DebGascoyne

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  • #88564

    Debs
    Participant

    I'll try to take notes Gaye and give a summary of anything interesting that comes up….bit harder for me as I don't quite understand all of the treatment stuff yet, but I'll do my best!!

    #96487

    Debs
    Participant

    Hmm, Min that is really interesting.

    I used to take 8g of curcumin a day. But then over the summer when it looked like I might be moving from smouldering to full myeloma (oh if only it was so easy to know which is which!!)and when I found that my bone marrow had gone from 10% to 50% abnormality in a year, it made me rethink. Up till then it had made me think it was keeping my paraprotein in check, but then I decided it couldn't be helping at all.

    So I have just decided to can it and see what happens….perhaps I've made the wrong decision. It's so hard with this to know what helps and what doesn't isn't it. None of the consultants seem to back it but yet so many people say it helps :-S

    I have my next check up on the 4th so we'll see whether or not my figures have got significantly worse since I stopped….if so, perhaps I'll be back on it like a shot!!

    Debs x

    #88520

    Debs
    Participant

    Oooh, I'm liking this! I love the fact that I can see what people look like….we share so much personal information, that it is just great to put names and faces together!
    Well done MMUK!!
    Debs

Viewing 3 posts - 256 through 258 (of 258 total)