Myeloma Forum | EvaYouren/Faber | Activity https://forum.myeloma.org.uk/members/Eva/activity/ Activity feed for EvaYouren/Faber. Wed, 22 Apr 2026 21:48:58 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b4207a37523e99cb292a3f2b36b2501a EvaYouren/Faber replied to the topic Holiday in the forum General http://www.myeloma.org.uk/forums/topic/holiday/#post-113235 Sat, 22 Feb 2014 01:03:29 +0000 Dear Maureen and Ian,
Delighted about your outing. Hope Monday goes well. Am living in London -alternating between B&B and hospital. Am about to begin 3rd course of c-Pace. Am weak but fine. I’m responding to treatment. Was even able to met a friend in an Italian restaurant for lunch today. Will possibly have second transplant. By that I mean in…[Read more]

]]> 85ee350058f960ae4d1c66399fb41ea4 EvaYouren/Faber replied to the topic SCT not worked -help in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-not-worked-help#post-102535 Fri, 17 May 2013 00:13:28 +0100 Dear Christine,
I'm so sorry about the disappointing results.
Is it time to research a mini-allo transplant? Full allos have a higher mortality rate. I think that some doctors are not keen and a patient might need to ask lots of questions. I expect they prefer to do a mini-allo on younger and stronger patients. The data from studies can sound…[Read more]

]]> fe542ee5c909cc8d96ebab163ae498dd EvaYouren/Faber replied to the topic Three steps back and thumbs up? in the forum Treatment http://www.myeloma.org.uk/forums/topic/three-steps-back-and-thumbs-up#post-102525 Tue, 14 May 2013 10:24:04 +0100 Dear Tom,
I've had to stop wearing contact lenses because of the danger of infection.
I sometimes have to use Chloramphenicol eye drops (antibiotic, not lubricant) or Chloramycetin antibiotic cream- perhaps not spelled correctly. You might need to confirm whether you're having an allergic response to something as well that's affecting your eyes.…[Read more]

]]> 5e6f12111ebf8531cf9fd09587505f33 EvaYouren/Faber replied to the topic Three steps back and thumbs up? in the forum Treatment http://www.myeloma.org.uk/forums/topic/three-steps-back-and-thumbs-up#post-102520 Tue, 14 May 2013 09:17:56 +0100 Dear Helen,
Good luck with your treatment. I still suggest some lubricating eye drops from an optician to be used a day after Velcade when the eyes can start drying up, lots of moisturiser for your hands, perhaps an antibiotic in the house if you get an infection late at night if your consultant agrees to have one waiting for you. When I was on…[Read more]

]]> 363df79e50ac81dfa9d43675d1700df4 EvaYouren/Faber replied to the topic Three steps back and thumbs up? in the forum Treatment http://www.myeloma.org.uk/forums/topic/three-steps-back-and-thumbs-up#post-102522 Tue, 14 May 2013 07:59:18 +0100 Dear Dai,
I wonder whether even if the Rev mightn't appear 'right' for you – if you had some with the Velcade it really might work in a synergistic way. I suppose it might be a question of funding and also of how many side effects you'd develop. Maybe your myeloma needs to attacked along a number of different pathways simultaneously. Sure Velcade…[Read more]

]]> 3bdaaa80eb464ea163dff03437e4bed8 EvaYouren/Faber replied to the topic Complaint to NHS re late diagnosis in the forum General http://www.myeloma.org.uk/forums/topic/complaint-to-nhs-re-late-diagnosis#post-95224 Mon, 13 May 2013 12:57:49 +0100 Dear Maureen,

I?m pleased you are making this complaint. Even though myeloma is a difficult one to diagnose, taking a number of very different tests to rule various things out is the only way to respond if the symptoms persist and can?t be explained.

My own very superficial look at how societies evolve suggests that change is more likely to…[Read more]

]]> 69218984050f00e6af363672bd978235 EvaYouren/Faber replied to the topic Post - PAD did your bone pain return? in the forum Treatment http://www.myeloma.org.uk/forums/topic/post-pad-did-your-bone-pain-return#post-102488 Tue, 07 May 2013 15:58:20 +0100 Hi Tom,
There's a few ways of looking at that. I get some pain during the ten or twelve day gap in between treatment cycles for Bort. Dex. and Cycloph.
I don't know what's causing it and I doubt my onc can tell me because of how individual the illness is.

