Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
Dai please point me in the right direction to find out what that means or at least give a definition
Gill replied to the topic Try singing this when you have a down moment in the forum Off topic 13 years, 1 month ago
David that was brilliant.I have only sung it in my head and at a whisper so far as it is late at night and Stephen is asleep. But tomorrow I will sing to Stephen at the top of my (terrible out of tune) voice
Gill xx
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
I maybe chancing my arm with this one but I did check out that it is in my dictionary (Oxford English)
The definition is: A large hairy manlike creature said to live in the highest part of the Himalayas
YETI
leaves ETI for the next player
PS Stephen probably has a larger vocabulary than I do but is slightly dyslexic. It always…[Read more]
Gill replied to the topic Trouble at mill in the forum Off topic 13 years, 1 month ago
Hi Gilly
Do check your organisation's sick policy When Stephen was diagnosed in November 2008. My doctor signed me off with stress due to my husband's illness.
I ran a hostel for single homeless young people with additional problems on top of having nowhere to live. Some had suffered abuse from at home, others had developed drug or alcohol…[Read more]
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
Nettie I am so sorry if you thought I was being unkind or picky I meant the whole thing as a joke and did not mean to offend anybody.
My words over poking in noses were directed at David which I thought I had made clear in my first paragraph.
All the best Gill
Gill replied to the topic Holidays in the forum End of Life and Grief 13 years, 1 month ago
Min When are you off I remember you posting that you are out there for 12 days but I amnot sure when you go.
Have a lovely relaxing time
Love from Gill xxx
Gill replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 1 month ago
Fingers crossed that Bruce is on the mend and home PDQ. I hope he manages to eat a littled bit better now
Gill
Gill replied to the topic Que Sera… Week-end Lurgy Strikes Again… in the forum Treatment 13 years, 1 month ago
Dear Dai
I am so pleased that you feel better. I reacted a bit to the flu jab (the same as last year) slightly swolen arm and sniffles Whereas Stephen had no reaction at all.
Stay Well
Gill xx
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
Before I put up my word I would like to say (for David's sake) that in the (made up) classification of diseases
NOSOLOGY is classed as the study of poking one's nose into other people's words and sniffing out the entries into a word game where the person putting forward a word has made up that word and cheated:-)
Shame on you Nettie:-S…[Read more]
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
Great to see more and more people joining in this game.
I am going for GARISHLY
So HLY are the next letters to use.
Gill replied to the topic New and Help needed in the forum Newcomers 13 years, 1 month ago
Hello Dee
Welcome from me too I am pleased that your husband seems to be a bit better.
It is a huge shock to receive the diagnosis. Stephen was 53 when he was referred to an orthopeadic (sp?) surgeon to try to helpe with what was thought to be a trapped nerve in his back.
We had never heard of mm. He had been a builder all his working…[Read more]
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 1 month ago
It's ages since I tried to think of words I haven't even looked at a crossword for weeks.
I am going for NECESSARILY and keping my fingers crossed that we haven't had it before.
That leaves ILY for the next person
For those who may not have played this before, you MUST use the last 3 letters of the previous word somewhere in the word that…[Read more]
Gill replied to the topic Jab, Jabber, Jabbed in the forum General 13 years, 1 month ago
Regarding the pneumonia jab, Stephen's mum looked up her paperwork from when she had it and it said that she would not need it again.
Mind you although she's 85, has angina, asthma and is very overweight she still has her sense of humour and seems in better health than Stephen. She laughed when I said maybe it is 10 years and not forever but…[Read more]
Gill replied to the topic Hello in the forum Related conditions 13 years, 1 month ago
Hi Elaine
It's a great idea to write things down as you think of them It is my husband that has mm (Stephen diagnosed late 2008 when 53)
We never remember to take a list of questions with us and always say (afterwards) "oops we forgot to ask……"
Fortunately Stephen's consultant is more than willing to accept direct phone calls.
We…[Read more]
Gill replied to the topic Hot Flushes in the forum Side-effects 13 years, 1 month ago
Hey Debs
Grab the compliments Any and all. Kate Middleton? Why not?
Good luck with your fund raising. You are putting me to shame for not doing more (I don't think buying Christmas cards counts)
When I think that our grand-kids have made more effort to raise funds for "that mm thing that Pop's got" than Stephen and I have I feel quite…[Read more]
Gill replied to the topic London Infoday in the forum General 13 years, 1 month ago
Debs I would know you anywhere hair or not.
Just don't stop smiling if you want to be recognised. Hope you are feeling well
love from Gill xxxx
Gill replied to the topic Qutenza (PN relief)? in the forum General 13 years, 1 month ago
Gosh I wonder if Qutenza and Coenzyme Q 10 have anything in common. I know that Q 10 has helped Stephen (mm husband) a great deal
If there is something better then please everyone post all that they know
Gill
Gill replied to the topic another newcomer! in the forum Newcomers 13 years, 1 month ago
Sorry you had to join us but welcome. There is not a great deal that I can add to the advice you have had from others. Eat when you can and eat everything you fancy.
HEY Pig out sometimes 🙂
Gill xx
PS what does HAKA mean in English
Gill started the topic This forum is so needed. in the forum End of Life and Grief 13 years, 1 month ago
When I finaly got back on line Grrrr Gremlins!!! I was so pleased and so sad to see this new forum.
Pleased because nobody should have to walk away from friends after all that mm has brought us and sad that it is needed.
I hope with all of my heart that this site becomes obsolete. That there will be no need for this site as a cure will be…[Read more]
Gill replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 13 years, 1 month ago
Hi I have been off line for so long I ended up with withdrawal symptoms (moan for another day).
But now I am catching up I just wanted to say the very best of luck for Bruce's SCT.
Everybody has given you great advice. The only thing I wish I had done differently was I wish I'd kept a diary when my husband (Stephen) was in for his SCT.