Myeloma Forum | WrightGaye | Activity https://forum.myeloma.org.uk/members/Gaye/activity/ Activity feed for WrightGaye. Fri, 10 Apr 2026 18:46:31 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 015f420519c3fb1c632cbffc8ab58e9a WrightGaye replied to the topic Treatment in the forum General http://www.myeloma.org.uk/forums/topic/treatment#post-91018 Sun, 14 Aug 2011 20:28:09 +0100 I have been so touched by all your wonderful messages. What can I say? My control freakery has now gone out of the window along with the bra which is now too painful to wear – not a pretty sight. Showering is now hilarious each morning with what seems like half the nursing staff watching for the latest river to be created! It is certainly not…[Read more]

]]> b928112e71a29a58e42cdf17f031e3bc WrightGaye started the topic Treatment. in the forum General http://www.myeloma.org.uk/forums/topic/treatment Fri, 12 Aug 2011 14:47:23 +0100 Hello everybody

It is ages since I last wrote and I haven't been near nor by the website since March. I have just accessed it and read some of the postings particularly those from Tina and Sarah. I am so sorry to learn of your losses and for all of you going through difficult treatment. Hang on in there – I know what a B…r it is.

For the…[Read more]

]]> 02bb4cffeabd8a464810b048a156ff98 WrightGaye replied to the topic Of Kevin and Patrick and Patrick and Michael et al... in the forum General http://www.myeloma.org.uk/forums/topic/of-kevin-and-patrick-and-patrick-and-michael-et-al#post-90502 Mon, 23 May 2011 14:48:46 +0100 Dear Dai – such beautiful words on a beautiful but windy day. What has struck me is that 3 deaths have come after such a long time but sadly it is inevitable with such a vicious disease.To all of us battling with myeloma well done for the courage and fortitude you have all shown in however you have faced it. To all carers and families supporting…[Read more]

]]> a3f4b6c5dafbfa32262f0534a1ca9e77 WrightGaye replied to the topic Quietly Panicking! in the forum General http://www.myeloma.org.uk/forums/topic/quietly-panicking/page/3/#post-90332 Sun, 22 May 2011 11:30:16 +0100 Hello all you lovely people. I wish I could spend more time on here but my energy levels just won't let me. I have been reading some of your postings with various good ones and not so good.

My latest is that the Pomalidomide is keeping the myeloma steady but no world breaking figures. It sounds like lots of you are in pain with various ways…[Read more]

]]> b3f80f0273966c5f83674aa429701bb7 WrightGaye replied to the topic Thankyou from Tina in the forum General http://www.myeloma.org.uk/forums/topic/thankyou-from-tina#post-90440 Sun, 15 May 2011 17:44:21 +0100 Dear Tina – Thank so much for your reply. Yes you are right. The last few weeks have been awful regarding back pain and I am still awaiting whether or not a kyphoplasty is still on the cards. However, it is the pomalidomide that will decide my outcome and with the polidomide and pain it is all out of my control.

You have been such a good…[Read more]

]]> e7fb8366bcbf127902c13b6b0e3ef13c WrightGaye replied to the topic My Wonderful Husband Patrick in the forum General http://www.myeloma.org.uk/forums/topic/my-wonderful-husband-patrick/page/2/#post-90428 Sun, 15 May 2011 11:57:54 +0100 Dear Tina – I read with such sorrow your posting on the loss of Patrick. I hadn't heard from you for a while and had a feeling that maybe all was not well. And so it wasn't. The other patient at Barts is struggling with it as am I. You have been a wonderful carer and wife to Patrick and you must be feeling wretched. I can't imagine how you…[Read more]

]]> 340c92b7e73a083c3846615ba78cf111 WrightGaye replied to the topic Quietly Panicking! in the forum General http://www.myeloma.org.uk/forums/topic/quietly-panicking#post-90300 Sun, 08 May 2011 10:16:26 +0100 Dear Bridget

Sorry that I haven't replied for a while and you sound in complete agony. You try to do a bit too much and and it repays you with massive pain. I feel for you very much.I think you have got the point that you need to contact the hospital tomorrow and get some idea where the pain is coming from.

I still have no answer to my back…[Read more]

]]> 9b915047652a37fa4f86412eeecfbcba WrightGaye replied to the topic Good Morning Gaye in the forum General http://www.myeloma.org.uk/forums/topic/good-morning-gaye#post-90210 Thu, 21 Apr 2011 14:16:11 +0100 What a wonderful array of kisses to go with the beautiful sunshine today. Thank you all – fantastic.

