Myeloma Forum | EttaHamill | Activity https://forum.myeloma.org.uk/members/Etta/activity/ Activity feed for EttaHamill. Sat, 11 Apr 2026 12:16:26 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5ae852adcf668e34f73a18bcd1b2d9b0 EttaHamill replied to the topic 50th Birthady Myeloma party fund raising in the forum Off topic http://www.myeloma.org.uk/forums/topic/50th-birthady-myeloma-party-fund-raising/#post-122831 Mon, 29 Jun 2015 15:50:17 +0100 Congratulations on your 50th and well done you for raising the money for myeloma.
I hope you cope well on this journey, and as you say the forum is off some help to us all in different ways . Regards Etta

]]> 5ff3eb5e3ea450c15e80e388daacedb1 EttaHamill replied to the topic Sad news in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/sad-news-2/#post-118159 Wed, 17 Sep 2014 08:31:56 +0100 Hi so sorry to hear your dad has passed.
Hope you have friends and family to see you through this sad time.
Regards Etta.

]]> cf9103411a453f4f145989274ccbe170 EttaHamill replied to the topic Another new member in the forum Newcomers http://www.myeloma.org.uk/forums/topic/another-new-member-2/#post-117676 Mon, 25 Aug 2014 09:13:42 +0100 Hi Stu, sorry you have had to join our group but welcome!

Everyone on here is very friendly, please don’t be afraid to ask for help or ask questions (no matter how daft they might sound) and don’t be afraid to cry, we’re all going through it.

Hope all goes well with the Chemo tomorrow, I know it might be hard but try and keep as active as you…[Read more]

]]> 578431ea6f257a19a81aadccdca8d6af EttaHamill replied to the topic Life in all its fulness in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/life-in-all-its-fulness/#post-116947 Tue, 22 Jul 2014 09:38:40 +0100 Dear Sarah
So sorry that mark has passed my thoughts and prayers are with you god bless.
Etta x

]]> 31a2352a30495fa350e89e5cabfc76bf EttaHamill replied to the topic bone pain in the forum Related conditions http://www.myeloma.org.uk/forums/topic/bone-pain-3/#post-116314 Sun, 29 Jun 2014 19:00:38 +0100 Hi Veronica,

I had my SCT in 2012 and this year since about February I have been having severe bone pain in exactly the same place, also I get bad cramps in my legs which my consultant has given me Quinnine for.
I’m going to see him again in July, so hopefully will get some answers, as last time I mentioned the bone pain he didn’t seem to be…[Read more]

]]> 69066fcd0fa4d49fecf5e6caa7655ecf EttaHamill replied to the topic Travel insurance in the forum General http://www.myeloma.org.uk/forums/topic/travel-insurance-2/#post-112963 Fri, 14 Feb 2014 19:58:47 +0000 Hi Vicki and Colin I have been insured twice by world first for travel to oz first was only 3 months after stem cell transplant, was under 300 for two of us for 5 weeks cover. And second time they have given us a yearly one even cheaper. Hope this helps regards Etta

]]> 50ec524d1e6e92927031946d1af218e3 EttaHamill replied to the topic CTD and depression in the forum General http://www.myeloma.org.uk/forums/topic/ctd-and-depression#post-95253 Thu, 16 May 2013 14:51:15 +0100 Hi Georgie I too was feeling very low at the beginning of my treatment and lost all power in my legs for nearly 6 months.
I am back walking again not as fast or steady as I used to be I am 56 and felt very frustrated and wasn't able to cope for quite awhile then I was given the citrolapram and take one at night which I feel helps. Hope this helps…[Read more]

]]> 2c89363702ca74e21ec52848c7e7093f EttaHamill replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-i-am-new-to-this-10-months-since-diagnosis#post-87636 Wed, 15 May 2013 20:24:00 +0100 Hi Karen firstly welcome a great site for any info you may need,
Every body is really friendly and all have different stories to tell.
So if there is any questions to ask your in the right place.
Regards Etta .

]]> 64c74f6c8c922d6736ca47222700d9bc EttaHamill replied to the topic Is it back? in the forum Carers http://www.myeloma.org.uk/forums/topic/is-it-back1367843133#post-106598 Mon, 06 May 2013 15:30:38 +0100 Hi firstly welcome sorry your husband is having a lot of pain. I to thought the worst when my arm and shoulder started aching,but I have started some physio and if it doesn't work they are going to unlock it with key hole surgery.
Try not to let it niggle at you I know my husband worry s about me hope you get an appointment soon.
Regards Etta .

