tom replied to the topic Velacade in the forum Treatment 13 years, 8 months ago
Hi Nicola,Micky and the "Dick Head"
Love the name your Dad gave it lol, and am pleased you Micky are having a bit of a treatment rest we all need one or two of those in the fight of the "Dick Head" (could be a film name that lmao)
Wish I lived near you all as that bowl of trifle sounds great (aint had that for years and years)…[Read more]
tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 13 years, 8 months ago
Hi Kay
What a roller coaster for you 🙁 and isn't it great to be told you have rheumatoid arthritis 😀 well it is better than bloomin MM in our bones 😎 and Kay if your pleased am pleased good luck 😀
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Remission? What remission? in the forum Treatment 13 years, 8 months ago
Hi Dai and Janet
Sorry to read about your loss of remission (just a temporarily loss am sure)and Dont worry Janet we all know that Dai can do it:-D
If anyone can do it your the man 😎 I know how you feel when you see your consultant looking at the screen and you notice the odd twitching.
I hope you get the treatment you like and am…[Read more]
tom replied to the topic Is it back? in the forum General 13 years, 8 months ago
Hi Amelie
Am sure you know I had a successfull sct in December 2009 and am still in remission 😀
But yes I have pain right ribs and Hips bu I have put that down to "Old age" and hard work over the years putting a strain on iccle ole me :-/ and My Dr has confirmed that the MM is not back 😎 and I might be wrong but dont levels go up and…[Read more]
tom replied to the topic Another farewell… in the forum End of Life and Grief 13 years, 8 months ago
Dai My Condolences to you and Yvonne's family at this sad Time.
I also have seen friends pass away with Cancer that was diagnosed after I was its such a sad time.
Hope you are keeping well and Take care.
Tom x
tom replied to the topic My GP asked if I'd heard of myeloma in the forum Newcomers 13 years, 8 months ago
Hi Graham
good Luck for Thursdayay 😀
As for symptoms well I went to my GP for what I described as if somebody had rolled up a towel and pushed it under my Lower rib(left side) I was told it was either a pulled muscle or a bruised rib? and that as they say is the start 😎 Once again Graham all the best for thursday
Tom "Onwards and…[Read more]
tom replied to the topic How do you start to say good bye?? in the forum End of Life and Grief 13 years, 8 months ago
Hi Michelle
Just thought I would post and see how you are both doing? I hope Hubby is still staying strong.
Sending Hugs and Love
Tom ((())) xxxx
tom replied to the topic Just checking on how you are all doing? in the forum General 13 years, 8 months ago
Hi Gina
I for one am doing great Thank you for asking 😀 I hope you and your lovely Family are doing good? and hope the new hubby is doing as he is told (like me lol)
I know you will still miss your Mum as I do mine, My Mum "Mary Doll" was not aware I had MM before she passed away I/we did not feel the need to cause her more…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 8 months ago
Hi Micky and Nicola
Its Good to have a name for your Dad 😀
I hope you remember that you need to have some space to yourself rather than all MM problems that way you can help Micky better 😎
As for the Fund-Raising I myself have never tried it :-S and admire those that can do it 😎
Catcha Lata say Hi to Micky for me 😀
Love…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 8 months ago
Hi Nicola
Am pleased your Dad (am sure he has a name lol) is feeling Perky as Perky is Good 🙂
Tell your Dad from me Work aint all that you know 🙂 But I know how he feels I needed to get back to work to prove to Myself that am fit and healthy (now i should be so lucky he he) and now I feel as if I am near ready for packing it all in…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 8 months ago
Well done those Tabs thats great news Nicola am sure in a few days your Dad will feel much better:-D
What your Dad said during his extreme discomfort and pain am sure when all has settled he will want to fight it all the way, your dad sounds like a fighter that was just a little punch drunk, now soon he will be putting on his gloves to fight…[Read more]
tom replied to the topic Parent diagnosed last year & MM still thinks its boss! in the forum Newcomers 13 years, 8 months ago
Hi May
And a warm welcome to the group. Sorry to hear about your Mum.
Its a worry when the treatment fails But there is a lot out their that will work its trying to find out what and when it will work. I tell Elaine (my young bride) when its time to sort things out the Dr will tell us just let them sort out all hiccups as we travel the road…[Read more]
tom replied to the topic Overcoming the mental battle as a newcomer in the forum Newcomers 13 years, 8 months ago
Hi Glenn
As for pain? well I have a bit of pain but am sure it isn't down to the myeloma :-S might be just old age as all my bloods (well thats what the tell me) are Ok, only effects I had with the Zometa was a flu like symptom for a few days after getting it infused :-/
I also have a very supportive Family three grown up sons and soon to…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 8 months ago
Hi Nicola
I do hope your Dad is soon sorted I for one could not poo for some time when having treatment and its one of the worse things that hit me while under treatment, I hope its soon sorted.
Love and Hugs
Tom xxx
tom replied to the topic Overcoming the mental battle as a newcomer in the forum Newcomers 13 years, 8 months ago
Hi Glen
I wish you well in this journey I was told in jan 09 I had MM went on 5 courses of CDT (done ok ish with it) and had to pack in work due to being tired and weak had SCT in December 09 went back to work on light dutie's and all the treatment i am having now is Zometa infusions every four weeks 😀 and when that stops (soon I hope) then…[Read more]
tom replied to the topic Another new kid in the forum Newcomers 13 years, 8 months ago
Hi Heather
For me staying employed and being on Sick was for me a Goal I had, to get better and back to work to show myself I can and will do it (am a stuborn cuss lol) it warked and I went back after a year off on Light dutie's still doing those "Light Dutie's" and to be honest am getting ready for giving work up 🙁 dont get me wrong the…[Read more]
tom replied to the topic REMISSION. in the forum General 13 years, 8 months ago
Way To Go, way to go, wayyy to Goooo, that Slim and Eve, wayy to Goooo And a great BIG WELL DONE from me and the Young Bride (Elaine)
I know for you both its been an Uphill Strugle 🙁 but as I always say "Onwards and Upwards" and you two have proved it can be done 😀 well done to you and your Team 😎
As for the SCT Eve I had mine in…[Read more]
tom replied to the topic Another new kid in the forum Newcomers 13 years, 8 months ago
Hi Heather
A warm welcome to the site:-D I had my Transplant in Dec 2009 so I make that just over 2 years Post Transplant?
Diagnosed Jan 2009 went on 5 cycles of CDT then stem Transplant dec 09 but went on sick may 09 for a year back at work (Lidutiesie's) may 2010, just started doing a little bit of my old job (forklift driver/Pendant…[Read more]
tom replied to the topic New kid on the block! in the forum Newcomers 13 years, 8 months ago
Hi Chris
Well am pleased you are getting the posts 🙂
After reading your nutro pp and stuff am none the wiser Lol shamed to say I have left all that stuff to My Dr's so far and it works for me 🙂
Keep on keeping strong and its grewat that the Family Nag you when you do too much.
Catcha Lata
Tom "Onwards and Upwards"
tom replied to the topic New kid on the block! in the forum Newcomers 13 years, 8 months ago
Hi Chris
Just thought I would pop on and see how you are doing? Hope these are not going into your "Trash Can" Oh ? if they are you wont be able to read this one then will (am a silly billy)
Tom 🙂