Much love, Gaye xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

]]> 89b4c74acdbf51a6bafa4d496aa1fce6 WrightGaye replied to the topic Good Morning Gaye in the forum General http://www.myeloma.org.uk/forums/topic/good-morning-gaye#post-90205 Wed, 20 Apr 2011 12:58:31 +0100 Good morning Broncho and Dai. It is so kind of you both to write.I'm afraid that the news is not good regarding the pain. We are trying another pain killer to see if this will help.

The pomalidomide seems to be working so that is reasonably good news. I haven't been able to write and keep up with your news but I hope all is well.

Much…[Read more]

]]> e1942a0f50f42e4ecb4f829cd65bb9c3 WrightGaye replied to the topic SUBTITLES ANYONE? in the forum Off topic http://www.myeloma.org.uk/forums/topic/subtitles-anyone#post-108977 Mon, 04 Apr 2011 13:01:10 +0100 Bridget – the surgeon at the Royal London who did both my operations was Mr John Yeh and I think it is likely that he will come to the same decision as yours as it is now two years on and more damage has happened since then. Not a great outlook but must keep hopes alive.

Is it me but even though I cannot understand Swedish or Danish, let alone…[Read more]

]]> 987580bc6e56702c06c4e88f2435a283 WrightGaye replied to the topic SUBTITLES ANYONE? in the forum Off topic http://www.myeloma.org.uk/forums/topic/subtitles-anyone#post-108973 Sun, 03 Apr 2011 11:36:05 +0100 Thanks Bridget – My consultant has sent a copy of my MRI to the Royal London to see if a kyphoplasty is feasible. The consultant there is the specialist in spinal surgery and kyphoplasty in particular so if he says no then that's it.

Some of the french detectives are just vile and 'Monsieur don't I look lovely with my grey but suave…[Read more]

]]> e8a533a84508e7b70b57c90f1f7fe1d5 WrightGaye replied to the topic SUBTITLES ANYONE? in the forum Off topic http://www.myeloma.org.uk/forums/topic/subtitles-anyone#post-108971 Sun, 03 Apr 2011 10:03:10 +0100 Hi Bridget – yes I did but I have to get into it. I am still pining for Wallander and The Killing and the female detective seems to have a permanent look on her face that leaves me desperately worried about her. I loved Lund in The Killing so I will have to stay with this one.

I noticed myeloma was mentioned in Waking the Dead but not very…[Read more]

]]> e779e857cc729f58d2fd39a01d496ac4 WrightGaye replied to the topic 2nd Auto SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/2nd-auto-sct#post-97244 Wed, 30 Mar 2011 17:57:38 +0100 Dear Ian – I had partial remission first time round which lasted 18 months. I was told I would get half the time for the second which happened.I know of only 1 person who had remission from his second SCT which lasted years longer than his first, but from which he has since relapsed. Definitely an exception to the rule.

It seems the info you…[Read more]

]]> d513c8cc071948759946a5bf0dbc3b08 WrightGaye replied to the topic Ah Well! in the forum General http://www.myeloma.org.uk/forums/topic/ah-well#post-90102 Tue, 29 Mar 2011 19:46:33 +0100 Dear Dai – I am so sorry that the bugger has come back and I well understand the feelings you both have right now. I know how I felt after my first remission and was devastated. You didn't move home for nothing and that fighting spirit will come back to you once you get the new treatment regime. I wish you good luck as you come to terms with…[Read more]

]]> 312eed2ce034702eb96fa8bfbc1a6865 WrightGaye replied to the topic Pain in side in the forum Carers http://www.myeloma.org.uk/forums/topic/pain-in-side#post-105894 Sun, 27 Mar 2011 20:43:12 +0100 Dear Jean – this is why so many people do not get diagnosed soon enough because it can feel muscular when it is bone pain and GPs are not always aware of MM pain. I can only say from my bone pain experience is for Frank to take this seriously because it has all the hall marks of MM pain. He sounds afraid and I suspect a bit in denial. It's hard…[Read more]

]]> d2a3ece5bbc72e5a5b153cd24cb893a5 WrightGaye replied to the topic Horror of Horrors in the forum General http://www.myeloma.org.uk/forums/topic/horror-of-horrors#post-90084 Sun, 27 Mar 2011 10:24:20 +0100 Thanks for all your replies. I was with friends yesterday and we just couldn't stop laughing. I remember her introducing me to a student saying this wasn't a normal doctor/patient relationship. It was totally patient led! Before diagnosis I had never called any health professional by their first name but the department is very relaxed and first…[Read more]

