Hi David
Been following your journey as I am on the same route. Very best of luck for Friday. Keeping everything crossed for you.
Gavin

Hi Sharon
Just picked up on your situation. Sorry to hear about it and hope the radiation & Dex(?) works as well for you as it did for me when I had the same happen in Oct.2010. I still have issues arising from a near fully-fledged Cauda Equina from spinal compresssion which has left me with slowly improving PN in various places below T5 and…[Read more]

Hi Everyone
Thought I would bring you up to date on my journey. After a great deal of thinking, research, tests and discussions with my haematologist I finally made up my mind to go with chemotherapy in spite of my deeply held fears. My paraprotein markers are very low and I feel very well generally so I could have taken a wait & see approach but…[Read more]

Hello Bridget
Only just seen your posting so you have probably already had one or two seesions of radiotherapy.I had 5 days of RT in Poole hospital at the start of my MM journey, together with the dreaded DEX. The effect was immediate and I have had nothing except twinges since. I hope it has the same result for you. All the best.
Gavin

Hi David
So pleased for you! The figures sound excellent at this stage and the fact that you are feeling so good is fantastic. Keep it up and carry on cycling – you are an inspiration to those of us who follow in your footsteps!!
Very best wishes
Gavin

Hello Mavis
Thank you for responding. It was good to hear from you. As you may have gathered,I am not eager to change the quality of my life any sooner than I must,particularly as my paraprotein level is barely 3 and plasma cell level is 14%. I will do so only when it is clear that it would be stupid not to proceed.

Apart from a new…[Read more]

Hi Frances
Great to hear things are going so well for you. Only two weeks in hospital is just brilliant. I hope all the progress made continues throughout 2011 and beyond.
I saw my haematologist yesterday. All my blood tests were excellent and back to normal. Paraprotein level still very low. Had xray on a new/persistent area of pain in my side…[Read more]

Hi Debs
Lovely to hear from you. It would be very helpful to stay in touch and exchange experience and info. Hope the outcome of your chemo is positive and allows you to move on to SCT directly.I am meeting with my haematologist at Dorchester(Dorset) hospital on Tuesday to decide the next moves.
Thank you for getting in touch.
Happy New Year
Gavin

Hello David
Many thanks for your encouraging comments.I have read your blogs posted during your recent SCT and found them very informative and helpful, thank you. I really appreciate you getting in touch and wish you every successful response to your treatment in 2011. Please stay in touch.
Kind regards
Gavin

Hello Bridget
Thank you so much for your words of encouragement & support. I'll post from time to time when my treatment starts. David has also sent me a message & I will follow up on his record of treatment which will be of great interest.
Very best wishes to you and your family for 2011.
regards
Gavin

Hi Frances
How are you. I hope the SCT went OK and that you and the family had a good Christmas. Would love to hear from you and know how things are going.I have come round to the view that I should proceed with Chemo, etc and will be beginning treatment under Myeloma XI trials in the next week or so.
In the meanwhile every good wish for…[Read more]

Hi Frances
Many thanks for your response. I am so pleased that the chemo has worked for you without too many side effects. Did you have the standard chemo package? I am considerably older than you at almost 70 but the haematologist thinks I am robust enough to cope.Luckily I also have a very supportive family and friends around to help me…[Read more]

Thanks to both Gill and Bridget for responding. I will post again when I have reached a decision.
Best wishes
Gavin

Hi there

First ever post. I am newly diagnosed MM. After a successful response to radiation & steroids to relieve pressure on the spinal cord I am now being advised by my haematologist to undergo chemo leading to SCT. I am early Stage 1 and apart from the vertebra problem all my vital organs are in good standing and I feel really well (!). I…[Read more]