]]> 4088c624f94cc4fa0ec2db36361b4543 EttaHamill replied to the topic Long haul travel in the forum General http://www.myeloma.org.uk/forums/topic/long-haul-travel#post-95170 Wed, 01 May 2013 12:41:09 +0100 Hi liz I went to Australia last dec 3 months after SCT my doc gave me a course of antibiotics just in case .
First flight slept most of it second one kept drinking water, stewardess were great gave me large bottles.
Just relax and enjoy love Etta ..

]]> a3c05921dab3ec1f1c759299773c6b5b EttaHamill replied to the topic Remission in the forum Treatment http://www.myeloma.org.uk/forums/topic/remission1358340910#post-101513 Thu, 17 Jan 2013 11:42:11 +0000 Hi Tina
I have also started on revlimid and aspirin on Monday and hoping for a long remission,I was told I will be on it as long as my bloods don't go low hope you have a long remission Etta ..

]]> b3be79ffeb0e77ffb8c005bef9b577be EttaHamill started the topic 100 day check up. in the forum General http://www.myeloma.org.uk/forums/topic/100-day-check-up Wed, 28 Nov 2012 13:54:17 +0000 Hi all had my 100 day check up yesterday all still good bloods fine Hb up.
I am not being randomised until I come back in January which I'm pleased about, as don't want any side effects and have no back up. Doc gave me some antibiotics as I have a bit of the sniffles they must have come through the letter box as I have been very careful since my…[Read more]

]]> 1dc32ff6c752d0b3d29d45460a06a4af EttaHamill replied to the topic Good news in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-news1353278449#post-100921 Mon, 19 Nov 2012 10:35:23 +0000 Hi Ali that's great news about your mum. I hope my news is the same I go on the 27 of this month for my 100 day results.
Then off to Oz on the 7th dec ,hope you and your family are all ok and here's to a better year.
Love Etta x

]]> c92172cfa2b6c8ba06866f6f4d58be9d EttaHamill replied to the topic This may help someone, in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/this-may-help-someone#post-107876 Mon, 22 Oct 2012 10:37:47 +0100 Hi min lovely said I found a lot of my friends stopped calling when I told them about my illness.
It hurt at first but then you just get on.
last Christmas I thought my time was up and friends and neighbours just said they didn't want to visit in case they upset us.
But they didn't understand that hurt more.
Thanks for your post I'm sure this…[Read more]

]]> e1a43adbfd6e5cae2eb2b54153fb69b5 EttaHamill replied to the topic 100 day SCT check up in the forum Treatment http://www.myeloma.org.uk/forums/topic/100-day-sct-check-up#post-100734 Thu, 18 Oct 2012 19:04:55 +0100 Hi Helen,

The nurse is going to send me some paperwork out for me to read through regarding it. She mentioned she would ring the trial research people and find out if required that I could start it when we got back so I will have to wait and see what happens there.

The only thing I find confusing is how they are certain I am going to be…[Read more]

]]> 184607bf7a70de86791ddf4fe102704e EttaHamill replied to the topic 100 day SCT check up in the forum Treatment http://www.myeloma.org.uk/forums/topic/100-day-sct-check-up#post-100732 Thu, 18 Oct 2012 18:56:28 +0100 Hi Ali,

I mentioned to them early in the year that I was going to Oz, and again last week when I went to see my consultant.
Nobody has mentioned that I have to get any more vaccinations though. In fact he even asked about the flu jab, and I told him that Blackpool (who did the stem cell treatment) mentioned not having live vaccines so he's…[Read more]

]]> d0e1532664d51e8e0fa156afbc29db11 EttaHamill replied to the topic 100 day SCT check up in the forum Treatment http://www.myeloma.org.uk/forums/topic/100-day-sct-check-up#post-100729 Tue, 16 Oct 2012 13:33:29 +0100 Hi Mavis
The nurse phoned this morning as I was a bit concerned about starting more treatment,not knowing side effects the tablets will have.my 100 days aren't up until 28 nov and then I go on holiday on the 7 th dec for five weeks so I don't want to start anything until I get back. The nurse said she will send some info to me as the side…[Read more]

]]> f7208f5eee8337e6a26a43ebcd46b5e9 EttaHamill started the topic 100 day SCT check up. in the forum Treatment http://www.myeloma.org.uk/forums/topic/100-day-sct-check-up Fri, 12 Oct 2012 19:05:36 +0100 I got a phone call today from the Myeloma XI research nurse to arrange a meeting for a 100 day check up from my SCT.
She then mention about going on tablets, 21 days on, a week off then back on again to keep the Myeloma at bay.
She said it was the next stage of the treatment, but nobody mentioned anything like this at the beginning.