]]> 90cf8e1de88370047cfaf35b84098414 WrightGaye started the topic Horror of Horrors. in the forum General http://www.myeloma.org.uk/forums/topic/horror-of-horrors Sat, 26 Mar 2011 09:42:28 +0000 I had to send an email to my consultant yesterday and on re-reading this morning I discovered I had put Love, Gaye xx. AAArrgghhhh. She has been my consultant for some years but didn't think we were that close. She has probably run to the hills by now but I am horrified. I put it down to the pain but maybe the dex is the most…[Read more]

]]> 9b00477833c8d6f43d7c37dd9bd7c369 WrightGaye replied to the topic Revlimid - When to take it in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-when-to-take-it/page/2/#post-97159 Thu, 24 Mar 2011 14:41:40 +0000 Dear Friends – 4 weeks since having RT and still no relief from back pain. I am almost convinced it will not happen and beginning to despair. Help!

I eventually started my third cycle on pomalidomide this week in the evening at around 9pm but slept around to 9.15am. Is there a good time in the evening to take the tablets to get optimum…[Read more]

]]> 69dfc3fe2dfea61c012d26f0cb815cca WrightGaye replied to the topic Revlimid - When to take it in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-when-to-take-it#post-97157 Sun, 20 Mar 2011 10:28:26 +0000 At last my month's supply of pomalidomide arrived on Friday evening round 8pm delivered by a rather lovely young man so I can now start cycle 3 tomorrow evening. At last. All that it takes to get our medication but at least it is here!

Love to you all. Gaye xx

]]> 936c4ca72cc8a0f2b0ae4af764c2ba56 WrightGaye replied to the topic Bone Pain in the forum General http://www.myeloma.org.uk/forums/topic/bone-pain#post-90040 Sat, 19 Mar 2011 08:08:38 +0000 Hello Pamela – thanks for your information and I am so glad your bone pain is now under control. Tramadol has long been ruled out as it contradindicates with my anti-depressant drugs. You win some you lose some! Thank you anyway Pamela.

Love, Gaye xx

]]> 9eccd43d5e24890e3f29cf8e4c202b5e WrightGaye replied to the topic Bone Pain in the forum General http://www.myeloma.org.uk/forums/topic/bone-pain#post-90037 Fri, 18 Mar 2011 13:26:42 +0000 Thank you for all of your lovely and positive replies and I shall digest them. It's not helped by the fact that I am sill waiting for the polmalidomide to be delivered to the hospital before it can be sent on to me. I have already missed one week of treatment and am not keen to miss a second one. Hopefully today.

Regarding pain relief I got…[Read more]

]]> 1707399d77d0350cb991002a50c106f2 WrightGaye replied to the topic Pomalidomide (?sp) - is it only available for those in trials? in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-sp-is-it-only-available-for-those-in-trials#post-97224 Thu, 17 Mar 2011 19:22:32 +0000 Dear Nigel – I will be starting my 3rd cycle next week having acquired it under 'special circumstances' . I would say be interested but not too interested at this stage as it still has to go through its third stage clinical trial, get its European licence and then no doubt go through the NICE torture before it hopefully will become generally…[Read more]

]]> 0892a6ec314aaadc75ed5c48081aee82 WrightGaye started the topic Bone Pain. in the forum General http://www.myeloma.org.uk/forums/topic/bone-pain Thu, 17 Mar 2011 16:19:46 +0000 I had my RT for thoracic and lower back pain 3 weeks and as yet have had no relief. Will it or won't it work? All I know is that it is excruciating and has been for months. It has changed the quality of my life and I long for it to go.

I have been reading more than writing on this board lately and pain/how to deal with it has come up a lot -…[Read more]

]]> 9cc24472ec39d5e059390a9ae7e1c48d WrightGaye replied to the topic Pomalidomide (?sp) - is it only available for those in trials? in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-sp-is-it-only-available-for-those-in-trials#post-97221 Thu, 17 Mar 2011 16:03:43 +0000 Dear Kath – As far as I know there are two of us on this board who are having pomalidomide – mine acquired from the drugs company under special circumstances. It is not part of a 3rd stage clinical trial which I believe is due to start in various hospitals around Easter. Your doctor should be able to find out where but it may not necessarily be…[Read more]