I've thought about it a lot. Factors at play could be that whenever the dex leaves the…[Read more]

]]> 836c9db5dd3f0acf96c05ea66976d2df EvaYouren/Faber replied to the topic Keith Hindmarch in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/keith-hindmarch1367593561#post-108234 Fri, 03 May 2013 23:07:20 +0100 Dear Sue,
I am deeply sorry to hear this news. I hope that the good times you had will give you much consolation.
Eva

]]> 8827c094a0955b5fcc1df33b8b740e7f EvaYouren/Faber replied to the topic Platelets and Peripheral Neuropathy post SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/platelets-and-peripheral-neuropathy-post-sct#post-102447 Wed, 01 May 2013 15:28:39 +0100 Dear Christine,

I didn't have peripheral neuropathy, but I needed infusions of platelets and I had a rough start: left the hospital after the ASCT, essentially needing a nappy, with neutrophils of 0.2, and only able to walk a few steps. After I made the Everest climb to the top flat we lived in in Edinburgh I was well and truly pooped. It's…[Read more]

]]> 913fb63141048078f1633480fafc0784 EvaYouren/Faber replied to the topic Velcade Rash in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-rash#post-105220 Sun, 28 Apr 2013 21:03:13 +0100 Congrats on the drop in paraprotein. I've also had problems with my eyes, but perhaps it's a different one as my eyes tend to be very dry.
Eva

]]> 4d607bf9ad9f635c9f8b6774b3d332c7 EvaYouren/Faber replied to the topic Lightly chained to the Roller Coaster Ride in the forum General http://www.myeloma.org.uk/forums/topic/lightly-chained-to-the-roller-coaster-ride/page/3/#post-94982 Sat, 27 Apr 2013 00:23:27 +0100 Dear Helen,
Just to let you know I'm thinking of you and sorry about what you're going through.
I've done another post on Velcade today you might find interesting.
Best,
Eva

]]> 077e8cd2a69754dad7bcdce1019a8c01 EvaYouren/Faber replied to the topic Velcade side effects? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-side-effects1366916455#post-105268 Sat, 27 Apr 2013 00:02:06 +0100 Hi Paul,
I'm on the same treatment. Velcade seems to be very drying: I have to moisturise my hands many times a day and the surface of my eyes requires frequent applications of eye drops like Murine. I drink enormous amounts of water. I've finished my third cycle. There was one day when my eyes stung so much that I had to stay in bed with my…[Read more]

]]> 412f9969d39e96e7818663c66dc71636 EvaYouren/Faber replied to the topic Keith Hindmarch in the forum General http://www.myeloma.org.uk/forums/topic/keith-hindmarch#post-95090 Tue, 23 Apr 2013 14:20:15 +0100 Dear Keith,
I've always followed your journey: I haven't had the privilege of getting to know you, but all my thoughts and love is with you and Sue.
Eva

]]> 9ff66d5d7266ba8efa8ca3ee9b3a8ffe EvaYouren/Faber replied to the topic Dad's final days in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/dads-final-days/page/2/#post-108231 Sun, 21 Apr 2013 20:04:40 +0100 Dear Tanya,
I too am glad that you father would have felt your love and support.
Eva

]]> 8ad78c9a054b91318dd681e74fef94f7 EvaYouren/Faber replied to the topic Velcade Rash in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade-rash#post-105218 Sat, 20 Apr 2013 23:27:02 +0100 Hi Trish,
Velcade is known for making shingles possible, but I don't know about chicken pox. Is Peter on Aciclovr?
As for exhaustion, when I'm on Velcade there are certain days when I fall asleep without much choice, and at odd times. I have some difficulty differentiating between this and perhaps a reaction to the stage of the dex cycle I'm at.…[Read more]

]]> 4c55c0a7861546c4e57e51ad971305a3 EvaYouren/Faber replied to the topic Light chains down again in the forum Treatment http://www.myeloma.org.uk/forums/topic/light-chains-down-again#post-102351 Fri, 19 Apr 2013 20:25:46 +0100 Dear Maureen,
Sp happy things are working are working out. That's a superb response. Sorry about the shingles- I believe it can be very painful.
Thinking of you both,
Eva

