The side effects are very little now it’s. into my system – in fact, the Dec is far worse!

Hope your ‘pp. comes down SOON

Love Carol xxx x

As you may have read I am feeling better now after starting treatment and meeting my Macmillan nurse – as our pals say on here "onwards and upwards" but I am sure I wouldn't have felt as relaxed and positive as this withoutall the support received from the kind friends on here.
love and a big thank you hug.
keep well love Carol…

Love and many thanks for the"cheer"…[Read more]

Best wishes to you all and fingers crossed that we don't…[Read more]

As you can probably tell by the time of my reply I am on DEX and wide awake and twitchy!
Keep well you too.
Love Carol xxxxxx

Sorry to be a bit glum but I am trying to be really positive at home but know I can be honest on here – after being in remission for a while my specialist tells me it is back and is putting me on PAD. I had three units of blood today. will have platelet treament and Hickman line in on Wednesday and hope to feel much stronger by…[Read more]

I was diagnosed in 2005 and didn´t neet treatment for five years during which time they monitored me and helped with the anemia. I have had chemo and stem cell transplant during the last two years and…[Read more]

Just a quick message to let you know that we are thinking of you both and just hoping that Ivan "turns the corner" soon. As everyone keep saying we really all different and my husband remember well the panick setting in as day 28 in isolation, feeling rotten and having constant infections conditions with absolutely no improvement in…[Read more]

Take good care

Very best wishes

Carol xxx

Take care and very best wishes

Carol

I remember that feeling of limbo very well. I think a lot of it was shock in my case and I used to feel sick with worry for a week before every appointment with my specialist – as things settle down though and we got to learn more and more about what was going on we got into the routine and things seems less chaotic.
Please don´t…[Read more]

I was diagnosed with smouldering myeloma in 2005 and did not require treatment (other than for anemia) until 2010. After chemo and a stem cell transplant I am still getting stronger every week and am now…[Read more]

Sorry you have had to join us but a very big welcome to you (and your supporters). I´m sorry that I don´t know anything about carrying etc. but did just want you to know that I was diagnosed in 2005 at age 54 and after chemo and a stem cell transplant I am still horseriding and have just come in from painting the outside of the h…[Read more]

I don´t have any experience of withdrawal but will keep my fingers crossed that you don´t have any!

Hope all continues as well as this and better!

Best wishes
Love Carol xxx

So sorry that we have had to "meet" you like this and that you are having such a difficult time.
I do hope that things get a little bit easier for you soon. I think you will find this site very helpful and the people are very kind and understanding. Talking to other patients who understand the condition and the ups and downs…[Read more]

Sorry your having such a poor time of it. Letes hope that your meeting goes well with Dr Jackson.

Just a suggestions but I bought a back support belt (only the cheap 6.99 version) from ebay which has helped me a great deal. It has little magnets for the small of your back but I´m really not sure what they are there for. Anyway, it…[Read more]

Thanks so much for taking the time to reply when I know your feeling under the weather.

Sorry your feeling tired and missing some hair but one thing ALL my team said in St James´s was that they were always quite pleased to see these side effects and the more severe the better (especially the hair) as they found it happened when the…[Read more]

Just hoping that things are going a little better and that your not feeling too rotten.

Thinking of you lots with fingers crossed for you both.

Best wishes

Love Carol xxx

I think you must be very much like your lovely Mum and I know for sure that she is very proud of you. Keep listening as I know she will keep…[Read more]

Glad to hear that slowing down is helping. I don´t have to go out to work now but I do look after quite a big house and two VERY big horses. My husband is…[Read more]

I am really sorry that I have to welcome you to this site – but a very sympathetic hello anyway.

I understand that you are absolutely shocked to your core but you have found here a very good site where you will find lots of the information, help and support your going to need.

If it helps, I was diagnosed with this rotten…[Read more]

Glad to hear your coping with everything in such a brave and positive way – you must have picked up lots of information and experience along the…[Read more]

Your quite right to be positive there are lots and lots of new and exciting things coming on line and much more developing.

I had my sct last February 2011 and I won´t say that recovery has been quick I am certainly improving all the time. Today I have b…[Read more]

Could you send her lots and lots of love and best wishes and let her know we shall be thinking of her over the next couple of weeks and sending cybernet "hugs". Hope all goes well as possible

Love Carol xxxx

I do hope you will understand if I say a big blanket THANK YOU for the lovely replies I have received. I have tried to find all those who have contacted me apart from Andy (will try today). I don't seem to be having too much luck but have to admit it could be that concentration is not really up to much as I am struggling to…[Read more]

I don´t really think I am using it properly either but just thought it was worth asking.

Best wishes all

Carol xxx

ps I am on Facebook just look up Carol Bradley and I live in Halifax

Having been through exactly the same as you last February I really do sympathise – the treatment really does dry your skin out and the lines look as if they are there to stay. However, I can honestly tell you they will go away but you might have to work at it a bit.

I felt very frail in myself but I did try to eat as well as…[Read more]

Best wishes
Love Carol xxx