]]> 78c7552dd5f4e7ee8666e650a8d111a3 WrightGaye replied to the topic Feeling Rough in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-rough/page/2/#post-97119 Wed, 16 Mar 2011 17:38:25 +0000 Dear David – I didn't get complete remission on my first transplant = it was quoted as 'traceable' but it was enough to give me 18 months remission and live an almost normal life. So, don't go there until they tell you. I know it is really hard this rollercoaster of an unwanted companion but you are a fighter and much loved and respected on this…[Read more]

]]> b322cde5e902a54332441aebbc9f124a WrightGaye replied to the topic Feeling Rough in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-rough/page/2/#post-97116 Wed, 16 Mar 2011 09:21:42 +0000 On my first clinical trial with velcade in 2005 it seemed to be the standard of giving it twice a week but a lot of water has flown down the river since then and they now have a much better idea of side affects globally to show now that once a week delivers the same result without the some of the nastier side effects. I understand that a "son of…[Read more]

]]> 68001e2faaa0281ac0581f29b80d7dd2 WrightGaye replied to the topic Revlimid - When to take it in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-when-to-take-it#post-97154 Tue, 15 Mar 2011 16:48:11 +0000 Dear Jet = when it first hit me with thalidomide I fell into more or less complete comatose state and your description of it just sounds about right if not downright creepy! I actually remember thinking the next morning that I had slept in that position the whole night not moving once. It's happening again with pomalidomide? The laugh is having…[Read more]

]]> ab8403ee0461687debd6ca4c148d63f2 WrightGaye replied to the topic Revlimid - When to take it in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-when-to-take-it#post-97151 Tue, 15 Mar 2011 08:29:27 +0000 Debs – when you first started this thread I said that I took my pomalidomide in the morning and everything was fine. Well on Saturday night I slept from 10pm to 10am and that was half my day gone. I then had a sleep in the afternoon and early to bed in the evening. I think it's fair to say I haven't quite got the balance right! So my doc has…[Read more]

]]> f7abe70dfd2e35ee376ca25949cdd629 WrightGaye replied to the topic Bloody bras and rib pain! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/bloody-bras-and-rib-pain#post-103814 Thu, 03 Mar 2011 11:23:40 +0000 Now here's a suggestion to keep the bra thread 'uplifted' so to speak. My cleaning lady Debbie has just suggested we all wear sports bras (although where you stand with this one David I am not sure). Slightly concerned Min that we will be able to identify newly retired ladies if the boobs have gone south much quicker than normal. I could have…[Read more]

]]> dd6e1635a87dfb11f77b18f7f2277c29 WrightGaye replied to the topic Revlimid - When to take it in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-when-to-take-it#post-97146 Thu, 03 Mar 2011 11:09:17 +0000 Hello Tina – Thanks for the update of Patrick. Yes I too have had a return of the night cramps since Pomalidomide but so far not as bad as Patricks. I do wish him well Tina.

Good luck Debs with your Revlimid – will be thinking of you.

Love, Gaye xx

]]> 8ad835e5f71f75f534080faea6959038 WrightGaye replied to the topic Revlimid - When to take it in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid-when-to-take-it#post-97144 Wed, 02 Mar 2011 15:58:47 +0000 Dear Debbie – Thanks for your information on when to take Revlimid. I have taken Thalidomide, Revlimid (twice) and now Pomalidomide and every one has sent me into fatigue, sleeping for England etc and some more than others. I take them in the morning but they send me to sleep just the same – by 9pm I am ready for bed and sleep through until…[Read more]

]]> 4fb3e9841a1f1a9642d612d5dbdf8f97 WrightGaye replied to the topic Bloody bras and rib pain! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/bloody-bras-and-rib-pain#post-103803 Wed, 02 Mar 2011 15:45:53 +0000 Dear Jet – Well it made me laugh but also confirmed how flipping painful bras are when you are in back pain. Everything goes tight and unbearable and the relief of being bra-free is wonderful. I hope the lads find something useful with this ……!

