Myeloma Forum | GavinRussell | Activity https://forum.myeloma.org.uk/members/Gavin/activity/ Activity feed for GavinRussell. Sat, 11 Apr 2026 13:30:20 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 eb694491ba637b0d440b2d944065a04c GavinRussell replied to the topic Fizzing on Revlimid in the forum Side-effects http://www.myeloma.org.uk/forums/topic/fizzing-on-revlimid#post-103779 Wed, 23 Feb 2011 09:47:30 +0000 Hi David
Been following your journey as I am on the same route. Very best of luck for Friday. Keeping everything crossed for you.
Gavin

]]> 6d8695b7d71895853249948a23f6536a GavinRussell replied to the topic More radiotherapy and spinal cord compression in the forum Treatment http://www.myeloma.org.uk/forums/topic/more-radiotherapy-and-spinal-cord-compression#post-97077 Sun, 13 Feb 2011 18:31:42 +0000 Hi Sharon
Just picked up on your situation. Sorry to hear about it and hope the radiation & Dex(?) works as well for you as it did for me when I had the same happen in Oct.2010. I still have issues arising from a near fully-fledged Cauda Equina from spinal compresssion which has left me with slowly improving PN in various places below T5 and…[Read more]

]]> 3a1152068663919c5539cc0b15af3246 GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy/page/2/#post-96561 Fri, 11 Feb 2011 14:20:20 +0000 Hi Everyone
Thought I would bring you up to date on my journey. After a great deal of thinking, research, tests and discussions with my haematologist I finally made up my mind to go with chemotherapy in spite of my deeply held fears. My paraprotein markers are very low and I feel very well generally so I could have taken a wait & see approach but…[Read more]

]]> 7b54d7f15e7363d879996618351445a5 GavinRussell replied to the topic Radiotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/radiotherapy1294964127#post-96946 Wed, 19 Jan 2011 18:20:43 +0000 Hello Bridget
Only just seen your posting so you have probably already had one or two seesions of radiotherapy.I had 5 days of RT in Poole hospital at the start of my MM journey, together with the dreaded DEX. The effect was immediate and I have had nothing except twinges since. I hope it has the same result for you. All the best.
Gavin

]]> 6d48a3490ba1cde58cf93943baf48729 GavinRussell replied to the topic First report post SCT in the forum General http://www.myeloma.org.uk/forums/topic/first-report-post-sct#post-89593 Thu, 13 Jan 2011 00:09:36 +0000 Hi David
So pleased for you! The figures sound excellent at this stage and the fact that you are feeling so good is fantastic. Keep it up and carry on cycling – you are an inspiration to those of us who follow in your footsteps!!
Very best wishes
Gavin

]]> baa6e023b35f884480d1b25243fc30e9 GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy/page/2/#post-96559 Fri, 07 Jan 2011 21:59:51 +0000 Hello Mavis
Thank you for responding. It was good to hear from you. As you may have gathered,I am not eager to change the quality of my life any sooner than I must,particularly as my paraprotein level is barely 3 and plasma cell level is 14%. I will do so only when it is clear that it would be stupid not to proceed.

Apart from a new…[Read more]

]]> c4adb9d51e2709d5b0a87937d49e6d72 GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy#post-96555 Wed, 05 Jan 2011 10:40:01 +0000 Hi Frances
Great to hear things are going so well for you. Only two weeks in hospital is just brilliant. I hope all the progress made continues throughout 2011 and beyond.
I saw my haematologist yesterday. All my blood tests were excellent and back to normal. Paraprotein level still very low. Had xray on a new/persistent area of pain in my side…[Read more]

]]> a4c8bfe6fb2a2086277c307c30ffbcd7 GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy#post-96552 Sat, 01 Jan 2011 21:39:53 +0000 Hi Debs
Lovely to hear from you. It would be very helpful to stay in touch and exchange experience and info. Hope the outcome of your chemo is positive and allows you to move on to SCT directly.I am meeting with my haematologist at Dorchester(Dorset) hospital on Tuesday to decide the next moves.
Thank you for getting in touch.
Happy New Year
Gavin

]]> 7600880d4c855e90da0108a763ecae3e GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy#post-96557 Fri, 31 Dec 2010 21:26:22 +0000 Hello David
Many thanks for your encouraging comments.I have read your blogs posted during your recent SCT and found them very informative and helpful, thank you. I really appreciate you getting in touch and wish you every successful response to your treatment in 2011. Please stay in touch.
Kind regards
Gavin

]]> 18b4edbf09eab8ecfaff1fe87870980b GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy#post-96550 Fri, 31 Dec 2010 12:14:21 +0000 Hello Bridget
Thank you so much for your words of encouragement & support. I'll post from time to time when my treatment starts. David has also sent me a message & I will follow up on his record of treatment which will be of great interest.
Very best wishes to you and your family for 2011.
regards
Gavin

]]> 008b25b55d25728a63b92dbe2bfce4a0 GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy#post-96548 Thu, 30 Dec 2010 23:06:50 +0000 Hi Frances
How are you. I hope the SCT went OK and that you and the family had a good Christmas. Would love to hear from you and know how things are going.I have come round to the view that I should proceed with Chemo, etc and will be beginning treatment under Myeloma XI trials in the next week or so.
In the meanwhile every good wish for…[Read more]

]]> 024427679024ad0d5b455222904467aa GavinRussell replied to the topic Re Chemotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy#post-96546 Mon, 15 Nov 2010 22:42:10 +0000 Hi Frances
Many thanks for your response. I am so pleased that the chemo has worked for you without too many side effects. Did you have the standard chemo package? I am considerably older than you at almost 70 but the haematologist thinks I am robust enough to cope.Luckily I also have a very supportive family and friends around to help me…[Read more]

]]> 0171f7119c573fdcfc7402b4697fb437 GavinRussell replied to the topic Welcome! in the forum General http://www.myeloma.org.uk/forums/topic/welcome/page/3/#post-88554 Sun, 14 Nov 2010 22:31:39 +0000 Thanks to both Gill and Bridget for responding. I will post again when I have reached a decision.
Best wishes
Gavin

]]> 56a6eb73228e604dc96fdc161ae707c4 GavinRussell started the topic Re Chemotherapy. in the forum Treatment http://www.myeloma.org.uk/forums/topic/re-chemotherapy Sat, 13 Nov 2010 23:29:26 +0000 Hi there
First ever post. I am newly diagnosed MM. After a successful response to radiation & steroids to relieve pressure on the spinal cord I am now being advised by my haematologist to undergo chemo leading to SCT. I am early Stage 1 and apart from the vertebra problem all my vital organs are in good standing and I feel really well (!). I…[Read more]

]]> def93002101a3984fc961c5c15c39cff GavinRussell replied to the topic Welcome! in the forum General http://www.myeloma.org.uk/forums/topic/welcome/page/3/#post-88551 Sat, 13 Nov 2010 00:25:18 +0000 Hi there

First ever post. I am newly diagnosed MM. After a successful response to radiation & steroids to relieve pressure on the spinal cord I am now being advised by my haematologist to undergo chemo leading to SCT. I am early Stage 1 and apart from the vertebra problem all my vital organs are in good standing and I feel really well (!). I…[Read more]

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