Myeloma Forum | EdO | Activity

EdO replied to the topic 4th treatment - velcade, dex, thalidomide in the forum Treatment

Thu, 24 Mar 2011 14:14:01 +0000

Hi minimouse,

Thanks for your post.

Just to clarify, he had a cycle of Revlimid and his FLC's came down to 250. On holiday he had the second cycle, and then picked up a pneumonia so the cycle was paused. It was restarted, but the infection resurfaced back in UK, so Revlimid was paused again. The Revlimid was then started again (cycle 3) but…[Read more]

EdO replied to the topic 4th treatment - velcade, dex, thalidomide in the forum Treatment

Wed, 23 Mar 2011 17:29:37 +0000

Thanks again, Bridget, I really appreciate your posts. Yes, his bloods are being checked and he is given certain things intravenously when necessary. His potassium is low so he takes an oral supplement.

This Friday we find out how his free light chains are; I cannot imagine they will be healthy because he went 2 weeks without a drop of…[Read more]

EdO replied to the topic 4th treatment - velcade, dex, thalidomide in the forum Treatment

Wed, 23 Mar 2011 16:09:24 +0000

Hi Bridget,

Thanks for your post. He was diagnosed with myeloma in January 2007, but he's never truly accepted that he has it.

At first he wouldn't tell anyone. Once his first treatment was successful, in summer 2007, he said he didn't think it would relapse for many, many years. Talk about tempting fate! It relapsed 2.5 years later, sadly.…[Read more]

EdO replied to the topic 4th treatment - velcade, dex, thalidomide in the forum Treatment

Wed, 23 Mar 2011 11:35:05 +0000

David – thanks for that tip, I will chase it up. Sounds ideal. Did you get yours from the hospital or from elsewhere?

Nigel – thanks for your insight and thoughts (and compliment!) My dad isn't off food by doctor's orders, he's just barely eating of his own will. It's a combination, he says, of nausea and feeling bloated the whole time, which…[Read more]

EdO replied to the topic 4th treatment - velcade, dex, thalidomide in the forum Treatment

Tue, 22 Mar 2011 17:22:22 +0000

Dear all,

Thank you for your replies, input and concern. It's great to know we're not alone.

I hope I don't bore you all with an update of where my dad is at. Here goes.

So he went into hospital 2 weeks ago with low platelets which were causing bleeding. That has now been solved by transfusions. Unfortunately, and rather predictably, he…[Read more]

EdO replied to the topic 4th treatment - velcade, dex, thalidomide in the forum Treatment

Sat, 12 Mar 2011 21:22:11 +0000

Thank you so much for your reply, minimouse.

You're quite right – until now, he's certainly been a tough old man and I don't think he truly appreciates how well he's done to respond to so many drugs (as well as infections and a fractured hip caused by a freakish accident in 2009). Sadly, despite being a very smart man he has chosen ignorance…[Read more]

EdO started the topic 4th treatment - velcade, dex, thalidomide. in the forum Treatment

Wed, 09 Mar 2011 12:44:01 +0000

Dear all,

I've been reading your informative and often inspiring messages for some time now, but this is my first post.

My father, 76, was diagnosed first with MGUS then a couple of years later with myeloma in January 2007.

He first had CDT followed by a stem cell transplant, both of which were successful, in the spring and summer of…[Read more]