Does…[Read more]

]]> 4498ebc1972a9d740f9e230b9220d0e3 EttaHamill replied to the topic Sad news in the forum Under 50s http://www.myeloma.org.uk/forums/topic/sad-news#post-107004 Fri, 12 Oct 2012 15:03:10 +0100 So sorry to hear this sad news thinking of you god bless Etta

]]> c92bc7bbf6a8d7642afba209ecb1c196 EttaHamill replied to the topic SCT... update in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-update#post-100349 Tue, 18 Sep 2012 13:53:27 +0100 Hi Tom
Etta hear just saying hello this is the second day I have felt good since coming home.
Thanks for your reassurance and advice.
Love Etta

]]> d79cdeb55eb8a88db32bb38dfccf0b62 EttaHamill replied to the topic Where, what etc'. in the forum General http://www.myeloma.org.uk/forums/topic/where-what-etc#post-93502 Mon, 17 Sep 2012 14:45:15 +0100 Yes tried a few times just seeing if this works.
Etta x

]]> 48f5d3729219641e13dd0ef280aad315 EttaHamill replied to the topic SCT... update in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-update/page/2/#post-100353 Thu, 13 Sep 2012 11:10:22 +0100 Thanks All, you've put our minds at rest a bit.

Helen: I think she may have a strong reaction to the Aciclovir as they affected her badly on the CDT last year and the consultant ended up taking her off them.

We stopped them after Monday and her stomach has settled down a lot, hardly any bile/wind etc so when we go tomorrow I'm going to ask…[Read more]

]]> 91c7f2eb803d236559b87f6b8144bb7e EttaHamill replied to the topic SCT... update in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-update#post-100347 Tue, 11 Sep 2012 10:24:40 +0100 Hello all,

Another big gap in the updates (I'm rubbish at this!).

Anyway, Etta got discharged last Weds (5th). A bit earlier than I anticipated but they were happy enough with her levels and the D&V had calmed down considerably.
She had been on anti-biotics for a high temp but then they found out it was an infection in her Hickman line…[Read more]

]]> 413c1dafaeff1e5c4117dba113cddc13 EttaHamill replied to the topic SCT... update in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-update#post-100344 Wed, 29 Aug 2012 16:14:16 +0100 Hello all,

Sorry I've not been on but been a bit busy tootling up and down the motorway everyday working and visiting.

All went well, just coping with the sickness and "the other end" at the moment! They put a driver in with anti-sickness stuff in after a few days as Etta was throwing up a lot. It seems to have done the trick but she's…[Read more]

]]> dc395686854a6b54d5ff524209c24e11 EttaHamill started the topic SCT... update. in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-update Wed, 22 Aug 2012 17:22:12 +0100 Just thought I'd update you as Etta has dropped off.

Day 1 was Chemo day. Big bag of the stuff and then plenty of bags of fluids to flush it all through, that was on top of the anti sickness, anti this and anti that, she lost count after a while! Anyway, not too bad throughout the day but sick as a dog from about 11pm onwards until early this…[Read more]

]]> ca950af258e020a98b0ca7d834b27b8f EttaHamill replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b#post-100176 Wed, 22 Aug 2012 16:29:40 +0100 Good luck with it, it will be worth it !

Etta

]]> 900a07abd01d623ab0d3c22e9061773b EttaHamill replied to the topic Travel insurance in the forum General http://www.myeloma.org.uk/forums/topic/travel-insurance1345471879#post-93378 Wed, 22 Aug 2012 16:26:41 +0100 We used World First for the planned trip to Oz in December.
They asked where we were up to in treatment, about antibiotics and hospital stays etc and the quote came in about £300 including cancellation cover, medical expenses and all the other stuff, and that was for both of us.
Might be worth giving them a ring to have a chat.
Etta

]]> 3e65699fd5da3f85e1e60b16946d04a9 EttaHamill replied to the topic My Mums SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-mums-sct/page/3/#post-100066 Wed, 15 Aug 2012 08:03:45 +0100 Hi Ali thanks for the post you don't sound negative at all I watched my mum go through cancer 12 years ago and I understand your views. I am 55 and my girls both live in oz so I'm glad they didn't see how bad I was at Christmas but feel better reading all your posts. Line went in ok so start my SCT next week can't wait lol.you keep strong and make…[Read more]