]]> 3b1640fbec2375d6fa303a17bf88b8ae EvaYouren/Faber replied to the topic Stem Cell transplant, given go-ahead in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-given-goahead#post-102395 Thu, 18 Apr 2013 17:36:14 +0100 Dear Tom,
Am very delighted about your response to PAD. Also enjoying your blog very much.
I understand you feeling nervous – I did too. It's so difficult to generalise about the effects of an ASCT. For most people, the first month is a bit of a write-off, though once home after nineteen days, I was able to read and draw. I got stronger…[Read more]

]]> 82f6f09ee91ddc2bf476b5d0b1a733ca EvaYouren/Faber replied to the topic Starting again in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-again#post-87485 Mon, 15 Apr 2013 19:24:31 +0100 Hi- I see no reason why an alternative treatment must be started. Many of us have had set-backs and interruptions and then gone on to continue a cycle. After a couple of lots of CDT I had some heavy side-effects with dizziness to the point of temporary unconsciousness. I stopped treatment for about ten days and then began again gradually.
After…[Read more]

]]> f593db71f10009296f01ce64f1213060 EvaYouren/Faber replied to the topic Velcade here I come in the forum Treatment http://www.myeloma.org.uk/forums/topic/velcade-here-i-come#post-102232 Fri, 05 Apr 2013 15:36:48 +0100 Hi- I'm on my third cycle of Velcade. I've tolerated it fairly well- but it hasn't made a big dent in my paraproteins. My consultant was concerned, but my freelites have normalised beautifully. I think I'm a difficult one to track becase I am only secreting abour 5g/L when in full relapse. My original paraprteins were only 14g/L and during my…[Read more]

]]> db576c9b022175a09bbd7819e1f6844a EvaYouren/Faber replied to the topic At a low point in the forum Carers http://www.myeloma.org.uk/forums/topic/at-a-low-point#post-106568 Thu, 28 Mar 2013 21:03:04 +0000 Maureen,
This is Eva- am in London- can't write properly- am thinking of you, will contact middle next week.

]]> 4420b8ce64ed8545c1b65d5827539132 EvaYouren/Faber replied to the topic Ian's birthday and MRSA in the forum General http://www.myeloma.org.uk/forums/topic/ians-birthday-and-mrsa#post-94638 Thu, 21 Mar 2013 02:17:44 +0000 Dera Maureen,
I'm so sorry about what you are both going through. It must be such a challenge to figure out what Ian might actually want for his birthday given his constraints. Perhaps for the MRSA to go away…..
I'm so glad Ian appears to be getting thoughtful care.
Can Ian play movies on a laptop or read stuff he likes? Music? Is he a…[Read more]

]]> d2bdfe989ed9e5aab2a021083c4f262b EvaYouren/Faber replied to the topic Our Journey in the forum Newcomers http://www.myeloma.org.uk/forums/topic/our-journey#post-87406 Tue, 12 Mar 2013 00:02:34 +0000 Dear Phoebe,
I can understand you not telling the family yet. Your husband may remain asyptomatic. I hope that your children will gain strength from how you've both dealt with adversity. It's a great privilege to be a parent – today I was able to speak with one of my sons on the phone. I've only seen him a few times in the last few years because…[Read more]

]]> 3aa761c20568c6a26074811cbfa32568 EvaYouren/Faber replied to the topic Good-bye Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/goodbye-michael/page/2/#post-108118 Mon, 11 Mar 2013 19:33:57 +0000 Dear Susannah,
Love and hugs to you from Eva.

]]> d156f8e3ea57219a781a96b6e980ab46 EvaYouren/Faber replied to the topic Our Journey in the forum Newcomers http://www.myeloma.org.uk/forums/topic/our-journey#post-87397 Sun, 10 Mar 2013 01:26:48 +0000 Dear Phoebe,
What a incredible story….. And how kind of you to think of us and to remind us of meningitis. It's also astounding that your husband has been able to accept vast physical challenges in spite of his amputations. He truly is behaving in a way that's deeply inspirational.
I am glad that he had so many years before his illnesss got…[Read more]

]]> 68de0935c13c73e9a0e6c0a1837f5d77 EvaYouren/Faber replied to the topic Ian in rehab in the forum General http://www.myeloma.org.uk/forums/topic/ian-in-rehab#post-94494 Fri, 22 Feb 2013 18:56:20 +0000 Dear Maureen,
How often and for how long can you see Ian?
Have the rehab people gotten any expectations of the different ways in which Ian might become more mobile?
I wonder whether in time, someone could call at your place daily and assist with rehab.
Best,
Eva

