, 6 months ago
Hi Eve and slim
Well I for one (as a mere male) feels real sorry for Slim and his cough cough problem.
Onwards and upwards Tom xxx see the thought of it made me writ the end back to front lol xxxx
tom replied to the topic Revlimid Failed in the forum Treatment 12 years, 6 months ago
Hi Gill
Trust me girl we wait for no apologies from you 😎 and am sure our moderators understand the words sometimes need to be said to vent our frustation I for one aint got a problem with it 🙂
Love and (((HUGS))
Tom xxxx
tom replied to the topic Another relapse? hope not! in the forum General 12 years, 6 months ago
Hi Keith
Well I have my fingers crossed for you also and lets hope its just a blip M8
Tom "Onwards and Upwards"
tom replied to the topic starting treatment in the forum Treatment 12 years, 6 months ago
Hi Jean and Frank
Well its here now and am sure you will get through it.
Advice? ? well take it one day at a time and rst when The body tells you yes Jean you because as the "Watcher" its hard too so both of you take it easy no rush for anything and it will all fall into place 🙂
Good Luck in the road to Remission.
Love
Tom "Onwards…[Read more]