I think this is the first time bras have graced this discussion board so well done Jet. It…[Read more]

]]> d1ce14d4801214dba3b562feecd21344 WrightGaye replied to the topic Web Site in the forum General http://www.myeloma.org.uk/forums/topic/web-site#post-89846 Wed, 23 Feb 2011 09:01:19 +0000 Dear Kath – thanks for your reply. Another little irritation about the website. You recently posted about your situation and the decision you may have to make. I wanted to reply to it but cannot find it. I know Sylvia said she could not find one I had sent to her so I don't know what is going on. I shall post this to the webteam and hope they…[Read more]

]]> e4ff2d135591860ac02afadea71880ab WrightGaye replied to the topic I'm baaaaaaaack! in the forum General http://www.myeloma.org.uk/forums/topic/im-baaaaaaaack#post-89850 Tue, 22 Feb 2011 15:56:59 +0000 Dear Kevin – you have been very much in my thoughts recently as we hadn't heard from you and was going to put out an SOS today to check so I am really pleased to hear from you. It sounds like you have had yet another horror story but yet again you have shown it who is boss. Well done you fighter. Keep out of that hospital for as long as…[Read more]

]]> 3f89e01720537ec3944c7f1cd225c17e WrightGaye replied to the topic Tiny MM Quiz in the forum Off topic http://www.myeloma.org.uk/forums/topic/tiny-mm-quiz#post-108859 Sun, 20 Feb 2011 12:32:31 +0000 I developed a buffalos hump when I was on larger doses of dex and it completely disappeared when I finished and has never returned. Wish I could say that my dexitudinous behaviour has never returned but it does. It's bad enough living with it as a patient but I do feel for carers/families etc who are on the receiving end of it.

When the…[Read more]

]]> afd5104994d90fb3594d2acf63e19ae6 WrightGaye replied to the topic Fizzing on Revlimid in the forum Side-effects http://www.myeloma.org.uk/forums/topic/fizzing-on-revlimid#post-103774 Sun, 20 Feb 2011 10:21:45 +0000 Dear Jet – sorry you have succumbed to the beast but welcome to our website where I am sure you will find help as you go through treatment.

It's an interesting combination and one I haven't heard of before. Alternate day revlimid with dex. It sounds like your docs are working out a treatment best suited to you and one thing you will find out…[Read more]

]]> a30eeefad8529fa2010758dde1498575 WrightGaye replied to the topic london hospitals SCT in the forum General http://www.myeloma.org.uk/forums/topic/london-hospitals-sct#post-89834 Sun, 20 Feb 2011 08:57:52 +0000 Dear Norman – I had both my SCTs at Barts in London and food was actually the last thing on my mind! Yes, you can use yor laptop but I can't say whether Barts is better or worse than other hospitals doing SCTs as I have only been to Barts. I am sure they are all much the same so please don't worry too much about it. It is not a complex…[Read more]

]]> 107a64bbb14dc934d456507814d3a99f WrightGaye replied to the topic surgery resulting from MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/surgery-resulting-from-mm/page/2/#post-84189 Sun, 20 Feb 2011 08:48:49 +0000 Dear Tom

I was with some friends yesterday and we placed bets on when we can use the sun lounge again before venturing into the garden. My date is April 15. No particlar reason. What about you Tom?
Love, Gaye xx

]]> 74c9953e5c81c56e50db8b60ae8d379c WrightGaye started the topic Web Site. in the forum General http://www.myeloma.org.uk/forums/topic/web-site Sun, 20 Feb 2011 08:42:53 +0000 Good to hear from you again Kath but am sorry you are feeling so rough with the dex. I think many of us can relate to that.

Regarding the new web site, you are not alone. I tried to post last week about it but didn't know how to put it into words and that I think is what the problem is. There is something not right but what it is I don't…[Read more]

]]> f98707b070d3e9276994a133a7c64565 WrightGaye replied to the topic Radiotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/radiotherapy1296585532/page/2/#post-97058 Fri, 18 Feb 2011 16:56:22 +0000 Hello David – not half as a numpty as me over this one. I am told that my completely crushed T6 vertebra is unlikely to respond to kyphoplasty and could cause more damage than help. The bone is diseased with myeloma cells and by using RT it attacks the cells, hopefully killing many of them and thereby relieving the pain. This is my…[Read more]

]]> 1bd25a95aace259ff9bfc62b9eb07025 WrightGaye replied to the topic Radiotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/radiotherapy1296585532/page/2/#post-97056 Fri, 18 Feb 2011 10:00:42 +0000 Dear Min – Thanks for the info on Revlimid and its classification. You never stop learning with myeloma and I am happy to go on learning!