]]> 4eb257c2a0972493ebf735baf0b574fd EvaYouren/Faber replied to the topic Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/michael#post-108085 Fri, 22 Feb 2013 18:46:59 +0000 Dear Sue,
Words are inadequate – we are thinking of your terrible loss.
Eva

]]> 6efaa72b258ab8ac00037f59a3f39e53 EvaYouren/Faber replied to the topic First time for everything... in the forum Treatment http://www.myeloma.org.uk/forums/topic/first-time-for-everything#post-101761 Thu, 21 Feb 2013 00:06:11 +0000 Hi Dai,
So pleased results were kind of stable. The wait was really awful.
At my second last visit in hospital I was told things would be prepared beforehand so it would be faster – this was in Inverness – and yet, I also had to wait for three hours. The nurses were nice though and I was given a sandwich.
Because of my stage in the dex cycle, I…[Read more]

]]> bd4f456a5fe2a97899659db65ddb7263 EvaYouren/Faber replied to the topic vcd onto rcd in the forum Related conditions http://www.myeloma.org.uk/forums/topic/vcd-onto-rcd#post-105712 Wed, 20 Feb 2013 02:45:40 +0000 Dear Clair,
There are other drugs and even more concentrated treatments such as VD-Pace if things don't work out at first. Feel free to call Ellen the myeloma nurse on this website – she's excellent.

Very best to you and Dad,
Eva

]]> 6f9c1fa43e92662a7fa4782b8de2dfc4 EvaYouren/Faber replied to the topic CTD Dosage in the forum Treatment http://www.myeloma.org.uk/forums/topic/ctd-dosage#post-101742 Sun, 17 Feb 2013 21:35:10 +0000 Dear Maureen,
Best to you and Ian.
Since the myeloma treatment is oral at the moment and Ian is in hospital for rehab, it seems odd to me that some accommodation can't be reached with the insurance company. The person looking after rehab might not even be a myeloma doc. Sometimes it requires a 'team effort' to treat someone. I know that there…[Read more]

]]> fb0f68d3787a8dda3cc2ddf29040fdbd EvaYouren/Faber replied to the topic just been diagnoised in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnoised/page/2/#post-87263 Wed, 06 Feb 2013 21:35:52 +0000 Dear Carryanne,
I've had to travel from Scotland to London for a new phase of my treatment. I'll be keeping a low profile as I'm using someone else's laptop. I'm certainly thinking of you,
Eva

]]> 120b20159d1d12985469b5dc22698267 EvaYouren/Faber replied to the topic Need advice please in the forum General http://www.myeloma.org.uk/forums/topic/need-advice-please#post-94327 Wed, 06 Feb 2013 21:24:08 +0000 Dear Emma,
Hi – this is Eva. Hope you don't mind me asking, but I couldn't fully understand what you meant by your mum 'not being able to accept overnight care from an agency.' I'm not suggesting she should be able to, I just want to be able to see things more clearly.

Theoretically, hospitals can ask someone to leave, but sometimes if the…[Read more]

]]> e7c19ddb639ab7bc044b381bcda4bcc8 EvaYouren/Faber replied to the topic just been diagnoised in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnoised#post-87249 Thu, 31 Jan 2013 15:19:33 +0000 Dear Carryanne,
First of all welcome to the site – and I'm sorry that you're ill. It's good though that you are receiving treatment.

The medication affects everyone differently so we can't predict exactly how you will react. Most people feel tired and need to rest a lot.

– The C in CDT is Cyclophosphamide and it can make you feel as if you…[Read more]

]]> 08c14b9c086bd52e5f11e73d7475f12c EvaYouren/Faber replied to the topic Short but sweet in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/short-but-sweet#post-108060 Wed, 30 Jan 2013 20:44:06 +0000 Dear Sal,
I'm really sorry to hear what you've gone through. It was thoughtful of you to let us know what happened. I hope you will be able to get to the stage where the memory of recent events can begin to recede and you can remember your father as he was throughout the years.
Eva

]]> 57e2619736f0086ab4d9487aea601b23 EvaYouren/Faber replied to the topic Ian adn CTD in the forum Carers http://www.myeloma.org.uk/forums/topic/ian-adn-ctd#post-106579 Wed, 30 Jan 2013 20:37:27 +0000 Der Maureen,
I'm so happy to hear that Ian is regaining some movement and that he can be treated. Hopefully you will both be able to feel a little more relaxed after the nightmare situation that you've been through.
Best,
Eva

