[GayeParticipant]

Dear Bridget – I tried to write about 2 hours ago and my posting was refused due to unacceptable language or something or other. I tried like mad to see what the offending piece was and could not, no swearing, nuffink! The only thing that must have offended the machinery could be to keep the old pec**r up. We'll see if it takes this abbreviation!

Anyway I am glad you sound a bit more like our Bridget and also that the Chrissie Tree is up. Now you just enjoy the time with family and let all the onward treatment take its turn.

Yes, thankfully the snow is going here but nothing that a good freeze overnight couldn't change!

Take care Bridget, Love, Gaye x

[GayeParticipant]

Thanks guys and gals for what seems like a faster system after all our moans about how slow it was. Unless I am imagining it I am certainly not dozing off waiting for it to load so something must have changed! If it has WELL DONE AND THANKS!

Best wishes, Gaye

[GayeParticipant]

Thanks Min – a very different take on the nativity but I really like it!

Love, Gaye xx

[GayeParticipant]

Like Min I cannot access this file – bum!

Gaye x

[GayeParticipant]

David – I am so glad you are back home and enjoying all the things that we so take for granted until they are taken away from us. First mission now accomplished.

As for your flu/swine flu injections I really do not know the answer and your consultant is the best person to guide you. I hope he is able to help you.

Good to have you back – you have begun your recovery and hopefully will feel better and stronger each day. Tom's saying is [b]onwards and upwards [/b]- mine is [b]one day at a time[/b].

Love, Gaye xx

[GayeParticipant]

Dear Bridget – thank you for letting us know your news as I was getting concerned that Brocho was strangely silent for the last few days. I am so sorry about the infection but shattered for you regarding the Velcade. As you say you need some time to take it all in and by not having any treatment right now will hopefully give you some space to enjoy Christmas.

The chronic pain isn't exactly helping but I hope you know that all of us on this discussion board care (dare I say love!) and respect you very much. You are always an inspiration with the cheeky sense of humour and caring replies – now it is our turn to give some of it back.

As we both know, you will bounce back but you have to deal with this first. I hope you will have your children and grandchildren around over the holiday.

Love, Gaye xx

[GayeParticipant]

Gill – RT is certainly no walk in the park but I can't remember experiencing the side effects you mention. I imagine much depends on where they are targeting with the RT but it all sounds very unpleasant and Stephen shouldn't have to experience this. I know you have a tough one in Stephen but I think this is where your nagging powers must come in.
Let us know how you get on. It does sound horrible.
Love, Gaye x

[GayeParticipant]

Well done everyone. Yes it is good to hear some positive news when it is about so do enjoy it. I hope this second blast of winter isn't go to be as long and awful as the last one. I for one am not dreaming of a white Christmas. Just a boring old cloudy one will do!

Have a good weekend.
Love, Gaye xx

[GayeParticipant]

Gill, this almost renders me speechless. And who is the person who has the job of confirming that Stephen will be dead by next December – his consultant, GP etc? Who would be able to at this stage because he is only at his first relapse? Have you made any decision or are you still in a state of shock and anger. The pox to HSBC.

I have been with them since 1968 and I decided to rewrite my will 2 years ago (my original one was made in 1982 with them). They told me what they could do and then pronounced that it would cost me £6,000 as they would be the executors. I couldn't get out of the door quick enough and went to a solicitor where I was charged around £140 which was paid for by Cancer Research UK. So much for HSBC!

Yours is a horror story.
Love, Gaye xx

[GayeParticipant]

Thank you all for your lovely replies. Yes, she is a very special girl to me and puts me to shame in that she speaks 3 languages including English. The children in Kenya now have free, compulsory primary education but secondary education is not compulsory yet and therefore has to be paid for. The children love going to school because they so want to learn. Wonderful isn't it!

Love, Gaye xx

PS The cheque from the Inland Revenue has arrived. Hoooray …….!

[GayeParticipant]

Dear Pamela – no I have never heard of this procedure before although my great newphew who is 14 has been having operations on his leg since he was 6 and he has had many screws and other metals in his time. I feel sure that your femeral nail will be a better option than the near certainty of your leg breaking in the future. Myeloma never fails to bring out new areas for attention and no wonder it is such an individual illness to treat.

Will be thinking of you. I hope the operation won't interrupt your Panto season as Tinkerbell – although this time with a crutch! I just love the name …………
Love, Gaye xx

[GayeParticipant]

Firstly Bridget I am sorry to hear you have been feeling grotty and hope that the cold has stayed precisely that and nothing worse. A prostrate husband on the settee sounds interesting but I alays laugh at this word, because I have heard so many people refer to prostrate cancer rather than prostate and I can rarely keep a straight face – aren't I naughty!

Regarding the conked out washing machine it could have been worse. Somebody I know returned from a holiday in Goa 2 weeks ago only to find her bungalow wrecked because the pipes burst in the cold weather. It will take a year before all the repairs make it habitable again.

Sarah I feel exactly the same about Christmas – it's always the children that bring on the blubbing. May they continue to do so!

Love, Gaye xx

[GayeParticipant]

Absolute b****r Keith. I was hoping to hear from you but not necessarily with this news. I can't imagine how the pain must be feeling but you give a very good description! I never know whether or not a lytic lesion and a plasmacytoma are one of the same thing. Well I know you will let us know more when you know yourself. In the meantime, as you say, tonight is a myeloma free night. Do enjoy yourself Keith.
Love, Gaye x

[GayeParticipant]

Dear Amelie

If you look at the News section of this website you will see information coming from ASH in America after their recent conference in Florida. It will also tell you that Velcade has been found not to increase the length of remission after SCT. It does not mention Revlimid.

Here in the UK Revlimid is not approved for use as first line therapy due to the high cost but is approved after at least two relapses. However, I have a feeling that I have seen on here that Revlimid has been used occasionally outside these guidelines but I am not sure in which circumstances.

For everybody else there is some very interesting news on this website from ASH about new combos emerging in the States which I would recommend reading. Work is going on all the time so as our cheerleader Tom keeps reminding us 'Onwards and Upwards'.

Love, Gaye x

[GayeParticipant]

No, no Dai – you can't just pee in your garden over your chilblains/PN – what WOULD the neighbours think! No, for total effectiveness, you must pee in a pot and then put your foot in the said pot covering the offending area. I have no idea how long you keep foot submerged (may be a day or two) – you need to try it out and then let us know. So, looks like we have an answer to PN much nearer to home. Well done Dai – keep us in the loop!

What a lovely story about your granddad's greatcoat and your Mum's connivance in making it all up. Wonderful. So this is what we used bd (before duvet). I used to have a stone water bottle and thought it was wonderful – using a heated brick was just a little before my time but bed times and getting up in the morning were very cold affairs. No, there's still nothing about the 'old days' that I would wish to return to regarding bed times!

Love to you all, Gaye xx

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