I truly hope that you get a good result at clinic next week so that you can chase the sun. Perhaps we could all be on that awful Coach Trip programme where they all bicker and vote each other off. The…[Read more]

]]> 6ad3cea053f393f4cf2b5adc18bb45d9 WrightGaye replied to the topic Radiotherapy in the forum Treatment http://www.myeloma.org.uk/forums/topic/radiotherapy1296585532#post-97054 Thu, 17 Feb 2011 20:01:44 +0000 Dear Min

I have just be rerunning this thread again and a couple of things you asked I wondered if I could help you with. I think you will find that itching can be a side effect of Revlimid. I certainly experienced it but not massively so as I have heard of others. Also, Revlimid is regarded as a form of chemotherapy as is Velcade. They are…[Read more]

]]> 21fa7cdae8b97f13107b64b206548768 WrightGaye replied to the topic Pomalidomide - dosage in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-dosage#post-97070 Thu, 17 Feb 2011 16:34:20 +0000 oops, sorry, this is Gaye messing about!

]]> 57fa0e5130854246c2901c590901bc9e WrightGaye replied to the topic Blooming Dex!!!! Again in the forum Side-effects http://www.myeloma.org.uk/forums/topic/blooming-dex-again/page/2/#post-103758 Wed, 16 Feb 2011 19:46:38 +0000 Dear Bridget – I was completely adamant that I would never take dex again after preparation for my first SCT and I have never gone back on that level since but have gone on much lower doses. I like you share the taste business with dex but I also noticed that when I was on Revlimid it first took hold so I can't be completely certain. All I know…[Read more]

]]> fdc2778fcf93e6f33d3637d27d5e740e WrightGaye replied to the topic surgery resulting from MM in the forum Newcomers http://www.myeloma.org.uk/forums/topic/surgery-resulting-from-mm/page/2/#post-84190 Wed, 16 Feb 2011 19:28:37 +0000 Dear Sylvia – All the postings I made to you are on here so I am not sure why haven't been able to access them. I wish I could help you. How is your treatment going. Would be interested to hear. I am having radiotherapy on my back pain next week and now in my second cycle of Pomalidomide.

Good luck Sylvia.
Gaye xx

]]> 21334f14d057f579797ace93f80a66ee WrightGaye replied to the topic More radiotherapy and spinal cord compression in the forum Treatment http://www.myeloma.org.uk/forums/topic/more-radiotherapy-and-spinal-cord-compression/page/2/#post-97086 Wed, 16 Feb 2011 12:36:51 +0000 Dear Friends – I am in awe of some of your stories and of the lot that life has thrown at us. You are all great. I wish you good results. I had my RT simulation today and it seems that the T6 has collapsed completely so it would gain nothing by a balloon kyphoplasty. So next Thursday they are treating some of the thoracic vertebrae and lumber…[Read more]

]]> 2acc10d99b6ca58c55e6ba0b267c7a5f WrightGaye replied to the topic New to Dad with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-dad-with-myeloma/page/2/#post-84240 Wed, 16 Feb 2011 11:53:21 +0000 Dear Clara – Good to hear from you. You will always have to keep a close eye on the communcation between both hospitals. Two is bad enough but when it gets to three in my case ragarding the RT, stress rates rocket. Good luck and do call Ellen.
Love, Gaye x

]]> 73fa75a3299892b4612144f237facb5b WrightGaye replied to the topic Pomalidomide - dosage in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-dosage#post-97068 Wed, 16 Feb 2011 08:38:03 +0000 Thank you all you lovely lot for your wonderful words. I used to help out at the hospice Min but I stopped that long ago other than helping out with campaigns. I need their help now and the idea of me flapping around with a duster is just too much! I now flap around with my stick and that frightens the living daylights out of them. If they…[Read more]

]]> e29eaa0beed1fd6434132af0237afd96 WrightGaye replied to the topic Pomalidomide - dosage in the forum Treatment http://www.myeloma.org.uk/forums/topic/pomalidomide-dosage#post-97063 Tue, 15 Feb 2011 16:38:36 +0000 Just an update on Pomalidomide after first cycle. I have become extremely crabby as time has worn on, a mixture I think of the drug but also of the unremitting back pain which has finally worn my patience and tolerance out. It now just wants to make me cry, my patience and self-confidence have just gone as every movement brings pain and more…[Read more]

]]> d1d10584c89ce007ce956f3551430c5d WrightGaye replied to the topic New to Dad with Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-dad-with-myeloma#post-84237 Tue, 15 Feb 2011 16:17:44 +0000 Hello Clara – I don't know very much about about Amyloidosis but I believe that there is a connection with Myeloma because this site embraces it with other inforrmation. Maybe a call to Ellen at MUK to get some further information would help. I also know that the main hopital specialising in this disease is the Royal Free in London. Have you…[Read more]

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