]]> 956dd948e7ff9c8c8c9b1c12fba5759c EttaHamill replied to the topic Good luck Tom! in the forum Off topic http://www.myeloma.org.uk/forums/topic/good-luck-tom#post-110406 Wed, 15 Aug 2012 07:51:27 +0100 Good luck Tom you will win them over with that cheeky smile.
Etta x

]]> 37e116f635e2cb6bb39c87b070194ed1 EttaHamill replied to the topic MM and Travelling in the forum General http://www.myeloma.org.uk/forums/topic/mm-and-travelling#post-93352 Wed, 15 Aug 2012 07:48:29 +0100 Hi Elfried
You have come to the right place for info I am sure the many that have been away will reassure you,
Sorry to hear you have lost your confidence but what has kept me going is the saying no pain no gain lol.
You say your feeling good now so believe and you can get that well deserved holiday good luck.

Iam having my SCT next week and…[Read more]

]]> 0f6f91ba1138b8b46c505d90809e6a04 EttaHamill replied to the topic My Mums SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-mums-sct/page/2/#post-100063 Mon, 13 Aug 2012 12:58:55 +0100 Hi Ali I have been reading your posts and that sounds good news about your mum.
I get my line put in tomorrow and go in to blackpool vic on Monday so your posts have given me an idea of what to expect.
I hope all future visit are good
Love and best wishes to you all Etta x

]]> 3b26658ac544c2127e25afc8e7618652 EttaHamill replied to the topic Feeling low in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-low#post-99971 Wed, 18 Jul 2012 14:02:09 +0100 Thanks jean and eve
It has helped me having my ramble every body is very thoughtful special thoughts to all who have lost someone
Love Etta x

]]> 4f78fc0db049ed0ced9f59464ab23755 EttaHamill replied to the topic Feeling low in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-low#post-99970 Wed, 18 Jul 2012 13:57:27 +0100 Thanks Helen my sister was old enough to be my mum,but we were best friends as well.
When we were both fit off to bingo we would go and have fun ,I hope she has met up with some old friends.
When I am fit again one of her daughters said she will take me , I think she is trying to keep my spirit's up.
I get my stem cells back in August so I…[Read more]

]]> 60d933c52790f7850c57d494ebb41a16 EttaHamill replied to the topic Feeling low in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-low#post-99966 Wed, 18 Jul 2012 11:18:39 +0100 Thanks Mari
I feel much better now spoke to eldest daughter in oz on Skype had a cry together.
So will try and keep busy today thanks again.Etta x

]]> f8f5bbbf607c467a13319274f5dbf01b EttaHamill started the topic Feeling low. in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-low Wed, 18 Jul 2012 08:52:42 +0100 Good morning all I hope all the harvester,s are going well.
I am not felling great today as I lost my older sister yesterday to the dreaded (c) we knew this day would come,but I am feeling guilty about my treatment as we went through so much together.
Sorry for being a burden but I don't want to get upset in front of her children and I think it…[Read more]

]]> 3542134ac556ca4f6c406e5323f95374 EttaHamill replied to the topic Wish Me Luck as I have in the forum Off topic http://www.myeloma.org.uk/forums/topic/wish-me-luck-as-i-have#post-110357 Sun, 15 Jul 2012 15:10:49 +0100 Hi Tom I hope you get picked you deserve to as you are friendly to every one on here,Good Luck.
Love Etta .

]]> 814871c3ce6ea02495d05e0229227307 EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell/page/2/#post-99766 Wed, 11 Jul 2012 22:41:12 +0100 Hi Tom, Craig here (she's fast asleep so snuck on)

That was the first question she asked the consultant at Blackpool when we went to see him!! Never mind the treatment plan, can I fly? LOL

He said as long as she was fit enough to travel he had no objections, I think she's determined come hell or high water that we're off down under at Xmas…[Read more]

]]> 353c502958355ff6daab9c8e7dba4531 EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell/page/2/#post-99763 Wed, 11 Jul 2012 19:28:54 +0100 Hi Mari thanks for the post I think mid August I will be back at Blackpool so all being well all off us will get good results,good luck to Stephen ,Colin and Alis mum. Love mum

]]> 67d88cfd55318b37c81318086c807dd0 EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell/page/2/#post-99762 Wed, 11 Jul 2012 19:24:27 +0100 Hi Tom they haven't given me the exact date but mid August.said the will get my local hospital Preston to put my line in.
So I will wait for that special letter coming.
If all goes well we are hoping to go to oz to see our daughters.love Etta

