Hi again Tony, I am on the trial too, and go up to the Hope clinic, I agree it is much better, and seem to get seen to much quicker! One day we may bump into each other again. I know what you mean about getting tired. Keep well.

Karen x

ps, sorry I typed in the tag box, hope I have no mucked up your thread! K x

Hi Tony, I am 19 months post SCT, I had my last baby injections at begining of July, and I am on 3 monthly clinic visits, mine is 14th August. So we are pretty much the same stage. I still have morphine for back, and 6 weekly Zometta. But I drove for the first time since diagnosis the other day! There are more positives than negatives post SCT…[Read more]

Hi All, not been on for a while and have only just stumbled on this. Very interesting! I live in Oakham, 9 miles (ish) from Melton Mowbray. We live a 2 minute walk from a plastic engineering factory. Twenty years ago I worked for 5 years (North West of England) for Nuclear Electric, catering for workers, labs etc. So I could take my pick from a…[Read more]

Hi Richard, thanks for your reply. Another couple of tips in your reply about attitude and there being no point in feeling guilty. Your are right, but easier said than done sometimes eh?

Also rereading your earlier post, I must also make a point of remaining anonymous.

Regards
Karen

Hi LoisLobann and all. I have not been on for a while so I have only just noticed this. I totally identify with Alpenator’s words about realising this is it, never going to get the old me back. And of feeling guilty, I too feel very very guilty I have inflicted this on my husband, and daughters, they do not deserve it. I am also on a lot of…[Read more]

Hi Tom,
So sorry to hear this, you are always so positive and I am sure your approach to this dreadful MM, will have you back in remission in no time xx 😉

Thinking of you, good luck

Love and best wishes

Karen
xx

Hi Mavis,Tom and Eve,
Thank you all for lovely welcome. I am still finding my way around, but I kep popping back on, which is a good sign!:-)

The sun is out today, which always make one feel better.
hope all is well will you all today.

Karen xx

Hi Tony,
Just spotted this!
have to quickly reply and agree the staff are great!:-)

take care
Karen
x

Hi Michele,
Thanks for taking the time to reply. I am finding this a lovely friendly site. It is good to hear from people who know how it is. I had coffee last week with a girl from work, who said I look really well, which is nice to hear, but because you can walk etc, people think I'm cured (touch wood my kidneys have been ok this far). I am…[Read more]

Hi Mavis,
I am new on here and still having a look round. Had to reply to this and say here here, to being thankful!:-)
Take care

Karen
x

Good read, I would like to hear the interview.
Good news about Red wine 😀

Hi Eve and everyone,
I agree, the failings are definitely in the GPs. I was having treatment for some months at a private osteopath based in my surgery. He said something was amiss with my back and went to see my GP to recommend he send me for a scan. My GP refused and just kept plying me with painkillers. All this happened approx a year…[Read more]

I was in the cell directly facing the kitchen. I think I was green cups, (chemo brain me!)

On the 6th June, I am on a clinic/consultant. at 11.25! But I am at the lower level.
My infusion is 23rd May. (day ward). The day ward staff are really nice, but is it me or does it sometimes seem a bit chaotic?
Take care
Karen

Hi Jean,

Thanks for a lovely welcome, I'm just about to put kettle on. Milk and sugar?:-D

Very nice to meet you, hope to share stories and rants in the years to come.

I have been on here all night, well a long time for me anyway>:-) .

See you soon
Regards
Karen

ps I was offered the maintenance drugs on my last visit by Dave, it was a bit out of the blue, and I declined as I want to give my body a rest as it has been battered.
Not sure if i have done the right thing though.
Regards
Karen