Just briefly to add to tinkerbell's post, I too am from N Ireland, although I have been living in the Isle of Man for the last 14 years. I know what you mean about feeling isolated! However, this website is a great source of information and support. In particular, I have gained a lot of encouragement from people who have been…[Read more]

Another voice saying "it's the dex!". However, after a while you do get to know what to expect and everyone can then plan accordingly. For me, days 1 and 2 after the dex were when I was particularly low. But it's also good to know that the dex lows do pass and you can then look forward to several good days. Oh yes, and while…[Read more]

I presume this is Bangor in North Wales rather than Bangor in Northern Ireland? I live in the Isle of Man and am having my treatment at the Royal Liverpool Hospital. They have been very good there so I would have no hesitation in recommending them. I'd like to think there might be somewhere nearer for you, however. Maybe Wrexham or…[Read more]

Yes, I have had the same thing. I wasn't convinced at first that it was actually peripheral neuropathy and wondered if my leg numbness was caused by the same back pain that took me to my GP in the first place (leading to the eventual diagnosis of MM). However, I have had various scans and x-rays done and now accept that the leg and…[Read more]