Congratulations on your 50th and well done you for raising the money for myeloma.
I hope you cope well on this journey, and as you say the forum is off some help to us all in different ways . Regards Etta

Hi so sorry to hear your dad has passed.
Hope you have friends and family to see you through this sad time.
Regards Etta.

Hi Stu, sorry you have had to join our group but welcome!

Everyone on here is very friendly, please don’t be afraid to ask for help or ask questions (no matter how daft they might sound) and don’t be afraid to cry, we’re all going through it.

Hope all goes well with the Chemo tomorrow, I know it might be hard but try and keep as active as you…[Read more]

Dear Sarah
So sorry that mark has passed my thoughts and prayers are with you god bless.
Etta x

Hi Veronica,

I had my SCT in 2012 and this year since about February I have been having severe bone pain in exactly the same place, also I get bad cramps in my legs which my consultant has given me Quinnine for.
I’m going to see him again in July, so hopefully will get some answers, as last time I mentioned the bone pain he didn’t seem to be…[Read more]

Hi Vicki and Colin I have been insured twice by world first for travel to oz first was only 3 months after stem cell transplant, was under 300 for two of us for 5 weeks cover. And second time they have given us a yearly one even cheaper. Hope this helps regards Etta

Hi Georgie I too was feeling very low at the beginning of my treatment and lost all power in my legs for nearly 6 months.
I am back walking again not as fast or steady as I used to be I am 56 and felt very frustrated and wasn't able to cope for quite awhile then I was given the citrolapram and take one at night which I feel helps. Hope this helps…[Read more]

Hi Karen firstly welcome a great site for any info you may need,
Every body is really friendly and all have different stories to tell.
So if there is any questions to ask your in the right place.
Regards Etta .

Hi firstly welcome sorry your husband is having a lot of pain. I to thought the worst when my arm and shoulder started aching,but I have started some physio and if it doesn't work they are going to unlock it with key hole surgery.
Try not to let it niggle at you I know my husband worry s about me hope you get an appointment soon.
Regards Etta .

Hi liz I went to Australia last dec 3 months after SCT my doc gave me a course of antibiotics just in case .
First flight slept most of it second one kept drinking water, stewardess were great gave me large bottles.
Just relax and enjoy love Etta ..

Hi Tina
I have also started on revlimid and aspirin on Monday and hoping for a long remission,I was told I will be on it as long as my bloods don't go low hope you have a long remission Etta ..

Hi Ali that's great news about your mum. I hope my news is the same I go on the 27 of this month for my 100 day results.
Then off to Oz on the 7th dec ,hope you and your family are all ok and here's to a better year.
Love Etta x

Hi min lovely said I found a lot of my friends stopped calling when I told them about my illness.
It hurt at first but then you just get on.
last Christmas I thought my time was up and friends and neighbours just said they didn't want to visit in case they upset us.
But they didn't understand that hurt more.
Thanks for your post I'm sure this…[Read more]

Hi Helen,

The nurse is going to send me some paperwork out for me to read through regarding it. She mentioned she would ring the trial research people and find out if required that I could start it when we got back so I will have to wait and see what happens there.

The only thing I find confusing is how they are certain I am going to be…[Read more]

Hi Ali,

I mentioned to them early in the year that I was going to Oz, and again last week when I went to see my consultant.
Nobody has mentioned that I have to get any more vaccinations though. In fact he even asked about the flu jab, and I told him that Blackpool (who did the stem cell treatment) mentioned not having live vaccines so he's…[Read more]

Hi Mavis
The nurse phoned this morning as I was a bit concerned about starting more treatment,not knowing side effects the tablets will have.my 100 days aren't up until 28 nov and then I go on holiday on the 7 th dec for five weeks so I don't want to start anything until I get back. The nurse said she will send some info to me as the side…[Read more]

So sorry to hear this sad news thinking of you god bless Etta

Hi Tom
Etta hear just saying hello this is the second day I have felt good since coming home.
Thanks for your reassurance and advice.
Love Etta