Hi Bridget I agree what a lovely man. There is a temptation to reveal his name because of his kindness but temptation will be resisted

Love from Gill xx

Hi Jet Good luck with your SCT Stephen has had one and is duie to have another later this year. He is not dreading it like he did last time as he found it quite managable. He is dreading being away from home (old softy) but we both hope that it will put him back in remission.

I kept a diary thingy on the old site about his progress while he was…[Read more]

Goodness Sarah I had to look twice at your photo to realise that you are not Kate Humble. You look just like her 🙂 🙂

I envy your energy Good luck with all the lambs Gillxx

You moan all you like Eve. Why not? I must say that we do not seem to have the type of problems that others here seem to have with getting prescription meds.

They seem to issue a prescription for us to take to our local chemist and then it gets filled. Sometimes we have to go back to the chemist's after a few hours while they get it in and…[Read more]

No idea what it is Min sorry Have you spoken to the nurses on here? Gillxx

Thanks to everybody for all the replies. Stephen is listening to his own body now and again "giving in" as he puts it and resting more often. It makes such a difference as when he is not very, very tired he can do some of the things that he wants to do without feeling crippled.

Thanks Min for the poo pee tip We had already put the poo-pee pad…[Read more]

Hi Izabella (sp?) It's a beautiful name.

Horrid, horrid time you are going through Kev will turn a corner and you both will have a "normal" life back. I remember before Stephen (mm husband) was first told he would go for a SCT we were told "We will make you feel worse before we make you feel better" Ain't that the truth! Unfortunately you both…[Read more]

OK I have now withdrawn my pity for Stephen's bad tummy on Velcade. Because he was not affected by the tum problems on previous doses HE WAS NOT TAKING HIS ANTI SICKNESS DRUGS!!!!!!!

After a particularly bad vomiting stint where he couldn't even keep water down he took the tablets with a huge glass of water and then immediately up-chucked…[Read more]

Hi Mike and good luck with your treatment. Gillxx

Well this drug is certainly taking it's toll. Stephen has had very little in the way of side effects gregarding tummy problems this far. After reading other's posts regarding Velcade he felt very lucky.

This has now changed dramaticaly. His new best friends are the loo bowl and a bucket. 1 item for each end!! he does not even seem to be able…[Read more]

I am so sorry for your loss. I just wanted you to know that my thoughts are with you Gill xx

Warning Shirley!!! PooPees (no folks I meant to spell puppies that way) are a pain. Ours is gorgeous but Oh what hard work. We were spoilt with her honory sister (now 2) Clean as a whistle.

Mind you she is a complete sweetheart and we wouldn't swap her Hmmm for a clean one maybe 😉

Dear Mark I am sorry that your dad has got mm It is still quite an unusual cancer, but our GP said that although she was used to seeing it (huge doctor's practice) she was seeing younger and younger people with mm and your dad is still quite young.

There is a great deal of research going into mm at the moment so let's all hope that it will help…[Read more]

Hi David , very impressive xray you old show off:-)

Thanks again to all for your replies. Stephen will be in Kings later this year for a second SCT but never has to go there at the moment. Maybe we can get a printout regarding pp etc from the hospital he attends regularly thanks for the iformation Mari

Hi Tracey So sorry you had to join us but a huge welcome Hope all goes well for you Gill

I think that Myeloma is still quite an unusual cancer (trust my husband to get something unusual) but when we first saw the head of haematology at King's College Hospital he said that mm was considered to be "quite a sexy subject for research at the moment"

I take it that means there is a great deal of research being done so maybe it will come…[Read more]

Hi Keith Stephen (husband mm person) is on Velcade at the moment. He is hoping to go for a second SCT later this year. He get's very, very tired on the Velcade and of course the Dex that goes with it is not a pleasent experience.

Stephen's taste has certainly suffered and the only thing he can get some idea of flavour with is spicy food, curry…[Read more]