EJBones replied to the topic Professor Cavanagh at Bart's and Pain Management in the forum General 10 years ago
Kim,
I have just transferred to St Bart’s to Prof Cavenagh’s team from University College Hospital. I will be going back to the latter eventually, but Bart’s are leading on my donor SCT. I have had three appointments thus far and I find his team very helpful and hands on, although prepare yourself for long delays in clinic. There really isn’t…[Read more]
EJBones started the topic Work in the forum General 10 years ago
Hello,
I have previously posted on here asking people about their employment and rights. I am 31 and I am due to have a ‘mini-allo’ in a month. When I relapsed last summer, my work would not allow me to do any work, despite offering to continue to do work (reduced hours on Work Life Balance, I am a civil servant), and said I had to wait for the…[Read more]
EJBones replied to the topic Working in the forum General 11 years ago
Thanks Peter. Macmillan were my first port of call, and they have given standard advice about my rights under the DDA and I am obviously going through the usual channels via my work. The support centre in my hospital is very good, but it was specifically myeloma work related issues I was interested in. I believe, given my age, that it should be…[Read more]
EJBones started the topic Working in the forum General 11 years ago
Hi,
I am 30 years old and I have had myeloma for two years. In this time, I have had two courses of treatment and and autograft last year. I relapsed at the end of June and I am now undergoing my third round of treatment before I have an allograft. That’s the plan at the moment anyway.
Until my recent relapse, I would say that I felt reasonable…[Read more]
EJBones started the topic Recently diagnosed aged 28 – EJBones.wordpress.com. in the forum Newcomers 13 years ago
Hello,
I was am 28 and I was diagnosed with MM ISS stage II on 20 August this year at UCH after suffering from severe back pain for 3 months. My initial symptoms were assessed by my GP as a torn or pulled rotator cuff, however as the pain increased I was sent for tests and I was admitted to UCH on 14 August with a calcium level of 3.5. Whilst…[Read more]