]]> 1cadf051182039abb4e9bcadc9b48799 EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell/page/2/#post-99758 Wed, 11 Jul 2012 09:36:06 +0100 Hi vicki and Colin.
Thanks for your message I am being very positive as I want to go and visit my daughters in oz at christmas,I hope all goes well for Colin love Etta

]]> 0f802ba1b254753a07522ca4fc2c1e39 EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell/page/2/#post-99759 Wed, 11 Jul 2012 09:31:23 +0100 Good morning all had a good nights sleep first in weeks,thanks Tom for your posts and I am having a rest today Craig is working from home to keep me under control ha ha,love Etta

]]> 51d27190ea6f04c92429388c9d9043ee EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell/page/2/#post-99755 Tue, 10 Jul 2012 19:02:47 +0100 Hi all back home collected 2.1 yesterday and 2.6 today doctor said that was good.
My nurses were lovely,thought I might have to stay in as my leg started to bleed heavily but stopped after more bed rest and pressure. Thanks for all your kind words love Etta

]]> 3551a5c38c4ee749b392b76ddea4b072 EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell#post-99750 Mon, 09 Jul 2012 16:27:34 +0100 Still here ended up going to theatre to have lines put in my groin,
As the machine started to drag and my veins were getting tired.
So I think I might have an over night stay.love Etta

]]> 28aa5332aefb55df42148239a36f0c6f EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell#post-99747 Mon, 09 Jul 2012 07:27:54 +0100 Hi Tom, Eva and Teresa,
Thanks for all your replys just getting ready to set off to Blackpool vic now.
Fingers crossed the injections worked there magic.
Love Etta

]]> 9ae0db0577e9b4062ce1711b3e5cc30b EttaHamill replied to the topic Start stem cell in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell#post-99741 Sun, 08 Jul 2012 15:51:03 +0100 Hi Tom
Thanks for the reply at least I know it's normal so no pain no gain.
Etta

]]> 3eab4be89afbf90a4e1bc05a11fa581e EttaHamill started the topic Start stem cell. in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-stem-cell Sun, 08 Jul 2012 13:47:43 +0100 Hi this is my first post, my husband joined in my name last year.
He had asked some questions and had good replys as I was very poorly then.

I started my injections for stem cell collection on wednesday 4 July and go tomorrow morning hopefully for my mobilisation. Yesterday was day 4 of my injections but I got really bad pains in my breastbone…[Read more]

]]> d37ea37dac161d3099dfbf0fd60aea64 EttaHamill replied to the topic Bristol SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/bristol-sct#post-99717 Sun, 08 Jul 2012 13:39:09 +0100 Hi Stephen,

glad to see things are going well. Nice to here what to expect when Etta goes in soon, I will have to start grabbing some music together to get her through the days.

Keep your spirits up, it will all be worth it in the end!

Craig & Etta

]]> 75c67c7de500ac8364ee2862a87a462d EttaHamill replied to the topic Stem Cell Mobilisation & Collection in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-mobilisation-collection/page/2/#post-99517 Wed, 04 Jul 2012 21:44:05 +0100 Thanks for that Stephen, really useful info there.
Etta had her day of chemo last Friday and we did our first mobilisation injections tonight. Had a bit of a shock when the nurse rang up the other day to check the dose and told us it was 3 a night not one!
Thankfully all went well (we hope so anyway), only another 12 to go until we head back to…[Read more]

]]> f343312413c269ef7a704b674ceb1642 EttaHamill replied to the topic Newbie in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newbie1336315233#post-86011 Sun, 06 May 2012 23:27:48 +0100 Hi Gail,

I, like the others, know what your going through. My wife was diagnosed July last year and started on the trial late September.
It's not easy to see the person you love become moody, not eating, irritable, and seeming to waste away in front of you.

Don't take things to heart when they say things to you that you think hurt, it's not…[Read more]

]]> fec67bcd3e231cf616b213692edb01e4 EttaHamill replied to the topic New to Forum in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-forum1317590467/page/4/#post-85148 Sun, 06 May 2012 12:44:28 +0100 Hello all,

Been a while since I have been on, Etta checks the forum more than I do now (she's pinched my iPad off me too!) but she's still a bit shy about posting I think. 🙂

Just to give folks an update. She has been off her chemo now for a month with her levels at 22 ( I presume this is her para proteins?). Just had another bone marrow…[Read more]

]]>