]]> b277b1d6f5519f716bc1dc284b73c7b3 EvaYouren/Faber replied to the topic So far, so... in the forum Treatment http://www.myeloma.org.uk/forums/topic/so-far-so#post-101608 Wed, 30 Jan 2013 20:30:32 +0000 Dear Dai,
So glad the bloods aren't bad. It's awful waiting, isn't it? I've just had a bizarre situation where I waited for about ten days expecting results and then I found out that a nurse at the local clinic did not send my bloods off to London even though I stressed how important it was. My husband and I got more and more nervous as the day…[Read more]

]]> e89c04b529204688180cb0c3b2dd96c6 EvaYouren/Faber replied to the topic Raise your hand if you hate dex lol in the forum General http://www.myeloma.org.uk/forums/topic/raise-your-hand-if-you-hate-dex-lol/page/2/#post-94242 Sun, 27 Jan 2013 21:54:10 +0000 Hi Sharon,
I had tremors after a couple of cycles of CDT, but I thought that the shakes came from the steroids rather than the Thal. I guess I can't be sure, though a year ago when I was on Thal alone my I saw no evidence of trembling. When I'm on 100mg or more of Thalidomide a day, I feel dizzy and I tend to drop things. Also, an hour after I…[Read more]

]]> 929e17e1625f28725a6487eb73205666 EvaYouren/Faber replied to the topic Starting PAD in the forum Treatment http://www.myeloma.org.uk/forums/topic/starting-pad#post-101540 Sat, 26 Jan 2013 23:47:53 +0000 Hi Tom,
Yes, anything that's like a 'flow' activity where we can lose ourselves for a while is very important in order to relax.
I read your other posting. Can your myeloma be tracked via bone marrow biopsy?
best,
Eva

]]> c246bf42c5ede60eced13bc6498b244d EvaYouren/Faber replied to the topic Croaky/husky voice on Dex in the forum Side-effects http://www.myeloma.org.uk/forums/topic/croakyhusky-voice-on-dex#post-105107 Wed, 23 Jan 2013 23:08:59 +0000 Yes, me too. My voice went croaky. It's never really come back to normal but it's less hoarse when I'm not on steroids.
Eva

]]> 300c6acf694c84c1272e7c763bdd5253 EvaYouren/Faber replied to the topic Starting PAD in the forum Treatment http://www.myeloma.org.uk/forums/topic/starting-pad#post-101537 Wed, 23 Jan 2013 18:56:48 +0000 Dear Tom,
The beginning of a new stage treatment is such a milestone…. Waiting for it must be difficult. My treatment began on the same day as diagnosis, so I had no time to think about it.
UCH sounds really good. I like the fact they're taking care over every bit of the process. I'm impressed by your commitment to mindfulness. I hope you can…[Read more]

]]> 41965fcc9170c9164a688263d151f7a7 EvaYouren/Faber replied to the topic light chain myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/light-chain-myeloma#post-87190 Tue, 22 Jan 2013 19:47:21 +0000 Dear Jenny,
I haven't had Revlimid, but I've had Thalidomide which is a drug that's got similarities with Revlimid. Also I've had dexamethasone and Cyclophosphamide at the same time. Unfortunately, the side effects that you describe sound very plausible, especially once you've reached the third cycle. I'm sorry that you're going through this.…[Read more]

]]> 9e5403ca189f9bad667b6fc15c348bcb EvaYouren/Faber replied to the topic First Week of CDT Completed in the forum Treatment http://www.myeloma.org.uk/forums/topic/first-week-of-cdt-completed#post-101529 Mon, 21 Jan 2013 22:40:58 +0000 Dear Keith,
So so pleased.
Eva

]]> 4641f6ad7781df3a554c9e11d9e763b4 EvaYouren/Faber replied to the topic Just been diagnosed with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnosed-with-myeloma#post-87173 Mon, 21 Jan 2013 16:12:40 +0000 Hi Susan,
This is Eva. I think there are a number of things that might be concerning you.
If you wish to communicate with me, you can email evayouren@lineone.net and I am also then prepared to call you and we could chat.
I've had CDT and a transplant. I was very very afraid of having the transplant. I'm now four and a half years post…[Read more]

