Gill replied to the topic Anyone know anything about History/music or owt because I in the forum Treatment 13 years, 11 months ago
I have no idea regarding all the jargon but it sounds from others that have posted it is all good news.
Couldn't be more pleased for you and long may it continue Love from Gillxx
Gill replied to the topic Any hints in the forum Newcomers 13 years, 11 months ago
Hey Cheeky Tom
How come you "blagged" your way into the under 50s. They will probably ban you now they know how ancient you are:-)
Love from Gill
Gill replied to the topic In lieu of a card in the forum Off topic 13 years, 11 months ago
Much enjoyed that Dai thank you Gill xxx
Gill replied to the topic Not so good today in the forum Treatment 13 years, 11 months ago
Sorry I have not replied before Kevin. Too busy feeling sorry for myself.I do hope that your medical team find something that will bat your latest problems into touch very soon.
Also Good luck to Sharon fingers crossed that all is OK
Gill xx
Gill replied to the topic Champagne but no Celebration in the forum General 13 years, 11 months ago
Thank you all so much for your words of encouragement, especially to all the people who have trod this path and have their own battle to fight It means a great deal to have your support. Yes today is better.
I realised a long time ago that if one worries about the time that is left you may as well just throw that time away. I just needed to…[Read more]
Gill started the topic To all those of a "certain age". in the forum Off topic 13 years, 11 months ago
I realise that we are a very mixed bunch age wise but thought that some may appreciate the following and for the younger members here their parents might be amused Gill
TO ALL THE KIDS WHO SURVIVED the
1930s, 40s, 50s, 60s and 70s !
First, we survived being born to mothers who smoked and/or drank while they
carried us.
They took…[Read more]
Gill replied to the topic D Day today in the forum General 13 years, 11 months ago
Fingers crossed for you both
love gillx
Gill replied to the topic Breathless cause is now a DVT in each leg in the forum Side-effects 13 years, 11 months ago
Hi Min
I am so sorry that you have had a chain of bad news regarding Peter's health. I have my fingers crossed for better news for you.
Nothing about mm is funny but I think I am so stupid I make myself chuckle. When you mentioned tanks I thought Peter kept fish:-/
You are right about Co-enzyme Q10 it really helps with cramp. My…[Read more]
Gill replied to the topic Champagne but no Celebration in the forum General 13 years, 11 months ago
Dear Gaye
Thank you so much for your reply I needed somebody to make me put my sensible hat back on. It just comes as such a shock when you seem to have got some "normal" life back to be told by mm "fooled you there didn't I?"
One more bottle of champagne left and that is staying in the garage until Christmas day. If we get mum in law to…[Read more]
Gill replied to the topic Any hints in the forum Newcomers 13 years, 11 months ago
Hi Pual
It is my husband who has mm and he is the grand old age of 55 Although He has been through all the first line treatment chemo SCT etc I am probably not the best person to talk to as we are of a different age. I do know that there is an under 50 site on here and I am sure that you will get a great deal of support and information from…[Read more]
Gill replied to the topic Bone Marrow Biopsy in the forum General 13 years, 11 months ago
So pleased that your biopsy was pain free. I know that I have seen my big "Bob the builder Oh it is only a 4 inch gash in my hand/foot whatever put a plaster on it and stop fussing" husband clench his teeth, hands and curl his toes when having a bmb.
The wretched tool they use looks like a giant corkscrew and I remember somebody on here posting…[Read more]
Gill started the topic Champagne but no Celebration. in the forum General 13 years, 11 months ago
Hi Everybody,
It's a bit like the famous Jaws film here "Just when you thought it was safe to go into the water"
We went to see Dr S last night. We had the bottle of champagne in the fridge to come home to as we both knew that Stephen felt fine.
Well doesn't this (worse word you can think of and ends in ing) illness come back to bite us…[Read more]
Gill replied to the topic Michael's nurse phoned last night in the forum General 13 years, 12 months ago
Hi Roz
I am a late bird too. I am sorry that your visit did not turn out as you hoped. I have my fingers crossed that Michael will be made more comfortable and less agitated over the next few days.
Let's all raise a glass (or coffee cup) to hope Gill
Gill replied to the topic Musings from Ward 9 in the forum Treatment 13 years, 12 months ago
Hang on in there David. You are, at least, half way
Love from Gill xxxx
Gill replied to the topic Stem Cell Transplant in the forum Treatment 14 years ago
Hi Arlene
My husband was 53 when diagnosed in 2008. He had a SCT in the summer of 2009 and has been very well since his transplant and is in total remission. He is due to see his oncologist in a week or so and I always panic beforehand but other than that we get on with our lives.
He has damage to his spine that was caused by mm before the…[Read more]
Gill replied to the topic Needing some reassurance here please in the forum Carers 14 years ago
Hi Lynn
I am sorry that the news was not good for John and you I hope he feels a little bit brighter today. Do keep us posted on his progress
Gillx
Gill replied to the topic Snow from my office in the forum Off topic 14 years ago
It must be awful to have to battle through it and put up with the cold but it certainly looks gorgeous
Gill
Gill replied to the topic Michael's nurse phoned last night in the forum General 14 years ago
Hi Roz
I hope they arrange a meeting very soon, and that the best thing for Michael can be sorted out.
It must be frustrating for you but if Michael's calcium levels are back on track let's hope he becomes less confused.
I have my fingers crossed that the weather does not stop you getting to the hospital and want to let you know that we…[Read more]
Gill replied to the topic Mums diagnosis in the forum Newcomers 14 years ago
Hi Sandie
I am glad that others have said about the biopsy as I am the wife of an mm person and so have no real idea, but I can say that I have seen Stephen's toes curl when he has to have them (he does not have sedation) so I think it is a good idea for your mum to be a bit woozy.
She sounds as though she is coping very well with having mm,…[Read more]
Gill replied to the topic Sugery????? in the forum Treatment 14 years ago
That seems to be good news Bridget and I wish you the very best of luck. Stephen cannot be operated on because there is too much damage and so still relies on MST gabapentin and parecetamol. He has, by determination practicaly cut out the oromorph.
I do hope it goes well for you although the thought of further surgery must be daunting. Keep us…[Read more]