I have just transferred to St Bart’s to Prof Cavenagh’s team from University College Hospital. I will be going back to the latter eventually, but Bart’s are leading on my donor SCT. I have had three appointments thus far and I find his team very helpful and hands on, although prepare yourself for long delays in clinic. There really isn’t…[Read more]

I have previously posted on here asking people about their employment and rights. I am 31 and I am due to have a ‘mini-allo’ in a month. When I relapsed last summer, my work would not allow me to do any work, despite offering to continue to do work (reduced hours on Work Life Balance, I am a civil servant), and said I had to wait for the…[Read more]

I am 30 years old and I have had myeloma for two years. In this time, I have had two courses of treatment and and autograft last year. I relapsed at the end of June and I am now undergoing my third round of treatment before I have an allograft. That’s the plan at the moment anyway.

Until my recent relapse, I would say that I felt reasonable…[Read more]

I was am 28 and I was diagnosed with MM ISS stage II on 20 August this year at UCH after suffering from severe back pain for 3 months. My initial symptoms were assessed by my GP as a torn or pulled rotator cuff, however as the pain increased I was sent for tests and I was admitted to UCH on 14 August with a calcium level of 3.5. Whilst…[Read more]