Welcome Rosie
Wow! you sound as if you are a real seasoned campaigner – after going through so much I can understand how you might not want to go through another STC – not much fun I do agree.

Glad to hear your coping with everything in such a brave and positive way – you must have picked up lots of information and experience along the…[Read more]

Hi Vicky – that´s the very question I would like to know the answer to.
I have decided that because the cancer didn´t develop fully until I was 52 after my stem cell transplant in February it might take another 52 years to come back again!!!! (Well one can dream).
Please let us know if you do get an answer.
Cheers
Carolxx

No Problem Gail I think your very brave to be coping so well.
Take care of yourself too and try and have a little treat every couple of days – even if it´s only a chat with a girlfriend or doing your nails!
Love Carol
xxx

Hi G
So sorry you had to join us but there are lots of good people on this site who have lots of experience of just about every emotional and practical aspect of coping with MM.
It´s nice to know that you can always come on here and ask/say the things that maybe arn´t quite so easy with family and friends. I really have found it a real s…[Read more]

Hi and a warm welcome to you both, although I´m really sorry that you had to join us.

Your quite right to be positive there are lots and lots of new and exciting things coming on line and much more developing.

I had my sct last February 2011 and I won´t say that recovery has been quick I am certainly improving all the time. Today I have b…[Read more]

Thank you so much Eva for letting us know.

Could you send her lots and lots of love and best wishes and let her know we shall be thinking of her over the next couple of weeks and sending cybernet "hugs". Hope all goes well as possible

Love Carol xxxx

Hi everyone 🙂

I do hope you will understand if I say a big blanket THANK YOU for the lovely replies I have received. I have tried to find all those who have contacted me apart from Andy (will try today). I don't seem to be having too much luck but have to admit it could be that concentration is not really up to much as I am struggling to…[Read more]

Hi Helen

Having been through exactly the same as you last February I really do sympathise – the treatment really does dry your skin out and the lines look as if they are there to stay. However, I can honestly tell you they will go away but you might have to work at it a bit.

I felt very frail in myself but I did try to eat as well as…[Read more]

Hi Eve
Have been lucky enough to spend the odd few weeks in Spain when well enough so have not been as active on the website as before.
Now I am back home I will keep popping in.
Hope you are keeping well and things are not too bad.

Best wishes
Love Carol xxx

Hi Tony

Thank you for your lovely reply – yes will certainly stay in touch – please let us all know how you are getting along.
If you need any practical advice or just need to talk there are some lovely people with lots of experience on this website. I found at times I had questions that seemed either too ´silly´¨ or plain daft to ask my me…[Read more]

Hi
Just wanted to welcome you to the site although I am so sorry that you have had to find us because of bad news about your nan.
She is so lucky to have you and I get the feeling that once you have had time to absorb some of the shock you are quickly going to find your way around all of the information that is available to us.
I know it is…[Read more]

Hi
Only just catching up with posts but wanted to say a belated welcome.
Hope you are both coping and coming to terms with everything (and there is such a lot isn´t there?).
It has been such a relief to be able to talk to people in the same boat – they are so supportive and sensible that it makes even the most difficult times seem much…[Read more]

Hi Kirsty

Sorry that I am only just catching up on the latest news on the site and so didn´t welcome you earlier. Anyway, hope things are sinking in a bit now and that you are being well looked after.
Keep calm about the transplant (easier said than done I know). As others have said not pleasant but mostly it´s just tiring and you will be v…[Read more]

Hi Jean

I know how worrying this can be but can only hope that they are sorting things out for you about the scan.

I don´t have much else to add but just wanted to know I wish you well and hope things improve soon.

Love Carol xxx

Hi David
Just read your good news and am so pleased for you – phew what a relief! I bet you feel like a new lease of life has begun.
Thank you for letting us all know and so good to hear that you are not in pain. Long may it continue!
Best wishes
Carol xxxx

Hi Tony
Just wanted to send a word of welcome although so sorry we have to meet here.
You must feel pretty rattled at present so hope this helps. I was diagnosed many years ago (2005) and after chemo and stem transplant last year I am now doing really really well.
Keep calm, keep your chin up – I was on the myeloma trial too and it does ensure…[Read more]

Hi
Just wanted to welcome you to the site although sad for you and your Dad that you have to be here.
Hope things improve soon.
Thinking of you and hoping for the very best.
Love Carol

Hi Caz1
Sorry to have to meet you here but did just want to say Welcome!
Boy, you really are having a rotten time of it all at once and must be having quite a lot of pain.
Hope the chemo goes well and your leg mends quickly too.
Thinking of you
Love Carol xxx

Hi Janet
So sorry to hear your news – we all dread it and wonder how we will react when it comes.
Things have changed so much in five years and perhaps you could try lenalidomide or velcade – there are quite a lot of new things now.
Anyway, you try and look after yourself and make an appointment to ask your ever growing list of questions . I…[Read more]