[Earthangel79Participant]

Hi Rach,

I tried to private message you the other day and couldn't seem to do it either! My private email is kerrie.ruddock@nomura.com. Drop me a line when you can, would be great to talk.

take care
Kerrie

[Earthangel79Participant]

Hi Tom,

Thanks for the hugs. Glad to hear you are doing so well now. Gives me a lot of hope that one day my mum can feel like you do. I agree I think the Velcade will still be tough but im just hoping it doesn?t make her feel so down and emotional. If she can have a few good days a week as well as the bad ones that will be good.

Take care
Kerrie

[Earthangel79Participant]

Hi Rachel,

My mum is being treated at Basildon Hospital in Essex, so pretty far from Nottingham which is a shame! My mum also had a rash and terrible indigestion which made her feel sick all the time, she?s lost over a stone in weight and she?s pretty slim anyway. She was just very tearful and emotional all the time and it was very hard to see. She would get so down and in the end although I wanted her to carry on with the treatment I can totally understand why she feels she can?t. Well done to you and your Dad for convincing your mum, it can?t have been easy.

I?m really glad your mum is doing well after her stem cell treatment. I hope she gets better and better.

I?ve spent days crying too and even now sometimes it will just hit me and I think about what the future holds and how will we all cope but I guess we just will when it comes down to it.

I?m doing my best to stay positive and I know if she can get through this treatment she will realise she can have a normal life with the cancer and go out and do all the things she loves to do still. This weekend it was her birthday and it was so nice to see her laughing and smiling. She went shopping for the first time in 4 months and she burst into tears because she was so happy.

Definitely send me your email and we can keep in touch more on that. Would be great because as you say we know exactly what each other is going through.

Big hug, stay strong
Kerrie

[Earthangel79Participant]

Hi Rachael,

Thanks so much for responding. Its good to hear about someone who is doing well on Velcade. Its great that your mum?s pp levels have come down so much. I really hope it has a good effect on my mum too. I think the CDT affected her emotional state a great deal and I?m hoping the Velcade won?t as much. We are going to the hospital on Thursday to see when she starts the Velcade, I think the CDT is still in her system so might have to wait another week or two.

Take care
Kerrie

[Earthangel79Participant]

Hi Rach,

Its my first post on here. I saw your post and I just had to respond. I?m in a very similar situation to you. I?m 32 and my mum is 66 next week and she was diagnosed with MM in March this year.

When we first found out I felt like my whole world had come crashing down. I just couldn?t believe that my wonderful mum could have cancer. She?s also been so vibrant, healthy and fit. I still struggle to get my head round it some days.

She has undergone 3 months of CDT but has really struggled with the treatment. She is suffering terrible side effects and finds the tablets affect her emotionally as well and she feels anxious and down a lot of the time. She has actually asked to come off the CDT as she feels she has no quality of life. The doctor has agreed to this and she starts Velcade in a week?s time I?m just hoping and praying she copes better with this as it seems she will have another 4 months to complete.

I can totally relate to you because although my friends are good they don?t have a clue what I?m going through or how it affects my whole family. Would be really nice to talk to someone else who understands a bit better.

Wishing your mum all the best.
Kerrie

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