EJBones replied to the topic Professor Cavanagh at Bart's and Pain Management in the forum General 9 years, 5 months ago
Kim,
I have just transferred to St Bart’s to Prof Cavenagh’s team from University College Hospital. I will be going back to the latter eventually, but Bart’s are leading on my donor SCT. I have had three appointments thus far and I find his team very helpful and hands on, although prepare yourself for long delays in clinic. There really isn’t…[Read more]
EJBones started the topic Work in the forum General 9 years, 5 months ago
Hello,
I have previously posted on here asking people about their employment and rights. I am 31 and I am due to have a ‘mini-allo’ in a month. When I relapsed last summer, my work would not allow me to do any work, despite offering to continue to do work (reduced hours on Work Life Balance, I am a civil servant), and said I had to wait for the…[Read more]
EJBones replied to the topic Working in the forum General 10 years, 2 months ago
Thanks Peter. Macmillan were my first port of call, and they have given standard advice about my rights under the DDA and I am obviously going through the usual channels via my work. The support centre in my hospital is very good, but it was specifically myeloma work related issues I was interested in. I believe, given my age, that it should be…[Read more]
EJBones started the topic Working in the forum General 10 years, 2 months ago
Hi,
I am 30 years old and I have had myeloma for two years. In this time, I have had two courses of treatment and and autograft last year. I relapsed at the end of June and I am now undergoing my third round of treatment before I have an allograft. That’s the plan at the moment anyway.
Until my recent relapse, I would say that I felt reasonable…[Read more]
EJBones started the topic Recently diagnosed aged 28 – EJBones.wordpress.com. in the forum Newcomers 12 years, 2 months ago
Hello,
I was am 28 and I was diagnosed with MM ISS stage II on 20 August this year at UCH after suffering from severe back pain for 3 months. My initial symptoms were assessed by my GP as a torn or pulled rotator cuff, however as the pain increased I was sent for tests and I was admitted to UCH on 14 August with a calcium level of 3.5. Whilst…[Read more]
