Thanks for your kind responses! I have been able to spend most of the weekend with her (which she enjoys as she finds the children a distraction). I was also able to cook her a good roast which she really enjoys! At the moment her hair is falling out (well virtually gone) and she is very low in a self-confidence way. Prior to her illness she was never openly emotional but now she often cries – this was very entertaining in the early hormonal days of my baby as we were both at it!!
While there may be some things kept from us, most information just isn't taken on board – there is an element of burying their heads in the ground. My parents are farmers and are very practical about many matters but over the last few years we have seen my dad have a stroke at 58 (he is fine now) and my mum's mum died last Christmas (she was living with them and was very difficult). So all in all it has been a jam-packed few years with all the babies as well and I think this horrible disease has been another reality check.
She is having some bone cement injected next week and we are hoping this takes away some of the constant pain. In the meantime my youngest sister is now getting married next summer and so this has given my parents a fresh distraction! She reminded me yesterday that life does go on…
Thanks
Fi
PS I don't know her recent blood results but they had dropped to about 5 about 6 weeks ago. She is also very lucky to be able to have treatment in our local hospital 5 mins away