Hi Andy
Glad to hear your doing so well. Pleased to hear that you are coping so well with Pomalidomide – I am now on cycle 24 and just can’t believe where the time has gone. I too get the dreaded cramps – even in my hands if I grip something every now and again and a few other side effects that you know about well enough. My only real downside…[Read more]

Hi Sue
I have just started round 6 sand my opinion has c one down from 13 to 3 – phew! We were getting worried as nothing else seemed to be working for me until pomalidomide was offered.

The side effects are very little now it’s. into my system – in fact, the Dec is far worse!

Hope your ‘pp. comes down SOON

Love Carol xxx x

Welcome Anne
Sorry to meet you this way way-it takes a while to sink in but I hope it encourages you to know that many of us have enjoyed some success in battling this stupid cancer.I myself was diagnosed in 2005 and although I'm not as active active and sporty as I was I'm still kicking!
This is a great site with lots of nice people who are…[Read more]

Hi Christine
So sorry that things are rough but HOPE this helps. My act failed in Oct last year with a horrific 97% but they have finally got it down down with PAD.We have just been told that they are abandoning any further idea of a second act as I don't Ha ve enough stem cells so as am starting a low "consolidation" course of velcade on…[Read more]

Hi Terry
I have only just seen your post because I have been "out of things" for a while – chemo etc. getting ready for the second transplant having had the same rotten news as yourself. I don't blame you for being bitter but at least they found it early – mine seems to have becomr non secreter (not sure if that's exactly right)so the urine…[Read more]

Mari
As I explained to Nettie I am about to undergo my second transplant and your experiences and knowledge have encouraged me greatly to go ahead with a bit more confidence.
Many thanks and good luck to you both.
Carol xxx

Hi Nettie
I too am having to make the decision to go ahead with a second transplant – I was in remission for about 18months followin the first. Having read your very helpful personal experience I feel so much more confident in going ahead with my second procedure. I struggled greatly during and recovering from my first transplant which is…[Read more]

Thank you so much for your lovely message – I'm sure you know just what a real difference it makes.
You are right – I will be out on Harry again in a few months and we will have forgotten all about chemo.
love Carol xxxxx

Hi Eve

As you may have read I am feeling better now after starting treatment and meeting my Macmillan nurse – as our pals say on here "onwards and upwards" but I am sure I wouldn't have felt as relaxed and positive as this withoutall the support received from the kind friends on here.
love and a big thank you hug.
keep well love Carol…

Thanks Megan
I'm feeling much more positive now we have got started with things. Also I have met my Macmillan nurse for first time and feel as if I can ring someone with queries without bothering doctors with little things.
love and a hug
Carol xxxxx
😀

🙂 Thank you for your lovely message – just knowing people take the time to write when they are struggling with this themselves makes such a difference
Love Carol xxxxx

Hi Liz
Thanks for that – it realy does help to know that people understand as,it's not always easy to be 100% honest with family and close friends.
Treatment going well so that's a big relief although I don't knoe if it's working yet!
love Carol xxx
😀

David,
Just to let you know that after 2 weeks of treatment it's not as bad as I thought it would be even though it's early days. Am feeling much more positive after so many kind messages – they really have given me a lift!
Best wishes
love Carol xxxxx

Thanks Joe
Lets hope you continue and have a good long run!!!
Thank you so much for the kind thoughts it has really helped me accept everything and just get on with it – there are such lovely people on this site.
Best wishes,
love Carol xxxx

Thanks Charlotte
Have cheered up a lot now after all the smashind messages.In fact, I feel a bit of a wimp when I think I have at least had a year off aggressive treatment when so many people are so ill and still waiting for doners etc.
Anyway treatment going better than thought it wouldbe sofarso good!

Love and many thanks for the"cheer"…[Read more]

Hi to you all
Thank you so much for your very kind thoughts – much appreciated. I knew it was back really by the fatigue and pain levels but we always hope for the best don't we?
Had Hickman in yesterday and will start chemo (PAD) on Monday so may not be on 'air' for a little while!

Best wishes to you all and fingers crossed that we don't…[Read more]

Hi & Thanks so much Helen

As you can probably tell by the time of my reply I am on DEX and wide awake and twitchy!
Keep well you too.
Love Carol xxxxxx

Hi Joe
Many thanks and lets keep thinking that yours is going to go on for years to come so relax and enjoy!!
I have heard from a lady in America who was diagnosed thirteen years ago and is still going strong, so it does happen.
Take good care of yourself
Love Carol xxxxxx

Hi Keith
Many thanks for the prompt reply – especially when you are going through the mill at present and over past years.
The general information is great but I suppose just hearing from someone in a similar position helps me to treat the situation in a calmer fashion too!
I'm very reticent about another transplant as mine didn't go too well…[Read more]