Myeloma Forum | DeniseDion | Activity https://forum.myeloma.org.uk/members/Deedee/activity/ Activity feed for DeniseDion. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b73fc2344871f6ee11f514fb19a264cb DeniseDion started the topic Good morning in the forum General http://www.myeloma.org.uk/forums/topic/good-morning/ Mon, 22 Feb 2016 10:18:54 +0000 Hi all, it says I’m a newcomer but I’m certainly not, although I have not used the forum for 18 months.
My husband was diagnosed August 2011 with MM and has done very well on clinical trial of Lenalidomide, then Velcade (not so well) but has just done an amazing 27 months on Revlimid. This has given us 2 extra unexpected years…[Read more]

]]> a30ef07e95d5619ea768e88ecdc036b1 DeniseDion started the topic Good morning in the forum General http://www.myeloma.org.uk/forums/topic/good-morning/ Mon, 22 Feb 2016 10:18:54 +0000 Hi all, it says I’m a newcomer but I’m certainly not, although I have not used the forum for 18 months.
My husband was diagnosed August 2011 with MM and has done very well on clinical trial of Lenalidomide, then Velcade (not so well) but has just done an amazing 2 months on Revlimid. This has given us 2 unexpected years together.
Unfortunately…[Read more]

]]> 2d4975977e7553a81cfff6321128d3c6 DeniseDion replied to the topic New and Help needed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-help-needed#post-85209 Thu, 20 Oct 2011 22:59:47 +0100 Hi again, and thanks to Bridget and Eve for great replies.

I am getting some great advice here, I think my biggest lesson is not to panic. When I had my cancer I never panicked, but looking after Mike I tend to, is it this feeling of being a carer, and responsible for someone else, in my case I think it might well be ???

Anyway, he is doing…[Read more]

]]> cb8678686928de70777d228345958a58 DeniseDion replied to the topic New and Help needed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-help-needed#post-85203 Mon, 17 Oct 2011 21:15:02 +0100 Min
I have just read some of your posts and are humbled. I am so sorry to read your news and do wish you some time to find some peace and space.
I welcome any help from you as you have been there before me, I know I might tread in your footsteps but will not give in, will always support my lovely husband while I have him with me which I hope…[Read more]

]]> 1cb2e3d69533f705fbd2681cda421dbe DeniseDion replied to the topic New and Help needed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-help-needed#post-85204 Mon, 17 Oct 2011 21:05:24 +0100 Thanks to Min, Helen and Tom for the replies.

I do realise I am on a massive learning curve, been back into hospital today, Mike now has Oral Thrush and found that he is allergic to one of the antibiotics.
Bless him on a diet of yogourt and jelly until he feels a bit better.

Thanks for the help and advice, appreciate it.
Dee

]]> f8ae34044eca47a96710d35a665e77e4 DeniseDion started the topic New and Help needed. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-help-needed Sun, 16 Oct 2011 22:50:59 +0100 Hi
My husband was diagnosed 10 weeks ago, he is on the Myeloma IX trial with revlimid. He has been very poorly for last 6 days, had a urine infection and ended up back in hospital again last night (but bought him home) as had an allergic reaction to Allopurinol, not good again today.

I am really struggling to get my head round this and…[Read more]

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