]]> d60bb720701fe6b8a7d1d9755068954f EvaYouren/Faber replied to the topic newly diagnosed in the forum Under 50s http://www.myeloma.org.uk/forums/topic/newly-diagnosed1354021471#post-107062 Fri, 18 Jan 2013 21:17:44 +0000 Dear Ann,
I'm delighted you're doing so well.
Also glad you eat healthy food and have embarked on new ventures. Good to hear from you.
Best,
Eva

]]> 81eb9cf8cfee418ab766260b13db3cf0 EvaYouren/Faber replied to the topic Raise your hand if you hate dex lol in the forum General http://www.myeloma.org.uk/forums/topic/raise-your-hand-if-you-hate-dex-lol/page/2/#post-94240 Fri, 18 Jan 2013 20:55:12 +0000 Hi Steve,
I can't comment on kidney function as I still had enough to cope with the transplant in 2008. My husband tells me that during the transplant I swelled up hugely as if my body was having probs getting rid of waste. My creatinine readings before the TR were normal. Afterwards, the swelling went down. Admittedly, they were pushing a lot…[Read more]

]]> a3b686e58e5c7e828c6be0707efe1264 EvaYouren/Faber replied to the topic Second anniversary visit to haematology in the forum General http://www.myeloma.org.uk/forums/topic/second-anniversary-visit-to-haematology/page/3/#post-94024 Tue, 15 Jan 2013 17:06:21 +0000 Dear Helen,
I'm very pleased you're doing so well and that you have acces to maintenance.
Hope you're stable for a long while,
Eva

]]> 526ff6e24f9e59234fd852be164fd5d4 EvaYouren/Faber replied to the topic Round 11 RCD in the forum Treatment http://www.myeloma.org.uk/forums/topic/round-11-rcd#post-101483 Tue, 15 Jan 2013 17:02:42 +0000 Dear Andy,
Good luck with your treatment. I'm so glad your'e getting out and about. I've had visitors for lunch and I'm always pleased when we can have people over. We live in the north of Scotland and most of the time all we see is a passing buzzard! The scenery's great though….
Best,
Eva

]]> fcbb2f84d1411409913cf88fb70bbbb7 EvaYouren/Faber replied to the topic Dry tongue and mouth in the forum Side-effects http://www.myeloma.org.uk/forums/topic/dry-tongue-and-mouth#post-105099 Fri, 11 Jan 2013 20:18:35 +0000 Dear Tina,
Hi – this is Eva. I've been thirsty whenever I'm on treatment as well as for many months after transplant. It's almost as if the body wants us to flush out all those poisons we've been ingesting….
When I go to bed I have three large glasses of water nearby and if I wake in the middle of the night to go to the loo I always make sure…[Read more]

]]> 6307074f772ec07187b2393b67aa0684 EvaYouren/Faber replied to the topic First time diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/first-time-diagnosed#post-87121 Thu, 10 Jan 2013 23:31:59 +0000 Hi Paul,
This is Eva from Scotland. Being ill can be isolating, that's for sure. You mention it's difficult for people to visit you – do you live in a major city? I've found that some friends feel nervous about contacting me in case I don't wish to be disturbed – or perhaps they're not sure what to say…. On the other hand, when I've reached out…[Read more]

]]> 268a13a0be6e7ad4e9da4f5dc1b04b15 EvaYouren/Faber replied to the topic Yes it has bombed in the forum Treatment http://www.myeloma.org.uk/forums/topic/yes-it-has-bombed#post-101462 Thu, 10 Jan 2013 21:43:50 +0000 Dear Keith,
I'm really sorry to hear what's happened. I don't know if this is applicable to you, but if your immune system is very suppressed, can you receive intravenous immunoglobulins?
Let us know how the CDT is going.
Very best,
Eva

]]> 4a9a4aa52e76bf5f4e92f644147cef18 EvaYouren/Faber replied to the topic Information/Experience on relapse and velcade in the forum General http://www.myeloma.org.uk/forums/topic/informationexperience-on-relapse-and-velcade#post-94194 Tue, 08 Jan 2013 19:26:39 +0000 Dear Daniel,

First of all, it's good that you were able to write in. I'm sure it wasn't easy. I can tell that you really want to face up to whatever is happening.

I've had myeloma for almost five years, so I'm not writing as a doctor, but as a patient. Your father did very well to have responded to the transplant and to the Thalidomide for…[Read more]

]]>