Good morning all had a good nights sleep first in weeks,thanks Tom for your posts and I am having a rest today Craig is working from home to keep me under control ha ha,love Etta

Hi all back home collected 2.1 yesterday and 2.6 today doctor said that was good.
My nurses were lovely,thought I might have to stay in as my leg started to bleed heavily but stopped after more bed rest and pressure. Thanks for all your kind words love Etta

Still here ended up going to theatre to have lines put in my groin,
As the machine started to drag and my veins were getting tired.
So I think I might have an over night stay.love Etta

Hi Tom, Eva and Teresa,
Thanks for all your replys just getting ready to set off to Blackpool vic now.
Fingers crossed the injections worked there magic.
Love Etta

Hi Tom
Thanks for the reply at least I know it's normal so no pain no gain.
Etta

Hi Stephen,

glad to see things are going well. Nice to here what to expect when Etta goes in soon, I will have to start grabbing some music together to get her through the days.

Keep your spirits up, it will all be worth it in the end!

Craig & Etta

Thanks for that Stephen, really useful info there.
Etta had her day of chemo last Friday and we did our first mobilisation injections tonight. Had a bit of a shock when the nurse rang up the other day to check the dose and told us it was 3 a night not one!
Thankfully all went well (we hope so anyway), only another 12 to go until we head back to…[Read more]

Hi Gail,

I, like the others, know what your going through. My wife was diagnosed July last year and started on the trial late September.
It's not easy to see the person you love become moody, not eating, irritable, and seeming to waste away in front of you.

Don't take things to heart when they say things to you that you think hurt, it's not…[Read more]

Hello all,

Been a while since I have been on, Etta checks the forum more than I do now (she's pinched my iPad off me too!) but she's still a bit shy about posting I think. 🙂

Just to give folks an update. She has been off her chemo now for a month with her levels at 22 ( I presume this is her para proteins?). Just had another bone marrow…[Read more]

Hi Lyn,

I care for my wife Etta and as many of the others have said, it's not easy and there are times when you wonder how you will cope.

Me and Etta are very close and I've found the best way is to be honest with her about everything. There came a time with her treatment were she was practically a pill popping zombie and it was breaking my…[Read more]

At the moment Eve not getting a blooming penny!

The DSS came out in November for a home visit and basically said she has to be ill for 12 weeks before we can claim for anything. Then we have to prove that she is going to be in the same (or worse) condition for at least 6 months from then!

Basically he said don't hold out any hope of any…[Read more]

Seems like ages since I've been on here but had lots to do to keep me busy!

Etta is doing fine at the moment, slowly getting her strength and sense of humour back. She's eating a lot better now and her muscles are returning (damn those steroids!).

They arranged for a wheelchair for her as at the moment she's walking with a frame, but still…[Read more]

Thanks Bridget and Tom,

It's been one of those years were we seem to have lost a few family members, the kids emigrating and then this and I think it all got too much for her.

She's had a "chat" with someone and they're giving her something to ease her anxiety.

We saw her Doc today who's giving her a break from everything until the new…[Read more]

Blimey it's been a while since I had time to get on!

Just to keep you all updated, Etta has had a rotten time of it over the past couple of weeks. Her legs got extremely weak to the point she couldn't get out of bed. We finally got a physio referral and they came out to give her exercises to help strengthen them.

Unfortunately, 3 days later…[Read more]

Hi Jim and welcome,

Sorry about the delay, been a bit hectic this past couple of weeks!

My wife got diagnosed late August and she too is on the XI trial on CDT up in Preston. The levels are coming down every time we get checked (just starting the third cycle this week), so that's good. As everyone has said its pretty individual as to how…[Read more]

Hi Sarah and Henry,

My wife Etta is going through the same thing at the moment but she's a few cycles behind you (just starting her third). She's finding it a bit hard going on the CDT treatment though as its leaving her very weak and she's sleeping lots.

They've told us to expect 6 cycles before the SCT so I'll be keeping an eye on your…[Read more]

Thanks Eve and Bridget.

We've not had any contact with the Macmillan nurses yet, something that the district nurse was going to chase up for us. It's good to know that they are there to help sorting out the financial side for us as that's a worry at the moment.

We've been relying heavily on family and me taking days off at the moment but I…[Read more]

Good morning all,

Just to give an update. After being bed bound for 2 weeks (we had to get the doctor out who said she was just exhausted with not sleeping, so she gave her some sleeping tablets) we went to see our consultant today.

Good news the count is down from 1176 to 200. Over the bleeding moon! Doc was very pleased, a bit concerned…[Read more]

Me again (and yes Debs it's Craig),

Well I think she's finally past the flu stage, it's been a yucky week for her feeling very drained and tired but not able to sleep. She says she feels very "shaky" inside, just managing catnaps throughout the day.

On the plus side towards the weekend she's been sleeping better, but only when I'm next to…[Read more]