IsabellaTring

  • keznmel replied to the topic Just got a diagnosis in the forum Newcomers 9 years, 4 months ago

    Hiya there..

    I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

    Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

    How did your appointment…[Read more]

  • keznmel replied to the topic hospital again….. in the forum Under 50s 9 years, 6 months ago

    Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.

    I hope this finds you all well – lots of love and best wishes.

    Take care Love Kerry xxx

  • keznmel replied to the topic Hospital again…… in the forum Newcomers 9 years, 6 months ago

    Hiya Wink… Thank you for your message.

    You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

  • keznmel replied to the topic Hospital again…… in the forum Newcomers 9 years, 6 months ago

    Hi Megan – Thank you for your message.

    It sounds like you have both have it tough too. I'm sorry.

    I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

  • Hiya guys….

    Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

  • Hiya guys….

    Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

  • keznmel replied to the topic Waiting in the forum End of Life and Grief 9 years, 6 months ago

    Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.

    I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

    I am so very sorry Sue…

    Thinking…[Read more]

  • keznmel replied to the topic Staging??? in the forum Newcomers 9 years, 7 months ago

    Thank you Mavis – I tend to agree I think. If you have MM..you have it regardless!

    I hope this finds you well – take care xxx

  • keznmel replied to the topic Staging??? in the forum Newcomers 9 years, 7 months ago

    Hi Eve

    Thank you for getting back to me with that. I have read lots of literature and have sort of worked it out myself ( i think). I understand the process of MM and what it all entails – I'm a bit of a researcher and send myself crazy looking up this and that! I also ask for copies of the information and always take my note book and pen and…[Read more]

  • keznmel started the topic Staging???. in the forum Newcomers 9 years, 7 months ago

    Hiya

    I was just sitting here reading some posts and I just thought I would reach out and ask about staging. We haven't been told what stage Melvin is with the Myeloma. When I asked at the last consultation, I was told that due to Myeloma being an incurable type of Cancer, they don't stage it. basically, if you have Myeloma, you have Myeloma…[Read more]

  • Hi Peter…

    You explained just how Melvin is. He said if it wasn't for the inability to work or resume normal activities due to the spinal cord compression, he would be able to live quite a 'normal' life while on the Dex. However – he suffers such a come down when he stops…like you, he feels so tired, almost lifeless. Only waking to eat most…[Read more]

  • keznmel replied to the topic Recently diagnosed in the forum Newcomers 9 years, 7 months ago

    Hi Mike

    I'm sorry that you are going through a tough time at the moment. It's my partner who is 39 who has Myeloma, and is also on the MXI trial, RCD. He is at the end of the 2nd cycle at the moment. I noticed that you go to the QE hospital in Birmingham. We live in Birmingham and Melvin will be having his SCT at the QE. What a fantastic…[Read more]

  • Hi Tom

    I have another person helping me with it all so I'm not totally on my own. Although I complain for being stressed at the moment, I feel like I need to inject all of my frustrations and emotions into something productive…if you understand what I'm saying. I may regret it, it may exhaust me but I feel I need something to focus on other…[Read more]

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 9 years, 7 months ago

    Thank you for your message Jo. People always say that I am coping really well and sometimes I agree. It may be the false smiles and 'I'm fine thanks' that I often reply when asked how I am. The way I see it – I have to cope, I have no choice. Who else is going to look after everything..Melvin and the children? Just sometimes, like now – I just…[Read more]

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 9 years, 7 months ago

    Thank you for your message Andy. It's very tough for all isn't it? Life completely changes when something like this sets up residence in your life and future. We have been referred to a Counselor individually and as a family, so our three children and myself and Melv can go. However..we haven't been yet as the Counselor cancelled the past two…[Read more]

  • Thank you Helen..what a day I had yesterday! I do feel a little better today, although my moods are all over the place. Our twin boys, who are 11 years old have gone off for a little break with my mum. Suddenly my shoulders seemed to drop. We have a daughter who is 16 and she is still home with us but she is so independent. She is revising for her…[Read more]

  • Hi Sarah Jane..

    It is my partner Melvin who has MM. He is 39 years old and like you had SMM and then one day went to the hospital to find PP levels had increased and he started Myeloma XI and also is on RCD.

    Melvin is at the end of cycle 2 and I think he has coped quite well so far. Unfortunately he isn't working due to his L3/L4 vertebrae…[Read more]

  • Hiya – I am in the process of organizing a Myeloma charity event in February 2013 and so far have got some very generous local dance acts and performers donating their time. I am wanting to do a raffle or an auction and want to approach local retail outlets and supermarkets for their support with donating prizes.

    Has anyone else had any…[Read more]

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 9 years, 7 months ago

    Hi Eve – thank you for your message. I agree with you – I am grieving and I think going through each stage slowly. Today and right now I feel angry…the denial has been with me since 2010 when Melvin was diagnosed.

    I hope you are well – take care and thank you again. xxx

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