Elizellen replied to the topic Some good news at long last in the forum General 13 years, 7 months ago
Great positive news, Shirley!
Long may it remain so.
Eliz
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Elizellen replied to the topic 4th treatment – velcade, dex, thalidomide in the forum Treatment 13 years, 8 months ago
Just a note about the complan type of drinks, when he is out of hospital it is possible to get those on prescription, so worth mentioning to his doctor and insisting on them being presxribed when the time comes. I think they are quite expensive to buy so thought I'd mention it.
Elizellen replied to the topic How did you come to terms with the diagnosis in the forum Carers 13 years, 8 months ago
I am so glad to hear this, Amanda!
Elizellen replied to the topic How did you come to terms with the diagnosis in the forum Carers 13 years, 8 months ago
I would suggest also ringing the Myeloma UK line to ask them about what help is available.
Elizellen replied to the topic Pain in side in the forum Carers 13 years, 8 months ago
If it were me I would get it looked at.
Elizellen replied to the topic SCT What to Pack? in the forum General 13 years, 8 months ago
Sending you and your Mum best wishes for her procedure!!
Elizabeth
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Elizellen replied to the topic Balloon Kyphoplasty in the forum Treatment 13 years, 8 months ago
When I heard about balloon kyphoplasty I hoped they could do it for me (lost about 5" and am stooped over) but unfortunately they have decided after xrays and lengthy discussions that it will not be an option for me as my vertebrae are too damaged.
I can't help thinking that if only they had looked at it at the start of my diagnosis it might…[Read more]
Elizellen replied to the topic Hi I am new in the forum Newcomers 13 years, 8 months ago
Hi Sarah
I am sorry to hear your Mum has been diagnosed but glad you have found this great meeting place on the web to discuss things with other carers and patients.
Anything you have problems with or questions or your Mum you want to ask just go ahead and post and someone will be along with a reply I am sure.
One thing that might be useful…[Read more]
Elizellen replied to the topic Keep your fingers crossed for me please. in the forum Carers 13 years, 8 months ago
Great news, Min!!
Elizellen replied to the topic Need a laugh? in the forum Off topic 13 years, 8 months ago
I was feeling a bit 'mis' this morning but am glad I logged in and read so many funny posts!!
Thanks for the chuckles, Min.
Eliz
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Elizellen replied to the topic N.H.S Cuts Laugh out loud in the forum Off topic 13 years, 8 months ago
Those made me laugh out loud, Roz!!
Thanks for brightening up my morning.
Eliz
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Elizellen replied to the topic Friendship in the forum Off topic 13 years, 8 months ago
It was so good to see a post from you Roz, and such an insightful one too!
It summed up many of my feelings and current attitude to life so well.
And thank you to the rest of you for the poems you posted.
Eliz
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Elizellen replied to the topic Treatment, at last in the forum Treatment 13 years, 8 months ago
It is great that your Dad feels able to go to work still!! I felt when on my CDT that if only my back was not killing me (collapsed vertebrae) I could have done my normal stuff, as I really saw none of the side effects that others experienced.
He might just be one of the lucky ones too!!
As long as he follows what his body wants him to do…[Read more]
Elizellen replied to the topic Hi all sorry I have not been on here in a while…… in the forum General 13 years, 9 months ago
It is great to hear how well Sam (and you) are doing, Nikki 😀
Have a lovely time in Poland and I hope you both return refreshed and ready to cope with the challenges of buying your new home and him going back to work!!
Love
Eliz
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Elizellen replied to the topic 10 week check up since STC in the forum General 13 years, 9 months ago
Great progress, David, in spite of those paraprotein numbers 🙂
Ain't it great to be told you don't need to see the consultant for that long!! Enjoy the 'holiday'.
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Elizellen replied to the topic london hospitals SCT in the forum General 13 years, 9 months ago
I second the ice cubes trick!!
I had my SCT at Bournemouth hospital and the nurses there had a stash of ice pops and lollies which they made me suck continuously over the whole infusion period.
AS I don't eat sweetened things on the whole it felt a bit weird to eat all those sugars (half a dozen ice pops plus about the same quantity of…[Read more]
Elizellen replied to the topic knowing when to shut up! in the forum Off topic 13 years, 9 months ago
What a great picture, David!!
I have saved it to use in another forum. 😉
Elizellen replied to the topic Excercise for over 50s in the forum Off topic 13 years, 9 months ago
😀 😀 😀 😀 😀 😀
You got me too, Min!!
Elizellen replied to the topic I'm baaaaaaaack! in the forum General 13 years, 9 months ago
Gosh, Kevin, you have been through the wars!!
I am glad you are now back home again
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Elizellen replied to the topic Who the heck are you. in the forum Off topic 13 years, 9 months ago
Ooops!!
Thank you, Min for starting this thread.
It is nice to hear about everyone else as it makes me feel more 'normal'!!